gertie
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Everything posted by gertie
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Thanks for your support. My PCP is out of town & our ER is a joke. The ER is full of people with non emergencies. That's why I have a hard time making a decision to go to a dr, there's not one that understands my problems. My throat is getting some better & I am drinking more liquids & will have to force myself to eat b/4 this happens again.
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I didn't have a temp until day 6 or 7. I haven't taken but one small dose of my med because it made me so sick. I haven't been able to drink cold water it hurts too much I have to warm it. I got up this a.m. passing out so I don't know what I'm going to do. Thanks.
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I am sorry I've been complaining a lot lately about bitter taste in mouth & nausea, strep throat, sinus inf etc. I've had a temp for a couple days & still haven't eaten much the last 7 days & with hypoglycemia that can be dangerous. I got up this a.m. & tried to fix me some toast & coffee & blacked out the 3rd time. First 2 times I made it to the table but last time I woke up on the floor now I have a headache. I must have sweated a lot because my table had wet spots on it & the kitchen looked like a war zone. I had turned the syrup over & it run all over the cabinet, my french toast was burned to a crisp & I'm about to pass out again. I guess this is gross but I knew I had to have food so I run my finger thru the syrup on the cabinet as I started going down again. I happened to see a slice of pear left from last night & grabbed it. This was like a horror movie as I was going thru it. I don't know how much of that was dysautonomia added to a temp. I couldn't call 911 because I couldn't get to the phone & if I had they couldn't have gotten in the house. The worst part is I finally found what might be causing the bitter taste. Someone told me that is asymptom of a stroke. So here I sit no neurologist, don't feel like driving & if I did wouldn't know where to go & everyone out of town at work. Do you all have MRI's after you pass out & hit your head? This just gets better & better. Thanks again.
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Thanks KC. I thought I would be better by now but now I've got ear ache, headache & sinus inf & strep. Tomorrow is day 7 & my temp is over 100, I'm slightly nauseous. I can only take 1 Tylenol at a time & that's not enough to keep temp or pain down but it's enough to give me palp's & the shakes . I thought my heart was going to stop a few min ago. I'm trying to eat a few bites of food to keep my blood glucose up. I still can't drink anything cold because of the throat pain & warm water is just vile. This is about more than I can deal with. How're you doing? What do you take for your temp & pain? Thanks.
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Thanks all! I can't tell which is worse antibiotic or strep. KC, when you started taking strep did all your food have a bitter vile taste? Today is day 6 & I'm just beginning to be able to tolerate food at all. Excuse me if I've asked that, my brain is not working.
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Has anyone here had weird reactions to this antibiotic? I took part of a pill about 1.5 hrs ago & I still feel weird. When I first took it when I shut my eyes I had strange thoughts & my vision wouldn't focus. I can't imagine what would have happened if I took the full dose of 2 pills. My DH says it not possible that the little amount I took could cause anything. If he only knew how my body works or doesn't work. I had a strep test which was negative but the dr said it looked like strep. Can a strep test be wrong? thanks.
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Thanks for your help. potsgirl, I don't know what happened to me & antibiotics. I was always able to take them if needed. Then, one day I had a severe reaction to penicillin I think. From that time on every type I've taken I've had either throat swelling & break out in hives, or seizures. I start with 1/4 dose & even that small amt will cause reaction.
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I have a dr's app't tomorrow concerning my sore throat such as I've never had before. I'm already stressing about what am I going to do if it's strep, if it's shingles because i can't take antibiotics & how do you treat shingles inside your throat. I make myself sicker. I just want to be normal for a little while & not have to worry about small stuff. Thanks for your support.
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Constant Silent Migraine For 9 Months Now
gertie replied to dino551's topic in Dysautonomia Discussion
Do you have Meniere's disease? I have Meniere's, migraines & dys & have those symptoms all the time. It is impossible to function normally. The migraine preventive does not help these symptoms for me as well as Ativan. I hope you find something that helps. -
Thanks for your replies. I hope shingles can't get in your throat & mouth, Would shingles make everything taste bitter? The only thing I've managed to eat is 1/2 raw carrot. All the dr's are off for the holiday weekend. Hopefully I will be better by Mon. Hope you have a good weekend.
