MikeO

i get a feeling we don't even have to quit. fired my faint folks three times in the last several weeks and their billing was refused. money talks.....

Yes, but i do not panic. best i can say is to see a Gastro Doc and discuss symptoms. I was just treated for SIBO and it helped greatly but i get a feeling SIBO is not popular term in the dysautonomia world as it does not come up that often but it will mess with folks more than one would think. I have seen IBS issues with folks but not so many resolutions to the root of it. See a gastro doc and good luck.

Just to add a recent (2023) NIH paper regarding SIBO https://www.ncbi.nlm.nih.gov/books/NBK546634/

So is SIBO one of those new conditions that is now finally being recognized? I just finished a 1st round treatment for SIBO but did not realize it might be commonly overlooked. I also looked at some of the larger health care providers in the state and SIBO is not even mentioned. Thoughts?

@Sarah Teenot sure what season is being aired on PBS. i don't follow it that close but i do oddly like DOC's dry sense of humour. have had a few needed laughs!

well here i will respond. not a very chatty site for sure. i watch this on PBS every weekend. love the show. kinda give me hope there is good providers out in the world yet.

Thanks! yeah finally got lucky for once and have not had to go thru several providers to get to the root of the issue.

Thanks! you can be very styling when out and about.

well have 4 days left of the antibiotics and boy what an improvement. i have better energy, my GI distress has gone way down and my bowel movements have not been this good in a long while. Also not seeing undigested food anymore so i keeping my fingers crossed.

@Sarah TeeGood job on the detective work. Do you think that you could get a Consultation visit with Dr Judith Spies?

Pretty happy with the quality and for $16 dollars it is a good value.

well full four days taking Xifaxan seems to be helping. i have already noticed that i am not passing undigested food and the bloating/full feeling has improved. Hope this is the catch all for my GI issues. 10 days to go on the treatment so i have my fingers crossed.

Thanks for sharing!

Well i have been put on XIFAXAN for suspected SIBO issues. it is a two week course of antibiotics. as i dug into the intestinal bacterial overload seems to be common with a number of folks from diabetes to ans issues like POTS and vagus nerve issues. Hate the NIH studies that just suggest that more studies are needed. i am just happy i have a gastro gal that is working out of the box. I hope the treatment helps.

Well new email from STAT. My take is they are pushing for funding just can't capture the whole email thread. My Doc says does have reservations for good reasons. I am sitting off to the side for now as nothing has been proven, cost for a wellness device is high and how does the product help me? i could see a preemptive alert that i am about to pass out but i doubt this is in the works (FDA stuff). I already know that if i drinks fluids and watch what i eat i do better. some folks are think this will show or cure there issues i am refraining from this. Just my 2 cents.

Here STAT's response to the device being available in other countries.

Update my test was concluded in two hours. normal GI emptying. so gastro is going to treat for SIBO and see what we get.

The service requires a active internet connection as the app's core computing is done in the cloud so service can be a issue no matter where one lives. I also get a feeling that one's data might be or end up being shared with other interested players. keep in mind these folks and the investors are doing this for money and not just out of the kindness of their hearts.

Wow the question was posted on the VIP STAT facebook and went unanswered. "Can you give me an idea of when this will be available in Australia? I have severe POTS it would help so much."

Yes the product has not been fully developed as of yet and the company is in a crowdfunding mode (campaign to raise money). I bowed out of the early pre-order. i do hope the product does make it to market but i am just not waiting for it to get there. Just as a side note if or when it is available it will just be a health wellness device and still i can't see paying a substantial cost for that. A DME like a CGM i could see but they are not close to that.

Well more to the story insurance did buck up and are paying for the Libre CGM sensors they are also are paying for the 4 finger sticks that are required a day for me. i would like to still have the Dexcom G7 but for now will take what i can get.

I can't see the referral letters on MyChart. i could pull records but is a bit of a pain. i just ask when i go in for the referral or have to call on one that went crickets. i.e...being referred for dysautonomia to a provider that does not have a dysautonomia clinic

Happens to me from time to time. usually it's a nurse that gets the referral information wrong or mychart has not been updated to reflect the issue i am being referred for. I just message my GP with what is going on and hope for the best. I have more issues with referrals being sent to out of house providers.

Darn brain fog Haha. I just may give this a try. Thanks for the feedback.

i may just look into this. sleep for me is a issue for sure.