Nikki Posted November 25, 2009 Report Share Posted November 25, 2009 Does anyone else have this problem? I experience a lot of dizziness (especially lately, I don't know why..) and when it's this bad any quick head movements make me worse..Car rides are difficult..It just seems like I have days where any quick movements really throw me off. Does this make sense? Quote Link to comment Share on other sites More sharing options...
potsgirl Posted November 25, 2009 Report Share Posted November 25, 2009 Yes, I know many of us suffer from exactly (or close) the same thing! Quote Link to comment Share on other sites More sharing options...
MamaTrain Posted November 25, 2009 Report Share Posted November 25, 2009 I have this alot too! When it first started it was horrible! I would be so motion sick from car rides I wouldnt even go! I noticed this increasing greatly around my cycle too. It's so frustrating when you're dizzy all the time! Quote Link to comment Share on other sites More sharing options...
erik Posted November 25, 2009 Report Share Posted November 25, 2009 Though I'm usually not prone to motion sickness, I've had bouts of a persistent swaying, out of balance, dizzyish sort... like a sensitivity gets provoked and lasts for a while every now and then, but goes away again. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 25, 2009 Report Share Posted November 25, 2009 When I was a child my father used to enjoy watching me out on the game fishing boat sitting in the game chair spinning wildly as we went over 1.5 metres waves without getting a hint of sea sickness.From the time ive had POTS i can get it from computer screens, television and even swaying bridges... Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted November 26, 2009 Report Share Posted November 26, 2009 I CAN'T STAND riding in the car. The lurching and turning, especially in stop-and-go driving, make me feel awful. I'm fine if I'm driving. I think then, I know what's coming, so my body isn't surprised by every little movement.Amy Quote Link to comment Share on other sites More sharing options...
Tammy Posted November 26, 2009 Report Share Posted November 26, 2009 Oh this is so true for me! Sometimes I can't tolerate being in a car for more than a few minutes. Sometimes I do fairly well. However, don't take curve quickly or I will be feeling like the world just did a 360! The worst is night time. The headlights of other cars make me feel loopy, dizzy and lightheaded. I know I can't drive, but on occasion have tried to and it doesn't work well at all. Actually the thing I notice on a daily basis is when my family plays on the Wii.... wow, I can't watch them play for long at all before I feel like a migraine starting - dizzy, nausea, etc. Quote Link to comment Share on other sites More sharing options...
ethansmom Posted December 2, 2009 Report Share Posted December 2, 2009 I just returned from a trip to the mountains, and our friends we were visiting decided to take us on a tour of the area- which was gorgeous but it was a huge effort not to throw up! I'm pregnant too so it was much worse than normal. I never felt like this in my life until after POTS.I often notice that I feel dizzy when I am a passenger, but not so much when driving. And when I get out of the car, I am severely dizzy until my brain catches up with the idea that I am not moving any longer!! Quote Link to comment Share on other sites More sharing options...
runningshoe Posted December 3, 2009 Report Share Posted December 3, 2009 The worst for me is moving my head too quickly. How pathetic that my own head turning is like a ride on a merry go round! Quote Link to comment Share on other sites More sharing options...
prettyinpink Posted December 3, 2009 Report Share Posted December 3, 2009 The worst for me is moving my head too quickly. How pathetic that my own head turning is like a ride on a merry go round!This is a big problem for me as well. And "too quickly" is more like moving at a normal speed so i turn my head very slowly when my symptoms are bad. Quote Link to comment Share on other sites More sharing options...
Chaos Posted December 3, 2009 Report Share Posted December 3, 2009 Very interesting that you brought this up! I too find that I'm much more sensitive to movement than I used to be. Some days are definitely worse than others. My son is a drummer and he bounces his leg a lot in the car. Just that movement makes me really feel sick. Also when sitting on bleachers at his basketball games and other people move around on them or jiggle their legs, I find that it makes me feel awful! Being a passenger in a car is quite bad some days too. I also can't stand watching home videos or even a couple minutes of my kids' video games any more. While I'm not glad that so many of us have this same problem still, it's reassuring to me that you do. Quote Link to comment Share on other sites More sharing options...
lissy Posted December 3, 2009 Report Share Posted December 3, 2009 The worst for me is elevators and escalators and if I get off on a higher floor I really feel like the whole building is swaying and I get very sick. When I was pregnant I had alot of car motion sickness and as a child I had to lay down while riding in the back seat. Quote Link to comment Share on other sites More sharing options...
