katie_b

First of all, Good luck with your testing. I hope they find something wrong and are able to fix it. When I had my first tilt table test, I was up for an hour. I'm not sure if that's considered prolonged or not, but it was longer than most of them. I didn't pass out, but my body showed signs of POTS. When I had my second one, I was up for about 40 minutes, and I didn't pass out. My docs said they couldn't find anything from either tilt table, so I was sent back home with no answer. It wasn't until 2 years later when I saw Dr.Grubb that he told me both of my tests showed I had POTS and NCS. But when I was there he did a mini-tilt, and I had no BP when I stood. That time I failed the test, so he concluded that my autonomic system only fails some of the time.

I also have problems with my ribs. First of all, my ribs are always popping out of place. It's called Slipping Rib Syndrome. And Second, I have what they call a pseudo-rib. My top rib extends too far and it pinches the nerves that go into my arm. My arm is almost always numb because of this, but the only way to fix it is surgery.

Welcome Jess!! I'm also new here!! I've had POTS for 3 years, but only diagnosed for a year!! I'm 17, so we're close in age!!

Good luck Rita, and congratulations!!!! That's awesome that you're getting an award! And good job on the weight loss!! It's so hard to stick with a healthy diet and exercise, so congrats to you!!!!

Pilates is good for POTS because it tones the muscles in your legs and abs, which keeps the blood from pooling there. I don't have fibro, so i can't help with that part of your queation!

I have some of those symptoms, but not when I have a rush of adrenaline. When I get a rush, I have to such energy...it's amazing!!! But that only last a few minutes and I'm back to my tired, old self.

I'm sorry to hear you weren't doing so good, but I'm so happy to hear you're better now!!! Aww, I'm so happy for you about your baby!!! I'm glad to hear (s)he's doing well! I can't wait until you know what it's going to be!!

I've beenon Flourinef for about a year and a half. That's the only med that makes me feel okay. My doctor told me that some people get headaches when they're on Flourinef because it makes their blood pressure too high. I'm not sure if that's the case with you, but if you try taking it again, maybe you should see how high your BP is after you take it.

Thanks for the schedule Melissa. I heard a lot about the show, but I really want to see it for myself!

I've never been to an endocrinologist, but I've heard of a lot of poeple going to them. Good luck if you decide to go!!

Morgan, I'm so happy for you!! Dealing with dysautonomia is so much easier when you have a good doctor at your side!!! I'm glad (s)he is able to help you!!

I'm so sorry you're having a rough time Stacey!!! 10 years is a long time and I understand that it's frustrating. I can't do anything to make you better, but I want you to knw I'm thinking of you!!!!

Good luck Lisa, although you're probably done with the test. I've heard of that being done before, but I've never had it done myself. I'll be thinking of you!

I'm sorry to hear you're having problems Stacey!! I'm new to this forum, but I have had dysautnomia for 3 years (I'veonly known what it was for 1 year). This year I improved tremendously. But just last week I started to get very sick and passed out three times last week. Today I took licorice root and my heart rate dropped about 30 pts. Have you ever treid licorice root before? It's a natural herb, so maybe you won't be sensative to it. Good luch with everything!