Corzy Posted March 30, 2005 Report Share Posted March 30, 2005 Hi! My name is Cordelia, I'm a 21 year old from Australia. I have had NCS for about 11 years (badly for just over 2 now) and have just been diagnosed with developing POTS in the last few months. I've tried writing on these sorts of support boards before and I find it quite hard because the conditions are so life-effecting and I feel like if I talk about it all too much I will _become_ my syncopes, rather than just dealing with them. But I now realise, I need support because it is all just too much to handle! I'm sure you all know what I mean...I look forward to getting to know you all, and reading about all your tips for dealing with all this! It can be overwhelming at times. Cordelia! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 30, 2005 Report Share Posted March 30, 2005 Cordelia--welcome, glad you found us. Sorry that you are dealing with these life-altering conditions. I agree that there can be a fine line regarding managing vs becoming your condition--I understand completely. But, it is great to have a helpful group of understanding people, experiencing much what you are, at hand, when you need support and understanding or have questions. I think you will find this is a special group of people here and there is a wealth of collective knowledge at your fingertips here at DINET.KatherinePS I LOVE your first name Quote Link to comment Share on other sites More sharing options...
Corzy Posted March 30, 2005 Author Report Share Posted March 30, 2005 Thanks Katherine! I spent a bit of this afternoon reading over past messages which has been helpful!! And a lot of "Oh, that happens to me too" or "Is that what that means?"! Thanks again! Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Cordelia,Welcome to the group. It's nice to see someone from a different country.You are right. We learn a lot from reading the archives and from sharing our experiences.Take careErnie Quote Link to comment Share on other sites More sharing options...
morgan617 Posted March 30, 2005 Report Share Posted March 30, 2005 Welcome Cordelia!! It is very life altering and I find this site to be very validating. I hope you do. It's a great place for questions, venting and getting lots of support in a pretty unsupportive world at times. Hope you stay awhile! morgan Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Cordelia, Like you, I have both POTS and NCS. Also, like you, I initially had a hard time with seeking support. In the past few years, though, I've realized how helpful it is to have a place to go, other than just my family and friends. Everyone here understands exactly how hard day to day living can be--and we take turns giving support and getting support. I think it's great you've found us and I hope that being here helps you. Nina Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted April 1, 2005 Report Share Posted April 1, 2005 Hi Cordelia! Welcome to you there "down under"! I'm a little late to welcome you along with the others but still wanted to say "hello"!I've been in the "fix it shop" and am just feeling well enough to catch up!So, what I wanted to also say is that: here, you can say and feel whatever you need to say/ feel as you learn all about POTS. There is no fear in becoming your symptoms long term because you will learn how to manage them...eventually. It is very real and very normal to feel overwhelmed as you first learn and... then even seasoned POTS people have setbacks! All is quite normal for us dysautonomics! Learn to be gentle with yourself and managing it won't be so hard. Afterall, you didn't ask for this physical challenge but you are dealing with it! Hopefully, we can help you deal with it in a more positive, proactive and peaceful way!Hope you are doing okay.What do you call those not there down under? Are we considered the "up over"? being silly, tearose Quote Link to comment Share on other sites More sharing options...
tammyokc Posted April 2, 2005 Report Share Posted April 2, 2005 Hi Cordilia! I am new too but can tell you I already feel right at home with everyone here. Stick with them, they will help you in your deepest of POTS Holes. I read a lot of the older posts to help with a lot of my questions. Welcome! Quote Link to comment Share on other sites More sharing options...
blackwolf Posted April 2, 2005 Report Share Posted April 2, 2005 Welcome Cordela,I hope that you get as much out of this site as I have.Black-still in the potshole-wolf Quote Link to comment Share on other sites More sharing options...
Eli6596 Posted April 6, 2005 Report Share Posted April 6, 2005 Hi Cordelia,I am new here too but have had POTS for years. I think we all have a need to talk about our illness. It is therapeutic and normal. It helps me to make sense of it, so I can accept it and go on. No-one understands it as well as someone else with the same illness, so I think this place is a godsend. You are not alone. Karyn Quote Link to comment Share on other sites More sharing options...
briarrose Posted April 6, 2005 Report Share Posted April 6, 2005 CordeliaWelcome to our family I know what you mean about ignoring and just dealing with it, I do that often, in fact sometimes I think most of my life.But this family here has been wonderful for me and it's really nice to have others to share it with instead of dealing with it all on your own.Steph Quote Link to comment Share on other sites More sharing options...
funnyfrog Posted April 6, 2005 Report Share Posted April 6, 2005 Hi Cordelia - Welcome to the forum, I hope you will find that we are all here for you, on good days and more importantly, on bad days, and anytime you have a question or an experience that you want to share with us - Nice to meet you. Beth Quote Link to comment Share on other sites More sharing options...
geneva Posted April 6, 2005 Report Share Posted April 6, 2005 Hi Cordelia and welcome to the group. I think we can all relate about not wanting to become our illness but, for me, I have found this to be an extraordinary group of people and NOT just because we share a common illness.I look forward to hearing more from you! Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted April 7, 2005 Report Share Posted April 7, 2005 Hi Cordelina I am also new to this site and have found it very helpful. Everyone here is so sweet. There's also alot of good information.Dayna Quote Link to comment Share on other sites More sharing options...
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