Lenna Posted December 3, 2009 Report Share Posted December 3, 2009 My son experiences all the things you've mentioned. Does anyone have any strategies to combat this? Quote Link to comment Share on other sites More sharing options...
Chaos Posted December 4, 2009 Report Share Posted December 4, 2009 My only strategy so far is to tell my son to quit jiggling his leg all the time. Harder to do that to the people on the bleachers who are moving around. HA!I guess I rely on avoidance as much as possible, as in avoiding the situations that trigger it whenever it's possible and doing a lot of focused breathing when it's not. Seems to help a little bit. Quote Link to comment Share on other sites More sharing options...
MamaTrain Posted December 4, 2009 Report Share Posted December 4, 2009 Chaos, I have to giggle at your replies! I am always asking the boys to stop bouncing their legs in the car! Or asking my husband to stop shaking his foot back and forth on the bed....they all must think I'm crazy some days! LOL!KC Quote Link to comment Share on other sites More sharing options...
ethansmom Posted December 6, 2009 Report Share Posted December 6, 2009 Chaos, I have to giggle at your replies! I am always asking the boys to stop bouncing their legs in the car! Or asking my husband to stop shaking his foot back and forth on the bed....they all must think I'm crazy some days! LOL!KCThat is hilarious! I have to do this ALL the time with my wiggly boys, because any repetitive shaking or movement makes me feel WAY off balance. It's always "stop kicking my seat" or "stop bouncing so much" or "lay still"!!! Quote Link to comment Share on other sites More sharing options...
heathmcev Posted December 7, 2009 Report Share Posted December 7, 2009 I get all of this too! So frustrating... if someone else is driving, I'm sometimes so nauseous by the time we get where we're going, that I end up having to stay in the car in the parking lot and recover. Should have just stayed home! lol.I did find a strategy though! Sea Bands. They're *great*. I put them on right before getting in the car. You have to follow the instructions on the box to get the most effect from them... but they're basically an acupressure tool. A little plastic bump presses on your inner wrist to ease motion sickness. I press on the nubs too for a few minutes to really activate the pressure point. I feel like I should be playing tennis in them, but that's ok - as long as I'm not sick! http://www.drugstore.com/qxp152291_333181_...lt_one_size.htmAlso, I asked my ANS specialist (who's also a migraine specialist) about this whole motion sickness thing and he said it's migraine related. I then said "yeah, but I don't have headaches with it - I just feel like I'm going to be sick". He said that's what happens... it's all just part of the migraines we POTSies get. Anyone else hear anything similar from their drs? Quote Link to comment Share on other sites More sharing options...
juliegee Posted December 7, 2009 Report Share Posted December 7, 2009 This is definitely related to the dysautonomia. When my son first became sick, he would become violently ill from riding in the car. The first time we went to Johns Hopkins from GA it took 3 days to get there, even though we flew. We had to keep getting a hotel for the night so he could recover from the car ride to the airport which was only 1 1/2 hrs. from us. During the entire plane ride, he did biofeedback with a laptop- it helped a bit; but if he broke concentration, he would barf.Out of curiosity, did you just lose a bunch of weight or recover from a rough period? That is when it is the worst for me. After gallbladder surgery, I couldn't eat or comfortably ride in a car for months Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 7, 2009 Report Share Posted December 7, 2009 Does anyone else have this problem? I experience a lot of dizziness (especially lately, I don't know why..) and when it's this bad any quick head movements make me worse..Car rides are difficult..It just seems like I have days where any quick movements really throw me off. Does this make sense?I get yucky feeling when I'm riding in a car. It doesn't seem so bad when I'm the one driving for some reason. But yes, since my pots got worse I did develop motion sensitivity. Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted December 8, 2009 Report Share Posted December 8, 2009 Does anyone else have this problem? I experience a lot of dizziness (especially lately, I don't know why..) and when it's this bad any quick head movements make me worse..Car rides are difficult..It just seems like I have days where any quick movements really throw me off. Does this make sense?I get yucky feeling when I'm riding in a car. It doesn't seem so bad when I'm the one driving for some reason. But yes, since my pots got worse I did develop motion sensitivity. Quote Link to comment Share on other sites More sharing options...
extern14 Posted December 8, 2009 Report Share Posted December 8, 2009 Yes, I think it is very common. I experience it daily. I cannot move my head fast and car rides are very limited. There is also a lot of TV that I cannot watch because of the filming. It makes me too dizzy. It makes perfect sense and I think we can all relate. Quote Link to comment Share on other sites More sharing options...
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