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After 25 years of weird stuff this is one of the scariest. I was having a small bowl of homemade organic veg soup & decided to add a few saltine crackers, which I don't normally eat. The soup was good, I tried it w/o crackers. The first bite with the crackers was excruciatingly sp? salty. I thought I would adjust to it but after 3 or 4 more bites I couldn't eat anymore. After that every bite of food I try to eat taste so salty & horrible I almost throw up. I tried a slice of bread, bite of apple, peppermint candy, baked potato, milk. Everything taste so horrible I would throw up if I tried to eat it. My throat & tongue are sore & raw on one side. My DH tasted the crackers & said they taste ok to him. What is going on with me. I'm on no medication. The only thing I've done different is use Estriol bio-idential hormones (pea size) & only used it twice & didn't use it yesterday. Could that small amount of something change my body this much? Anyone else experienced anything like this? If I don't get where I can eat what will I do. I don't know a dr that would know what to do with me. Thanks.
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I am so bad with anything computer related. I have Win XP & upgraded to IE8. I decided to be brave & update adobe reader to 9.2. I uninstalled my previous adobe as instructed. Now I can't get adobe 9.2 to install or any other adobe. I keep getting an error message. Now I have no Adobe. Everything I read says to change browsers but I like what I have. I've tried Firefox & Google & I didn't care for them. What browser do you use? Any suggestions what I might do to fix my problem. Also, has anyone used Foxit instead of Adobe? I'm a little afraid to change to something I've never heard of. Sorry so many questions but I'm in a big mess. Thanks.
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Do you have food allergies? I have Meniere's but I also get what you described from food allergies.
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Sue, I'm sorry for your sadness. I think I understand how you feel. I've lost my mom & dad, bro & have very few relatives left, which I don't see unless another relative dies. I don't have friends left because I can't get out & socialize or go to church anymore. I can't work so there's no extra money for gift giving. This time of year is the worst for me. I don't feel like cooking big meals anymore & that makes me feel even more guilty. It seems everything I say these days begins with "I used to". I don't seem to be making any new memories. I hope you will be feeling better soon.
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Feeling Utterly Cak On Fludrocortisol
gertie replied to Tonibunny's topic in Dysautonomia Discussion
When I came off Gabapentin I got 100Mg caps to taper off with. -
I have the too much saliva problem but notice it mostly when riding. I've often wonder what causes it when I'm in a car. Does the motor stimulate the brain? Is it outdoor allergies? Is it because I'm stressed when riding because I have inner problems & riding makes me feel bad? Another problem I don't have an answer for.
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Surgery To Remove Gall Bladder Tomorrow - Finally!
gertie replied to daisy's topic in Dysautonomia Discussion
Daisy, Hope you're feeling better. My DH has a friend that had his GB removed & said he stopped on the way home from surgery & ate a hot dog. Another guy told me had a HB with onions on the way home. I don't know if I believe that or not but swear it's true. I can't eat that junk now. Did your dr tell you to take bile salts now that you don't have a GB? -
Don't want to offend anyone & I used to smoke, but there's nothing more obnoxious or sickening than a house where someone smokes. I can't tolerate anyone that smokes coming into my home. I can smell them before they get in the door. My DH bought a car once, preowned by a smoker, I could never ride in it. No matter what it was cleaned with the odor remained.
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Thanks to all. I've been telling myself that if I could start with a tiny dose of estrogen I might be able to gradually take enough of it to help my bladder issues. Logical thinking doesn't seem to apply to dys.
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Do all of you have problems with allergies causing heart palps, fainting? I know brain fog is a symptom a lot of us have in common. I've noticed over the years when I eat 7 or 8 almonds I almost immediately get palps & feel drugged. Sometimes it takes 48 hrs to get back to normal. Another thing I find really weird is, if I use a small pea size amt of bio-identical estrogen for as little as 2 or3 days I get very sleepy & end up with most horrible migraine & sometime seizure. My PCP says it's impossible for my body to absorb enough estrogen from that small amt to cause any reaction. I would agree with him if I wasn't having the reaction. That just a couple of many allergic reactions I have. Do any of you have these weird allergies? Thanks.
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Episode Of House Really Hit Home
gertie replied to erikainorlando's topic in Dysautonomia Discussion
I was told for years it was "all in my mind" & things have not changed a lot for me. -
I get that reaction from many different things. The things that causes the worse fog or lethargy for me are vit D3, estrogens, lidocaine, COQ10, perfume & the list goes on. The BioIdentical estrogen in very low dose supposed to be good for the brain function but when I tried to use it I couldn't remember anything. I felt like I had water on the brain. I thought it was because the blood vessels were dilated. I have migraines & it doesn't take much to trigger one. My allergist said this is a common reaction for those who have allergies. I have watched people pass out & stay out for a long time from just having a simple allergy test done. Do you get this reaction from anything else?
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I'm sorry to hear your diagnosis. I understand it's bad. I hope the med's work. Isn't Crohn's what Jordan Rubin, Garden of Life has?
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Is it serotonin deficiency syndrome or tryptophan (sp?)