MikeO

Good Luck! and best wishes.

General TSO's chicken with no rice. not the food for me.

This caught my attention. Never even considered something like these. I have always been told the mainstream (teds and abdominal binder). Thanks for sharing i will give a pair a try. That's ok...i'm not going to post a pic of me wearing them either Lol.

not sure if Boy's are allowed to wear these?

My nOH is said to be rare or medium rare. As far as i know there is no ICD code used specific to nOH. i suspect more of us are out in the wild than predicted as well.

Congrats! does this mean you are cured?

OH/nOH and postprandial hypotension and some sort of autonomic dysfunction is the best i have been told and the specialist won't even pin down the subtype of the OH. Unfortunately autonomic testing is very hard to get done in wisconsin if at all anymore.

I got my hair cut today...boy i feel like a piece of meat Lol...

Well @kmichaelsonkeep in mind low blood pressure is not a symptom of POTS but tachycardia without a drop in BP and dizziness is. with that low of a BP i would be looking elsewhere. I also go low and is not POTS mediated. I have looked at IV infusions but they will not fix my issue IMO. Stick with it as there is more stressors that affect BP's or have another origin. Wish you the best!

Glad to hear you are getting in some exercise. what are you doing for your work out. I heard if a roo chases one its good for the cardio Lol.

These concerns have come up on their VIP Facebook group and the STAT folks are aware that pricing could be a hurdle. They did elude the cost would come down over time and the $50.00 a month cost is not set in stone by any means. Seeing the product only went public back in June and even is not ready for beta testing i am not going to worry too much about the cost as much as much as validating the product works as they intend it to. There is also some chatter as to who in the Dysautonomia world the device will work for and that the term POTS seems to be concentric and at times misused in the Dys community. I don't have POTS but STAT did express interest in getting me into the first round beta test. They also acknowledged that there are a large group of folks with some sort of orthostatic issues. For now i will enjoy following STAT's journey.

@Jyotimy nose itched so i thought of you.

@Sarah Teeyes i will give it a go. Cerebral blood flow or the lack of it makes sense to me as to why we become dizzy, presyncope or just out pass out.

This is a very exciting technology. The founder of the company did a very good job explaining the relationship between blood pressure, heart rates and cerebral blood flow. learned more in one hour than i have in all my years of having to deal with my symptoms.

Well one more easy to make meal, friendly on my GI and blood glucose levels. Chicken rub is just some paprika,garlic salt and pepper.

@Sarah TeeSorry to hear amlodipine is not working out for you. I did get the sudden tears symptom with the higher doses of pyridostigmine

So what is PEM? is that like PMS?

@Sarah TeeSleep issues maybe just because your body is adjusting to something new (amlodipine). for me it normally takes a month to adjust to a new med. I also urge caution with playing around with dosing with this med as it is not a fast acting drug so it needs to build up in your system. In other words, it takes about 30 to 50 hours for your body to get rid of half of a dose of amlodipine. It usually takes about five half-lives for a drug to leave your system entirely. For amlodipine, this means the drug will stay in your system for about 10 days after your last dose.

@Looking_for_lightThanks for the links. Good material to review. Still not sure if my ANS dysfunction drives some of my diabetes (pancreas works then doesn't) but i did have some good BG numbers on Sunday. I seem to be ok with Chicken and Broccoli (is a safe food for me).

Hi @Looking_for_lightsome of this works. Thanks for the best wishes. Food for now is not my friend. I can eat a meal that is fine then do it again and run into issues. One step at a time.

Here is the results from eating some beef with broccoli and a bit of rice. was really hoping that my diabetes wasn't real then poof back down to reality.

Thanks! I had to sit out all morning in my camo PJ's to get the shot Lol. It was awesome to see them this close.

Hi @Macho319just checking to see how your 7/18 doctor visit went.

@Sarah Teeglad to read that you are seeing some benefits from the amlodipine. Edema can happen with the higher doses usually when taking more than 5mg. i do get a little bit in my ankles but is mild (just sock marks) but has not been a show stopper. sure compression socks could help in the short term Amlodipine does have a very long half life (30-50 hours) so take your time if you plan to titrate up. when i first starting taking it i swear it took me several weeks to see the benefits. Also the drug is slow to metabolize (8 hours or so) I take mine with my evening meds (hear this helps with the edema as well, just don't quote me). Hope you can stick with this for a bit and is a fix for you. I would give it a month as long as any side effects are not too bad. Keep us posted!