gertie

Anyone know any natural remedy for sinus congestion & swollen glands. Decongestants are out of the question. I've had this for a month & it's effecting my inner ear problems. It's hard to believe a sinus problem could make one feel so bad.

I am also called "the woman allergic to everything" in my town. I called pgx lab that does genetic testing & they are very nice. They told me that the problem I have with antibiotics & hormones are probably a true allergy & the testing wouldn't serve any purpose for that. I've tried just about every drug over the last 20 years & had allergy testing for a lot of meds. I realize if I had the testing done whatever the results I still couldn't take the meds.

I have had this problem for almost 25 years. Menopause & Dysautonomia also started about that time. When I first became ill I couldn't sweat. I would get very hot but no sweat. Then I would be so cold, even in the summer, I would wear a coat. I was put on Neurontin & that seemed to relax my ANS & I was able to sweat & that felt better than no sweat. I am on no meds now & I sweat night & day. Sometimes I feel so hot I could blaze & other times I just sweat. I hope you find something that helps but it wouldn't be healthy not to sweat at all.

I have been in the medication nightmare for several years. I've become allergic to all antibiotics even in tiny doses. I've gotten by for about 30 years without an antibiotic but I've had some scares. There is a total of 3 med's I can take in small doses (as needed) but I know that can change at any time. I have the same problem with supplements.

Thanks. We used to attend church but since all my problems we don't go anymore. It seems everyone has more problems of their own than they can handle. I will make a few calls.

My DH & I are in our late 60's. So far the only thing he has had to do for me is take me to dr's appt's, other than that I've managed myself. Now it is my time to take him to dr & I don't think it would be safe for me to drive the distance he needs to go. Between Meniere's & Dys, my vertigo, eyes jumping, heart flopping etc I think the stress would kill me. How do you handle these type situations. We have no family. Thanks.

I've been thru that so many times. I've thought my heart was literally bursting & jumping out of my chest & the dr says, "everything's just fine". I usually take Ativan when I get like this but the dr suggested I take Neurontin.

Thanks everybody. The only time I take Ativan is when I have the shakes or seizure. I admit it is tempting to want to take it everyday but I know it would take more & more to help.

I won't give relationship advice but I would ask you to think about how much harder things would be for you if you had children, or maybe you do. I don't remember reading that you did. My DH had to be sole support for several years when I became disabled. He never complained. He's one of those men that doesn't care if the house is dirty or not which was good. I couldn't get disability but somehow I managed to keep things going at home. My cleaning advice is, get rid of the chemicals & scented cleaning products you are using in your home. The chemicals make a lot of people sicker they did me. Use unscented laundry detergent, baking soda, Bon ami, vinegar, peroxide etc. You can find a long list on the internet. When I first got sick I had to clean my floors sitting in the floor, I have laid in the floor & cleaned. I cleaned the bathtub or shower while I was in the tub or shower. I admit getting clothes out of the washer to the dryer was a challenge. I prepared our meals sitting down. Cooking was my biggest challenge because the smell of a lot of food would cause me to pass out. I wore a mask & cooked some of the food in a crockpot in the garage or outside. A lot of people take care of a house in a wheelchair. Just do things as you can & if anyone doesn't like the way you handle things let them do it. Be good to yourself.

I don't have them as often as I used to but when Ido they seem to last all day. I have felt like my arms & legs have been shaking all day but when I hold out my hands to show my DH they are not actually trembling it just feels like it. I have had the feeling in my head also, usually at night. I feel sure it is ANS related but that doesn't really make me feel any better. If the trembling is still going on at bedtime I usually take an Ativan (generic). Wish I could be more help.

Excuse me if I've asked this before. Do you ever get used to this c@$%? I've had this at least 25 or more years & I still get so angry at myself. I will go for a few days with no heart palps or shaking, or feeling like I'm going to pass out, etc (or none that will debilitate me) & then here comes the days when every symptoms known to dysaut. seem to hit me at once. I have become so paranoid or pessimistic I can't stand myself. I've always considered myself a strong person but lately I am so overwhelmed at all these symptoms we have. I feel like my heart will leap from my chest & the only med I have that might help is Ativan. I save it until I can't take the anxiety any longer because I don't want to get addicted. Also, I have a dr's appointment next week with my PCP. He has heard of dys/POTS but that's about all he knows about it. Poor dr has tried so many supplements on me & I haven't been able to even take the vit's he's suggested. Are you taking any med that helps you that I might discuss with the dr? Thanks.

