danelle Posted October 19, 2004 Report Share Posted October 19, 2004 For those of you who know my story sorry to repeat myself. For those of you who don't, this is it in a nutshell. I have had POTS for 19 yrs now but just correctly diagnosed right at a year ago. I have had many problems with POTS over the yrs but have always bounced back(to some degree). Over the past year I have had a steady decline in my health. I very rarely have a tolerable day(maybe one every 2 months or so). I can't help but wonder how much worse this thing gets. I know it can get worse but my goodness. I am literally able to do much of nothing. This is even hard for me to do(write this) that's why I haven't posted much in a while.I don't like to be a complainer but I'll tell ya, this thing is getting to me. I had to quit my job in June. I applied for disability and am still waiting for my first response from them.My main concern, other than my family and finances, is my health. I just keep declining. Nothing seems to be working. I am doing the hose, fluids, salt, resting, meds I can tolerate, etc. I am just getting scared. I don't know when I am going to get somewhat better or atleast get to a "stable" level and quit declining.How far can this thing take you down? I'm beginning to feel like it may be like MS or something where you do continue to decline. This has been going on for atleast a year. I'm just really scared. Any advice or info on whether this thing can continue on a downhill slide would be appreciated. I have missed talking with you guys more than I realized. I can't wait for the bracelets to come out.Thanks and love to all Quote Link to comment Share on other sites More sharing options...
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