sue1234 Posted October 31, 2011 Report Share Posted October 31, 2011 I don't know if my poll is going to post, as this new forum style is different. I'll see, and if not, I'll try again. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted October 31, 2011 Report Share Posted October 31, 2011 Interesting poll! Quote Link to comment Share on other sites More sharing options...
juliegee Posted October 31, 2011 Report Share Posted October 31, 2011 Alfred Adler would call me an abdicated first- although I'm a second My son is an only. I often wished I'd had other (healthy) children as my "controls" so that I could have realized how badly affected Mack was- earlier. Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 1, 2011 Report Share Posted November 1, 2011 Hi,I am the 11th of 12 children and only 9 have POTS. Quote Link to comment Share on other sites More sharing options...
sandymbme Posted November 1, 2011 Report Share Posted November 1, 2011 Only nine Ernie! I would say nine is plenty! Sandy Quote Link to comment Share on other sites More sharing options...
Tarastomsgirl Posted November 4, 2011 Report Share Posted November 4, 2011 I'm the oldest of 4 and my symptoms started when I was 22 Quote Link to comment Share on other sites More sharing options...
Kate2011 Posted November 4, 2011 Report Share Posted November 4, 2011 Oldest of 2 and my symptoms began at about 16 or so, although looking back I can see indications my entire life. Eveything escalated further when I was about 20 or 21. Quote Link to comment Share on other sites More sharing options...
misstraci Posted November 5, 2011 Report Share Posted November 5, 2011 Wow Ernie my goodness! That is both a good and bad thing. I'm sorry you all have this awful condition but to know others so close to you that know what you are going through and can listen and understand you, I bet it feels good to not feel so alone. Quote Link to comment Share on other sites More sharing options...
rach73 Posted November 7, 2011 Report Share Posted November 7, 2011 Hi,I'm the oldest of two but we both have POTS and EDS. My sister developed severe POTS symptoms at the age of 14 (shes 2.5 years younger than me) I developed severe symptoms at the age of 33.Since both of us have been diagnosed it has become clear that both our parents have EDS and my mum I believe has POTS.Interesting poll.ThanksRach Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 19, 2011 Author Report Share Posted November 19, 2011 Okay, y'all are probably wondering why I did this poll! It kind of gives me the numbers I was expecting. And, of course, this is just all theory on my part.I was reading an article a while back about hemoglobin. Besides the usual that we all know about oxygen transport, it said it is used in some neurotransmitters and in collagen formation. So, my thinking was, maybe some of you with EDS were born to iron-deficient mothers. The poll showed that 60% of answerers were either middle or youngest children. That makes me think more of the mother with iron deficiency having another baby.The second thing, most of us have our most POTS symptoms during age group of having periods, and especially during age of having children. This would make US more prone to anemia. Not sure what that tells me regarding anemia, but maybe we lost collagen strength during this time?Just food for thought.http://www.ucsfhealth.org/education/hemoglobin_and_functions_of_iron/index.html Quote Link to comment Share on other sites More sharing options...
jenglynn Posted December 4, 2011 Report Share Posted December 4, 2011 I have not had ANY tests to confirm this but I feel that I may have the hypermobile form of P.O.T.S. As a child was so flexible and my joints would often slip out of socket and go right back in. Even now, I am very flexible and can do all of the "flexibility tests" that I've found on website to indicate this.I stated on the poll that my concrete symptoms started between 31-40 because that is when my symptoms became debilitating but I can recall having some symptoms as a young teen. I had migraines, frequent diziness, and had my first syncope at about 14. The syncope has actually been with me since but nearly to the degree I have it now (multiple times a day) but I was always one of those people prone to "fainting". Usually only once or twice a year.Interesting Poll! Quote Link to comment Share on other sites More sharing options...
Tzipora Posted December 4, 2011 Report Share Posted December 4, 2011 I'm the oldest two and so far my younger brother is pretty darn healthy (though he does have scoliosis). A lot of joint issues run in my family and I've been wondering if I might have the hypermobile EDS. When I was healthy I was heavy into dance and was very well known for my flexibility. I had the kind of super "double jointed" flexibility and also used to feel my joints pop in and out of the socket. My hip joints still do this on occasion (and it hurts!). But no one has ever brought that up.I was torn between what age to mark. I'm 21 now and just got the diagnosis of POTS. However my symptoms first got very severe right before my 21st birthday and I actually spent my 21st birthday in the hospital throwing up and being incorrectly diagnosed with vertigo. I got the diagnosis of sinus tachycardia at 19 though. And have had random issues with tachycardia since I was 17 or so. So I'm not totally sure. I clicked the 21-30 button though since that's when things got really bad.Also, I'm not sure if my mom was actively anemic when she was pregnant with me but I know my mom has been anemic at points in her life (as have I). I was an IVF baby, the first child born to parents ages 46 and 50. Never sure if that has anything to do with my many health issues but it might... Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted December 5, 2011 Report Share Posted December 5, 2011 My twin brothers are only 15 months younger than me (they just turned 21 and im 22) and they are perfectly healthy with no symptoms of POTS. Actually one is in the Navy and the other runs like crazy. My mom has POTS though, and my grandma had symptoms. It only affected the women of our family... i really hope my daughter does not get it :/ Quote Link to comment Share on other sites More sharing options...
mully2014 Posted February 11, 2012 Report Share Posted February 11, 2012 I'm the oldest and have had symptoms my whole life. My younger sister has POTS as well but is well controlled with florinef. She had only recently began to show symptoms of POTS. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted February 15, 2012 Report Share Posted February 15, 2012 I'm the second child, first girl, and started having symptoms when I was 42, 13 years ago. I have two children, neither of which have this.... Quote Link to comment Share on other sites More sharing options...
AshleyPooh Posted July 15, 2013 Report Share Posted July 15, 2013 Hmm I am the youngest of three children. My oldest sibling, a sister, died not long after birth from heart and organ defects ( a very rare condition)My older brother, who is 29, has ankylosing spondylitis (spinal arthritis) and had WPW ( a heart defect that caused atrial fibrillation until surgery corrected it)I am 26, have thyroid disease, allergies, unexplained digestive problems, and now this.Started having symptoms a few years ago, around the time of the thyroid diagnosis. Got bad enough to go to a doc about it a little over a year ago, when my blood pressure really started messing up. Quote Link to comment Share on other sites More sharing options...
Guest Hanice Posted July 15, 2013 Report Share Posted July 15, 2013 Omg I cant imagine a house full of potsie people. Oh its your turn to get up. You would hear random gasps for air and uncomfortable smiles. That *****! ! :-( Quote Link to comment Share on other sites More sharing options...
WendyB Posted July 18, 2013 Report Share Posted July 18, 2013 I'm not exactly sure when my symptoms started. I know when the severe ones started, that's for sure. I was diagnosed 15 years ago with RSD and after surgery it went into remission. At times I'll have RSD flares. However, now some of the things that I've thought were RSD flares may actually have been the beginning of POTS, I don't really know for sure. Quote Link to comment Share on other sites More sharing options...
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