MikeO

Good post...Yes antihistamines will affect cognitive functions. the newer drugs like claritin or allegra are better. my nurses have said to take them with caution. Benadryl is good if needed but should be used short term.

I agree but unfortunately insurance companies don't always look at this in the same light unless there is a protocol or return on there investment. In Wisconsin it is like pulling teeth to get any autonomic testing done. The major healthcare and universities are all capable but choose to limit what testing is done to (tilt and if you are lucky a QSART along with antibody body testing for RA etc if you get the point). Protocol is to make assumptions based on the few tests done as the treatments really does change let's say for nOH,OH,OI,NCS etc.... Edit: I think i just said the same thing you did.

Not sure how one would test exercise intolerance or even muscle fatigue outside of reported symptoms coupled with maybe some vitals. I can tell you for sure if my BG level is 300 i am only good for a few minutes on the treadmill vs 100 and going for 45 minutes without any fatigue.

New breakfast meal that does not spike my blood glucose. super easy to make. Tortillas are keto so low carb rest is just egg salad.

autonomic dysfunction specialologist then? Lol

My vote would be a autonomic dysfunction specialist. But thats me.

@Knelliecould try a paleo/keto/carnivore modified diet. my blood sugars had got out of hand so i did a food reset. i eat two meals a day and two snacks. been on the listed food below (boring meal choices) but i feel so much better even my GI discomfort cleared up. not sure if it will help with weight loss mine has been stable. sure it is from drinking too much beer Lol. Cucumber, blackberries,lettuce,cauliflower,carrots,celery and avocado Chicken breast and red meat, eggs,cheese and small amounts of milk Keto net 0 tortillas, almond slices and just a few triscuits Just sharing my experience

Thanks! @Knelliei found this out after i bought a bottle. Next one i will for sure i will buy TMG

@Sarah Teesounds like you are being well taken care of - wish you speedy recovery.

I did look at this at one time. not sure if it is a fit for me. I suspect a slice of rye bread is gives me more orthostatic issues (lol) working on it.

@Sarah TeeOh no hope your YOUKNOWWHAT is mild. Be sure to drink plenty fluids. fruits and veggies is a good idea

@Sarah TeeI hope the new clinic works out for you. Try and enjoy your time while out and about.

Good to hear.

Whats the cost difference between having 4.5mg and 5mg of LDN custom compounded?

Jenn this is so good i am using the seasonings for my bland diabetic skinless chicken. It is sooo the bomb!

Be surprised what the body does while one sleeps. It does attempt to heal itself as well as go thru checks and no does not just shut down. Some of this may just wake you up. From Nocturnal tumescence happens to both sexes multiple times during the night to epinephrine (adrenaline) rising when the body is working on waking up. Sure some folks are a bit sensitive to adrenaline but again just may just be normal body response. I did have a nurse a while back get me a bit spooked over the early morning SVC's but there is no worries. I would Google what the body does at night and waking hours before pursuing new drug. not saying one may not have a legit issue but that is for a Doc to diagnose. Again this did come up on a diabetic forum. Just food for thought

@Pistolnow that i have a little better understanding of what a adrenaline surge is i feel bad for the mountain lion that i run into in the woods Haha. I still wonder about the Dawn phenomenon. Not saying folks would have diabetes but what comes out of the DM folks is the heavy use of CGM's which can be telling to some degree. Theory is somewhere in the morning hours one's body will prepare to basically wake up. The cgm users will note normally happens about the same time each morning and most will see a rise in blood sugar levels as the liver dumps glucose some will see a drop in BG. Once i figured out not eating for 3 days was bad i see the same rise in sugar levels. Looking back at my holter data my SVC runs were about at the same time that my BG rises and my 24 hr BP monitor also showed a spike in blood pressure also my really hot flashes are in the same time frame. Sure over the years i just intuitively adjusted the time i get up in the morning unfortunately it is 5AM so guess symptoms are less noticeable for me.

I have no idea what a adrenaline surge is (palpitations?) Rather than blaming dysautonomia it may be just to normal hormonal surges that will wake up even normal healthy folks. I do see this in the diabetic community it's called the Dawn phenomenon and even affects blood pressure so if you happen to go low you will sweat. Just one more aspect to look at.

Basic metabolic panel will show ones electrolytes. I get these twice a year.

Here is part two to the abstract. https://abccardiol.org/wp-content/plugins/xml-to-html/include/lens/index.php?xml=0066-782X-abc-116-05-0981.xml&lang=en

Found this fairly recent article (2021) in regards to dysautonomia. Is interesting, sure there are key points that may relate to different folks. For the last could of years i have been looking for reasons why i have become dysautonomic. There is no family history of this. While i won't diagnose myself i get a feeling long term undiagnosed uncontrolled diabetes is the origin of my autonomic dysfunction. I find it relatable that the two drugs that i take favor the parasympathetic part of the nervous system and have made a difference albeit taking a long time to work. Hope there is some verbiage in the abstract that you can relate to. https://abccardiol.org/wp-content/plugins/xml-to-html/include/lens/index.php?xml=1678-4170-abc-116-04-0814.xml&lang=en

Oh i was so shocked that the MD even recognised or mentioned dysautonomia. It's been a good day...

I did good and am so relieved. Hope someone picks out the comment from the MD. I was not expecting it. Study Result Impression 1. Normal-appearing bilateral kidneys. 2. No evidence of focal renal artery stenosis bilaterally. Resistive indices and renal artery velocities and waveforms within normal limits. Mark Reddick, MD, MS Radiology Associates of the Fox Valley Narrative EXAMINATION: US RENAL ARTERY DUPLEX COMPARISON: None CLINICAL INDICATION: Peripheral vascular disease with dysautonomia.

Well i get the bloating and cramping and when things are bad have passed undigested food. When my blood sugar gets out of hand (high) is a stressor for me for sure. I also avoid the nightshade foods even potatoes will get to me. Because of diabetes i eat a low carb diet and try to limit my carbs at a meal to no more that 20 grams. as long as i stay consistent i have been ok.

What is PSA?