MikeO

validation process is in progress. Johns Hopkins did their testing and was shown to be predictive and Duke university is testing against a transcranial doppler (TCD) ultrasound tilt test and beat to beat bp. Again quite some chatter on facebook all i can say is i get access to the engineers as a beta tester.

@Sarah TeeI will post back. A couple of folks already asked if this is available in Australia but got no response yet. I will keep an eye for you. crossing my fingers that you can get a transcranial Doppler test done. sure it would be telling.

Pricing chatter already came up on their facebook page. $50 per month is expensive for sure especially if the cost model comes with a contract and not a month to month service. For now i need to see more about the product so will continue to follow it. I would pay the cost if the device actually meets my needs which would be a audible alert that my blood flow is trending low (about to pass out) and proves whooshing is real haha. CGM's have the alerts and are very useful in helping you correct a low or high.

sure if this would be lent out it would be treated like a disposable medical device. I did pay the dollar to get a VIP spot to get one. won't break the bank. if this works as advertised it will be a game changer IMO or at least for me. I would get on the early list. you won't be obligated to buy.

I just reserved one. I do see this as helpful.

hmm...is this just a next gen CGM?

Potatoes are tough for me. I use to make potato soup that had heavy cream as one of the ingredients my heart would start pounding and i would sweat badly. knowing i have DM now these were the first to go off my list.

Just reaching out to see if anyone experiences a increase in heart rate after eating a meal. For a number of years i would suddenly start having palpitations seemingly out of the blue but after the last few months working on my diet i think i finally can relate this to some of the food i have been eating. Episodes will last onwards up to 4 hrs besides the increased HR i feel ill, very full and bloated and very orthostatic then my HR will return to normal and i am fine. I have noticed this with eating a seemingly normal chicken sandwich (low carb keto bread) to veggies like broccoli (now have a bunch of suspect foods on my list). Today all i ate was some homemade egg drop soup and i was just fine in fact my BG even dropped from 147 to 99. Any insight would be helpful

When i am hot or overheated being out in the sun i get nauseated

Egg Drop Soup. Easy on the GI and blood glucose levels.

are boys allowed to wear these?

i would try one of these on. I have read of other folks using them. for me the standard binder just does not fit my build so it either feels awkward or does not compress enough.

Just checking how has your pyridostigmine trial been going. we worry about you.

Been here and still am. Whole reason for my med changes. Couple of years ago i posted some sudden weight gain and again this summer i am back at it after being fairly stable. not sure what changed but going from 178 to 185 overnight i do feel. For now Cardiology has me logging weights. only other note on my side is i am bloated again and my fasting BG's have been in the 130-140's. Slow stomach emptying? I have reached out to my PCP for a referral to Gastro and see what we get. Just posting what i have been seeing.

not sure if this helps you. The cardiovascular system combats low blood volume by constricting blood vessels until the body reaches a blood pressure that restores proper perfusion pressure.

Happy to read that your GI has been ok so far. Was your thirst due to dry mouth or just feeling of thirsty?

First couple of doses was a bit of a emergency to get to the bathroom, Haha. @Sarah Teestart with a low dose first and work your way up to your prescribed mg. any GI issues i had with pyridostigmine has cleared up over time.

well antibody labs came back. one is questionable as low positive. no panic for now as my very low carb diet is working. sure i will find out more in september. Glutamic Acid Decarboxylase Antibody 5.0 IU/mL IA-2, Autoantibody 5.4 U/mL Insulin Antibody 0.4 U/mL

The gob is whipped sour cream. has just a hint of garlic added.

quick and easy diabetic lunch

last note @Jyoti my Doc did say she had to co-sign to get this to go thru. not sure what that means but does want me to let her if i have trouble getting the drug filled going forward.

well saw the Doc yesterday (sigh) we did discuss issues. He did go into that autonomic dysfunction can and will mess with one's body functions so in his area meaning the pancreas (bile and insulin) so does he know for sure if the ANS is at fault no there are other reasons just one step at a time. At first he was not onboard that i was diabetic (i was warned that this could happen) as my A1c is 5.6 but after digging thru the MyChart labs and me showing all the data that i collected he changed his mind and ordered additional blood work. he is looking for the type 1 diabetes antibodies as my liable BG swings (said this was messed up) mimic late occurring T1 DM more than T2 DM. He also did a quick exam and provoke a response when when pressing on the right side of the throat and having me swallow. not sure what this shows but i almost threw up and was not able to comply with swallowing. we did also discuss GI issues and he recommends going in to see a gastrologist. for now he won't order any DM meds as most are not very GI friendly or had other concerns so he urged to stick with a low carb diet. Right now i am stressing a bit waiting to see visit notes and lab results.

I have been taking pyridostigmine and helps but my ranolazine has been the miracle. might be worth a look.

Hi @erinliai get the same increase in muscle energy as Jyoti experiences. i can tell when i don't take the med. it has helped with my GI motility as well. Have not seen a big difference in my HR but then i do not have POTS. my dose is 30 mg x3

well update i did get in quickly to see endo (tomorrow). wonder if a doc has a doc in their back pocket Haha.