My brain has not been working very well today & it took me awhile to realize what I'd done.

Thanks for replying. I had clicked a button that changed it. I've finally woke up, I think.

Has something about the forum replies changed or am I having delusions?

Thanks everyone. Sometimes before I go to bed at night I plan all the things I'm going to do the next day & when a.m. gets here I realize it's another day in which I'll accomplish nothing. My DH can't understand why I can't plan things ahead. Life seems to be a constant struggle for us.

I have vasovagal syncope. If I have colon cramps before or during a bowel movement I pass out. My heart flops, sweating, nauseous, blood pressure falls & it takes me a few hours to recover. I live in fear of a stomach cramp especially if I'm away from home. I'm not a dr but it seems reasonable to me that the vagus nerve could cause your symptoms. Are you taking any med's for your symptoms? When I feel the sick cramps start I take a low dose Levsin S/L but only if I have too because of their side effects.

I've had Dys many years & there are so few days when I feel well. If I have a day when I have a little energy & think I might accomplish something in the house it seems a migraine or vertigo will strike. Sometimes I think maybe I'm lazy but when I look back to when I was "normal" I was a very energetic person. Do you every feel well? thanks.

I love both of them but I'm always sick after eating them. I don't know if it is related to Dys or if I just have a slight allergy to them. I always have a migraine or stuffy nose or a Meniere's attack.

morgan, I know what you're talking about. I thought migraines were the worst thing that could happen to someone until Meniere's struck. When it first started I had to lie flat on my back with my eyes shut sometimes for 8 hours. This last episode was like you described I couldn't move my eyes or my body. In my opinion meniere's is much worse than dys/pots & I've had some bad experiences with dysa/pots I also know about BPPV. Thanks for reply.

ENT diagnosed me several years ago & the salt is a problem. & also not being able to take the med's I need is awful. It sounds like you could have Meniere's. Do you have any tinnitus or ringing in your ears? thanks for your reply.

Do you find that when you have a Meniere's attack that the Dys/POTS makes it worse than usual, if that's possible? Immediately before the last Meniere's attack I felt like I was passing out or falling then during the attack I felt my eyes were pulling or drawing. If I shut my eyes I would get nauseous which is opposite to what I usually experience. Before when I would have an attack I would have to keep my eyes shut. When I tried leaning my head back I couldn't focus my eyes at all. It felt like I was about to have nystagmus. I had to lay down yet I felt no better laying down. It was a stressful day. I'm wondering why this episode was so different from all the others. I have been taking thyroid meds for the last month & can't help but think that may have something to do with the eye problem. It's been 3 days now & I'm still so weak I can't get up. "Attack" is the right word. I feel like I've been attacked by something vicious. Thanks.

I'm sorry you're not doing well. I think it's been 3 weeks since I did any errands. I was getting dressed Sun to go out for awhile when a Meniere's attack hit & I had to stay in bed all day. I couldn't stand up, couldn't focus my eyes, nausea. After 3 days I still don't have the energy to walk. I was thankful I wasn't on the road when this hit. Everytime I think things are getting better they seem to get worse. I've found out there are things worse than Dys/POTS but when they all hit at once it seems impossible to get through it but we will. How long have you been this way? Have you had blood test done lately to rule out other problems? Maybe you should see the doc & be sure you're doing all you can to get better. Let us know how you're doing.

If I wanted to stop diarrhea I would eat fiber or drink something like Metamucil or Benefiber and it's all natural. I know it sounds strange but it works.

I wish I could help but the only thing I can think of is maybe go in a wheel chair to conserve what strength you have. If there are any med's you take for anxiety take prior to going. If you don't think you can get through it have your dr write a letter stating why you can't appear in court & let the attorneys handle it from there. Best of luck.

Thanks for understanding. I feel some better today altho the situation hasn't changed much. I try to remember to count my blessings which are many.