tinkerbella

OH, I went back weekly....He wasn't a dentist, He specialized in this. He had pics of well know people on the walls who came to him. I think it was my mouth. LOL

Well said, Issie ~We've got personality ~ ~ and who could ask for more? I <3 it here!

I take 60, 3 times a day ~ when I started it the drug store gave me 3 times the amount which was 90mg, times 3 times a day and I was a admitted for a near bowel obstruction ~ My tummy stills pays a price, but I used to have an elephant on my chest all the time. Since the Mito dx things are starting to make some sense now..

My mouthpiece from the tmj dentis,t I was told to use bit by bit at first. My mouth would get sore, as it was slowly being pulled into the right position. I also gagged a lot and thought I would throw up. I was glad when all of that passed. I was very disappointed in my expensive mouthpiece. There was weekly adjustments, with charges that were crazy. It finally broke, and the next one was so thin that it wore out it places where I must have been grinding, because I was so mad. It even had gold in it. My friends all laughed when they saw it. They said why didn't you just have a nice bracelet made? lol If you ever have a tooth pulled, (I did in the back of my mouth) all your teeth move. Making the whole mouth piece no longer fits correctly. ;( Please feel better soon ~ Bellamia

I believe it is those of us that are so sensitive and are exercise intolerant even to the smallest movements, where once we may have ran races, taught aerobics, rode bikes and many more physically activities. So, why not now? I often think did I over work my heart for all those years teaching power workout? People see me with my IV on and they think I'm on oxygen. When do they think I'm getting it, it's not up my nose. lol I'm sorry you're having such a hard time also. I'm in the same boat. I find if I drink the power drinks slower, not drink them so cold, and skip the cold ice. My mom used to do the same and I never understood why, till POTS hard.

http://www.youtube.com/watch?v=bTM8RNzV6k4&feature=related part 2 found on youtube

I FOUND THIS on you tube today ~ http://www.youtube.com/watch?v=Fx688XLvA8k part 1 CHANGES part 2 is there also ... This will make many of our lives so much easier ! Mast Cell has a wonderful video on here also.

I always go to youtube for videos on the latest products and massage for tmj~ I'm more a visual learner.Check it out

I'm taking a new look @ this post now that mitochondrial disorder is in my life now. I now believe the headaches that take over one side of my face that are stroke like are from that. I always called them a variant of a migraine, but the visual stuff is driving me nuts ~

Rest up sweet one, cause we have lots of laughing to do once your TMJ calms down and it will. REMEMBER, I waved my magic wand and you think it's the marinol....Oh what fun we would have if we lived near each other ~ Check on you later ~ Bellamia ~.

lol ~ I know just what you mean ~ It used to be on the home page of Dinet ~ doctor had to make a visit to my VNA AND educate them about me. I was very blessed and grateful. He is very special and one of the only ones in the area who know about POTS. He sends me into the city for fine tuning and for the mito disorder, as I'm in the burbs. Maybe I'll ask him to do a youtube series. Bellamia ~

I'm looking for others people who would like to meet once a month in the METRO WEST BOSTON, MA Area who have Dysautonomia and Mito. I know of 4 interested people, but would need more to get a room. I'm working on a location to have the group now. I hope there are some people here who may like to come and I will leave a notice @ my cardio/Pots doctor this week. Once I have more people I will announce more details. I can't explain the wonderful feeling of connecting face to face with another friend who is dealing with the same illness. I ran support groups for years for a well known organization for parents and children. This would be our group, just let me know if you are interested. I will get the final details to THOSE INTERESTED once all is ready. I look forward to meeting and making new friends in MA. Remember, there is a reason we are all together ~ Love, Bellamia ~

I always show new docs the DVD, "CHANGES" that came from here ~ I wish it was on youtube now. It would be great when I go to a new hospital, new doc and don't have it on me ~ SOMETIMES I don't get it back right away ~ Do we still sell them? Could it be uploaded to youtube? Bellamia ~

WISH I COULD HUG YOU Tennille (((((((((GENTLE HUGS))))))))))) ~ Keep us updated and meanwhile, I'll wave my magic wand and poof ~ You should feel all better in a few mins~ Love, Bellamia ~

Count your blessing if u have dental insurance. Muscle relaxers are a must @ bedtime.

HERE are some links http://www.ehow.com/...-tmj-botox.html HOPE you find some relief ~ It maybe what gives me hissing sound in my ears and other times a heartbeat sound. Bellamia ~

SORRY, my friend. Have you had a mouth guard made? If you can't afford one you can buy a sport's mouth guard youth size, is what I use and follow the directions on the package. They are 99 cents @ Walmart. My real one was about 4,000 dollars over 15 years ago and wore out.Dentist said it was better than nothing. I also used to go for massage therapy and she would pull on my jaw. She would pull it back, asshe stood behind me. Google ways to do it to yourself, my sister showed me how to do it to myself. HANG IN THERE ~ I'll see if I can find you a good link ~ love, bellamia~

This is the one time I feel sad, due to the lack of touch. The lack of a hug from a man of my own in my life as there is none anymore. I'm divorced now but I was left in an ER when they thought I had a blood clot in my lung. Long story.....he went off to drink and fell asleep and I woke up and finally found him and said get lost you loser.Sometimes I wish I could go on a dating site, but what would I say, Loves long walks on the beach. Must be willing to push me in my wheelchair? Don't be scared when you hear heavy breathing when I answer the phone, no I wasn't just having sex., My sexy raspy voice means I'm dehydrated and no I didn't work on a sex phone line,Must have good sense of humor, Have good knowledge in medical equipment, Must be able to carry my extra heavy back up back pack if you're still interested...lol~ I hear all the free site are scary, and the good sites send fake emails to you. I pray that God will aim the right man in my direction and I don't faint and miss him. lol~ Maybe one day I will comeback and have something great to add ~

Maybe we should sniff pepper everyday for a good old sneeze or two ~ Salt and pepper, shake, shake, shake. Salt and pepper sneeze reset! Sounds good to me!!!!!

Hillbillygirl, with all of us it's the LOVE BOAT ~ How are you my gigglie girlfriend? ~ We must have a laugh fest later on here everyone ~ giggles and love, Bellamia ;{)

Thank you Corina ~ We all need a potsie party !!!! : ) Oh what a party it would be ~

Well, If you can come to MA and see Dr. Maria Castells, she can sort out if you have any of the nasty buggers. Several people here have come from all over to see here. I go back next month. She is simply the best ~ in my book. My book is good ~

When you just put new batteries in you BP machine and it still can't can't give you a reading.~ When you have a chair in you shower and your still a kid @ heart ~ When you thought they named it POTS because you are on the pot all the time ~ When you can't pronounce anything right without a long explanation of what is wrong with you ~ When you find the cereal in the freezer ~ When you can't drive your motorized wheelchair in a straight line ~ When all the EMT's know who you are ~ When your fridge has more IV's than food in it ~ When your bedroom looks like the er ~

I had that once and they sent they didn't tell me they were sending an ambulance. I wasn't home when they sent it. Make sure you let them know your location @ all times. Best of Luck. I will say a prayer for you sweet one .

THIS is a time in your life when you find out who your real friends are ~ I pray that you will be better and be able to join your friends again. Maybe it's a time to try to draw, paint, or learn something new. There is so much to learn online for free. Each day is a gift, open it with excitement and see what you can do even if it's only from your bed. One potsie friend and I send positive affirmations to each other and it's so uplifting. I collect quotes and like to post them around the house or write them on the bathroom mirror. Puppy love you are so nice !