tinkerbella

That's Great ~ I bet we could come up with a ton of great POTS statements, like the valentine hearts that come in a box. lol ~ Here is a company where you can order a few or a lot and if you order a lot you can get 100 free ; ) http://24hourwristbands.com/?mysrc=google&gclid=CMH4pLXf8a8CFYeo4AodehfvXA I was wanting to order a bunch for my support group, then I got the mail. Not a good day @ the mailbox ~ So, then I thought why not a start major POTS bracelet awareness. We could all order what we wanted in small amounts, or in whatever amount you can afford, the color you want and get YOUR PERSONAL POTS STATEMENT OUT ~ Maybe we would make a big enough impression that they would add us to a regular list of awareness bracelets. We could each send our docs one for starters. We could list our colors and statements here. Think of it...the company starts seeing all these orders coming in for POTS bracelets. The awareness starts Whoo Hoo !!! I'll keep looking for other bracelets, but what do you think fellow potsies? BellaMia ~

You are so sweet.... thanks..... I do understand what you mean though. Mine hurts too, but some weeks mine is hard to access ~ Lets think no pain ever

Hey, it's worth a try s-pot ~Hope it helps you.

The last time I had such stabbing head pains I ended up in the hospital with a strain of the flu. It took so long for them to figure out what was wrong with me that it was too late to give me the tamiflu. Nothing helped with the pain, not even the morphine ~ I had a strain that was not in the vaccine for the year ~ It was so bad ~

Wish I had an answer for you...but I can pray again now Mully ~ I struggled when I had to finally had to have a portacath after 4 1/2 years that runs 24/7 ~ Hang in there ~ BellaMia ~ x's

If there is so much of an connection, why is it that our brain MRI's are so different? Just asking, as one of my friends has MS and we are so much alike neuro wise in many ways. In others not at all, and compare the MRI's and she has problems come back and I have none. Although, I can't have contrast, if that means anything that they can't see. Kim, if you buy it can you post it? Wish they had a journal sites made simple for the rest of the world / people who want to understand. I'm with you Naomi, and I think I understand a lot, then I read some thing like that and I don't get it either ~ Okay, any translators here? Thanks ~ Bellamia ~

Kim we can cheat and plant in pots, cause we are potsies ~ lol I Saw the moon and the craters looked more detailed till the clouds passed over too ~ I love planters and pots now outside with plants that will me back up year after year. I do have some packs of impatient Lucy's that I always plant that remind me of my mom~ She's been gone two years now this month... Sure miss her. I'm buying a round of hugs for everyone today ~ ((((((HUGS))))))) Have a good night ~ bellamia ~

They are so beautiful ~ I just love flowers ~ Wish I could garden like I used too or had someone to help me as I crawl around in the dirt ~ I sure look pretty silly ~ LOL ~ Just me and the dog ~ Woof!!!!! I used to have beautiful flowers and now I have beautiful overgrown weeds ~

I WILL SAY a prayer right now that the right decision will come to all of you ~ Like Mully's hand says, have H O P E everyone. (((((HUGS))))) love, Bellamia ~

Yeah, that would be cool ~ Bracelets!!!!

I'm so sorry so your pain and worry. I HAVE THE BARD POWER PORT and it hurts me too. It didn't hurt at all at first. Then, Each week became so painful. I figured out the placement was in a fibro trigger point. Everyone agreed. The dr orded emla cream (lidocaine cream), to put on 30 mins with a clear dressing over it before the new needle is inserted. IT HAS CUT WAY DOWN ON THE PAIN of when the needle goes in and after. For me it's like one nerve sets off the next nerve and now I'm tense, because I'm expecting pain and maybe 3 needle tries. SO, I do tense my shoulders and get pain. Do you wear a back pack at all that may sit on the port? For many weeks my port hurt to even touch it till we figured all of this out. Mine has also gotten clogged twice since being inserted. First time was 6 weeks old. Last time was just recently. I also found it depends on how much experience the iv nurse has. The bard port has to be gently held in place so the needle doesn't hit the wall of the port. That will make it flush, but still be painful. Are they getting a blood return? I feel your pain ~ hang in there. When in pain, I agree talk to the doc and the iv team.

