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Everything posted by prettyinpink

  1. The same thing happens to me when i swim KC. I agree with Chaos; because of the water pressure that keeps your blood pressure up and not getting so hot like you would walking you are working much harder then you think so your body takes much longer to recover.
  2. Be prepared to wait hours for your appointment. Bring books or a computer or something. He is TOTALLY worth waiting for but he does take a long time with each patient. Write down all your symptoms and questions before hand to.
  3. and its not the hereditary time that you easily found info about on the internet.
  4. I do not have MCAd but I do have auto immune angioedema. Basically at randoms times and particularly when i'm stressed out my tongue, throat and lips all swell to the point that I go to the ER for anaphalaxis. It took a long time to get this diagnosis. I ended up seeing an immunologist not an allergist and he was able to diagnosis me and figure out some good medicines to take.
  5. oh wow! I was definetly reading that wrong. I thought each amino acid was a single pill and you took two pills of each amino. Lol. That doesn't sound expensive at all. I may look into it. thanks!
  6. I always take benedryl and zyrtec together without a problem other then tiredness. My dr said I can take up to 100mg of benedryl at a time but you should get the ok from a dr before doing the same. Benedryl cream has antihystimine in it too so be careful of taking a dose of benedryl and then adding the cream and getting too much anti-hystamine in your system.
  7. I realized I don't have any idea what your medical history is but I just wanted to make sure you'd been tested for diabetes. Im sure there are lots of reasons for being thirsty but drinking and peeing lots while still being thirsty always makes me want to rule out diabetes. All the salt can actually make you thirsty. Is your urine clear, dark yellow??
  8. I'm curious how much it costs to take 2 of each of those 8 amino acids 6 times a day. Can you buy any combinations or are they all separate?
  9. I did that calculations for you Tearose. Each recipe of this makes 8 cups. Each cup contains 444.5 mg sodium 199 mg Potassium 30 calories and potentially a little vitamin C depending on the brand and amount of koolaid you add.
  10. I think you may want to research this a little more. What i've found said its usually used as a replacement for prescription erection enhancement. If thats true I don't think it'll help you sleep. http://www.herbwisdom.com/herb-avena-sativa.html
  11. This recipe doesn't make any sense to me. The only electrolyte in it is the salt. The baking soda helps prevent your stomach from being upset from the salt. And if your body needs salt why would you put something in the drink (salt subsitute) that tastes salty but didn't give you any electrolytes. 7 tablespoons is a heck of a lot of sugar. I mean if its hard to get in enough calories then adding sugar makes sense but irregardless I dont see what this recipe provides for you. I feel like drinking diluted V8 splash would be much more beneficial as it has sodium, potassium, vitamins, and fructose.
  12. I think maybe if your doctor can help you understand why your heart rate is so high then maybe you can find a somewhat more effective treatment. I know that we dont know the cause of pots but if for example your heart is so high because your blood pressure is really dropping then maybe compression hose, increasing your salt etc would help.
  13. Meds and slowly increasing my activity is what's working for me. I use a wheelchair outside of my house because my walking endurance is so little but wheeling a wheelchair with your arms or feet can really increase your heart rate. I found that walking a few feet to a chair, sitting, then walking to the next room with a chair is what helped me the most in my house. Slowly I was able to walk through 2 rooms to a chair etc. I can't wheel myself in a wheelchair on carpet because my heart rate skyrockets.
  14. I get night sweats almost everynight but I'm not feeling hot like I do during the day. I'm actually cold but drenched in sweat.
  15. Sorry if this is a stupid question but have you lost weight? If your heart rate is high most of the time your body starts burning more muscle to feed it because its faster then trying to burn fat to supply energy for your heart..
  16. Have you looked at all into inappropriate sinus tachycardia? I only wondered because your resting heart rate is on the high side, but it didn't increase more then 30 bpm from sit to stand which is needed to get a pots diagnosis and you have an exagerated heart rate response to simple movements. Just a thought to consider.
  17. I'm a type 1 diabetic and i've been having a terrible time with low blood sugars lately. I think its a result of the new beta blocker. But last night i was 37 had 60 grams of carbs and 30 mins later i was only 42. I think I'm not absorbing food right. Is there a chance that despite having a big meal your son didn't absorb any of the sugar yet?
  18. I have one too. To "qualify" for one all you need a prescription from your doctor. You take the prescription to the DMV(where you get your drivers license) and they give you the temporary place card. I don't know about getting a permanent one. Its actually illegal to drive with the placecard hanging from your rear view mirror. So yes you can just put it up on the days you need it. THat's what I do. I'd much rather park closer and walk a long distance inside a store then walk a long time in a parking lot. It seems safer for me.
  19. I think that while many people on here will say that those are symptoms of pots(and they very well could be) its important not to miss out on other treatable causes of those symptoms so be sure and tell your dr all of them. He knows you and your history better then us so he is more qualified to rule out the causes of symptoms. I mean even if the GI stuff is related to pots there are treatments for some of the pots causes that a PCP or GI dr can prescribe.
  20. Have you been seen by a gastroenterologist? They might help rule out/in delayed stomach emptying, celiac disease(gluten intolerance) or other explanations.
  21. I tried swimming after my dr suggested it too. Being in the water and swimming felt wonderful!!!! But because it felt so good to have all that water pressure on my circulatory system I swam for 25 mins and was half dead after I got out of the pool. I think I about slept for 3 days straight. So like you I looked into a recumbent bike. I could only do about 15 strokes of the pedals but I bought it and worked up to 20 mins over a few months. An exercise feign sounds like a high goal. Join the yahoo group and start with a small goal.
  22. If you like the dr you see for POTS maybe he can recommend a good pediatric POTS specialist. Perhaps he could even call a dr for you to get your son seen sooner.
  23. I love the polar brand! they have warranties and are well known for being accurate. That being said most of the polar brand watches have fancy functions like calorie burning, personalized workouts, fitness tests etc that you may not care enough about to pay for. You can go to the polar site and it'll show all the functions on the watches in a chart so you can see if theres one you want. Then you can find it cheaper on the internet. Mine was $99 with lots of functions and a chest strap. I dont mind the chest strap at all. Typically chest straps are more accurate then the watch that tries to read through your wrist. And the polar watches send the hr info to a lot of exercise equipment that has the hr receiver function.
  24. Lina-I have that problem too! Freezing almost all day long but I hate wearing socks because my feet will just sweat but, at night they get sooooooo hot. I'm so glad this topic was brought up. I have blood pooling too but, lately my toes goes numb and turn stark white. I rub them, move them and put them under warm water for a while and eventually I get circulation back. I can't figure out how I can have venous and arterial insufficiency. Where the heck is all my blood being kept? lol
  25. Like someone else said-the test isn't to make you faint its to see if standing induces symptoms. As soon as my pressure started dropping fast they flipped me down. However, I had one of the worse migraines I've ever experienced afterwards and had to lay down in the dark all day so I wouldn't plan any activities after your test just in case it makes you sick or gives you a migraine. I did feel VERY safe during the test. Usually you are very securely strapped to the tilt table and someone is watching you and your vitals the entire time.
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