My doc always called ahead before I was put on IV @ HOME that I change the bag every 24 hours. At the er they can tell when you are dehydrated. WE CAN'T FOOL AROUND, when you can't get fluids in you have to go get fluids. Good Luck and feel better ~

It took 4 sleep studies before I got my machine. I had so much acting out in my sleep before and honestly when I got to this study I was so exhausted that I fell asleep before they got me ready to go to sleep. I have the frightening experience of sleep paralysis day and night at home.If you are in the hospital they told me they have a hospital one that they use on people. GROSS ~ So I think I would go without while I was there. I wouldn't want to bring mine in there and risk getting any bad germs.

I have all of the above as well. I have neuropathy hands/ feet/ arms/ legs, sometimes my tongue and taste buds tingle and burn also Be careful when your feet tingle, as I have broken my foot and sprained my ankles too many times to count over the years. I'm tingling as I type. I get migraines, variants of migraines, and tremors that someone who doesn't know me like an er doc will assume I having an anxiety attack. I also get stroke like events on the left side of my face that they think are a migraine. I would swear I was having a stroke that have now progressed to having a fine tremor run down my face when they come on. I have low thyroid that will make your hair fall out along with stress. Try to shorten your hair my rhummy suggested. I had really long hair, use shampoos without the strong chemicals that are bad for you. Look them up online, if your head itches after you shampoo you are most likely allergic like myself. they are not good for you anyway. I was told to wash my hair once a week and not to brush it hard. It got better, but when I don't take my thyroid pill correctly due to I can't wait as I need food in my tummy I notice I'm losing more hair when I brush. Luckily I have thick hair. I also have terrible bone pain in my legs that is worse at night. My sleep doc asked me about this and told me it could be from my low iron. BellaMia ~

Love you dog and the sweater ~ Whoo Hoo you can do it now, Yeah ~ I'm proud of you ~

Thank you, thank you , thank you ~

OH yes, count me in too ~

It might be a push forward of Dinet FM ~ I can't find another app for here, as my email changes the page to safari format I believe to make it easier to use on your phone. I always look in the i tunes store to see what is really an app.

How A D O R A B L E ~ I LOVE kids. I'm one who never grew up ~ lol How are all my friends today? x's bellamia ~

YOUR PICS really brighten up the site ; ) T H A N K S for sharing ~ Bellamia~

So sad when our furry friends get ill.(((( H E A L I N G E N E R G Y)))) to your dog ~ MY boy has seizures...We are both neuro buddies. I wold love to have the $$$$ to look inside his brain ~ Sometimes I wonder what is really going on in there. I hold him when him seizes and I P R A Y ~ I hate to see anyone suffer ~ Good Luck with your sweet dog ~ Schnauzers are so adorable! Bellamia~

LOVE your pics~ WHAT kind of a camera do you use? Photography was a big love of mine ~ Bellamia ~

Mandy ~ When I was first dxed back in 07, I peeked in for months and thought someone had been looking through my windows and writing about me ~ I was scared, very scared! @ that time I was my doctor's worst case, I think he's told me I'm his 2nd now~ Looking back it took me about a whole year before I first posted ~ YEAH, I remember clearly I could not figure out how to use such a complicated forum compared to all the others I knew ~ lol I was thinking we have brain fog and this was the most complicated control panel ~ My posts were a mess ~ I was blushing on top of flushing and I was finally here all alone screaming for H E L P!!!!! No one answered ~ I'm sure they thought I was nuts ~ People were so nice they, NUTS OR NOT, pretended not to notice MY messed up posts ~ I was asking for H E L P ~ Now I Hope I give help, as well as get help ~ Everyone's has to do what is BEST for them. I WISH YOU THE VERY BEST ~ HUGS, Bellamia~ I love it here

I used to use melatonin 3mg for years till found that it increased the chances of an autoimmune disease and I already had a high ana ~ I was being worked up for lupus almost every few years also. http://www.livestrong.com/article/115717-bad-side-effects-melatonin-supplements/ this was interesting info ~ I find calcium works best for me in the middle of the night 600mg +D

I love watching babies of all kinds in the wild ~ I think I have a nest building in my air conditioner as I type ~ I've had baby bunnies in my flower bucket by my back door and thought they were little potatoes ~ I love mother nature ~ I love all wild animal cams ~ Bellamia ~