Derek1987

I'm telling you... Your dishes will always come out clean when you use this. I learned this from my mom. My dishes had spots and food particles in it without this stuff. If this doesn't work for you, well .... I don't know I'd be shocked.

Yes I use that function as well. I was just saying a chatroom for conversation in real time if people wanted to. between groups. It was just an idea. If nobody sees the need for it, then that is fine as well.

Yes just a slower form. I'm not saying get rid of the forum. Some people just might like to chat sometimes. 🤷‍♂️

I think it would be cool to add a chatroom feature for informational purposes/support/friendly chat. Just an idea.

My doctor wrote up restrictions for me. Initially the disability company claimed they had no restrictions form for my doctor to fill out. Now that my job has approved my absence, the disability company sent my doctor a restrictions form. The doctor wrote sitting or standing for extended periods of time will cause fainting. Also no bending or lifting because the potential to cause me to faint. The disability company STILL isn't accepting that. I received a letter in my email stating they received my restrictions and it's not enough to support my claim. They need restrictions and all doctor records from December first to present. Which isn't much because I'm pretty much waiting to see the autonomic dysfunction specialist. So I have another paycheck I won't be getting. That's 3 in a row and rent is coming up. I called them and asked why they need restrictions. They said they need the most up to date restrictions. I was like this is from Friday and covers me until I see my specialist on February 25th. Then he was like okay the restrictions should be good just to get them the doctor records. Which is basically a visit to my psychiatrist for my Xanax prescription refill. And I did take a CT scan on my adrenal glands. That's it. They are really trying to screw me. I have enough medical evidence already. I have creditors calling me. My policy for rent is if I don't have it by the 6th, they start the eviction process. And I don't need that on my record because I'm trying to buy a house this year. Wondering if I need to threaten them with legal action.

Monday I had a near fainting spell at my wife's doctor appointment. 2 hours of sitting. Just a few minutes ago I put some clothes in the dryer. I was probably on my feet an hour or 2 today. So I put the last load in the dryer and start walking to the kitchen. Bam I feel the fainting coming on. I rushed to my bed. This terrifies me. Other than the dangers of hitting my head or something, how dangerous is fainting? It is so scary.

Honestly I only drink coffee to get a boost. No matter the flavor or whatever. I'm a coffee rookie, BUT since September after my 3rd faint spell, I can't tolerate much caffeine anymore. It makes me feel sick and shake. Even too large of a Coke will have me messed up. I found this out by drinking a large Coke from McDonald's. I was so sick I missed one of my doctor's appointments. Then I tested the waters again, same result. Boo.

Have you tried using rinse aid along with your dish washing liquid or pods? Makes all the difference for me. When I had a dishwasher that is. https://ship.kroger.com/p/051700369300/finish-jet-dry-rinse-aid-80?&cid=shp_adw_0000.ship.Delta+Ship+-+Dishwashing&gclid=EAIaIQobChMI-ObWnrj63wIVHP7jBx1f3ApREAQYASABEgK-YfD_BwE&gclsrc=aw.ds

You ever thought about getting a dishwasher or one of those portable dish washers that you put on the countertop?

I don't have a dishwasher in my house. I just attempted to wash dishes. My wife and step daughter went out of town so I'm alone. Started getting hot. Not one dish was washed. Feeling pretty sick now. Can ya relate?

Wouldn't it be more be beneficial to go on disability? I'm out of work and I'm not so sure my PCP really understands how bad off I am. I'm waiting on her to write restrictions for me to continue my short term disability hoping she does the right thing. There's no way I can go back to my job in this condition. My job consists of standing and walking the whole day. I've fainted from sitting and standing. It's been hard for me to accept I might not be able to work anymore. My wife doesn't seem to think I'll be working anymore. Sorry that I don't have any tips. I'm new to this. But hey you aren't alone!

Have I seen an autonomic specialist? Yes. I've only seen her once though. Waiting to see her again. She has me on mestinon to slow my heart rate down. She claimed it would heal my nervous system. So far, I'm still the same. I did a few tests that day I saw her. So far, Rocky mountain was detected in my blood work. She claimed it damaged my nervous system. I did a tilt table test. Laying down 81 standing up 126 BPM. My blood pressure was high in all positions but my heart rate changed. I did a 24 urine test but I don't know the results. The brain MRI came back pretty much normal. She showed me a graph of a person upright and how blood fails to reach the brain over time. Then she also said she doesn't think I need compression stockings. She just thinks my adrenaline is in overdrive. So that confused me. I've fainted and had several near fainting episodes. I know my adrenaline is in overdrive though. 

Thank you for your response.

She said that's what the mestinon is for. It slows my heart to a degree but I'm still in fight or flight mode most of the time. She claimed the mestinon would heal my nervous system. She was talking about how western medicine only treats symptoms. She said the word heal and of course I'm highly skeptical. And more so now since I see other people take it on here and still have issues. I also take Xanax. Not prescribed by her. It helps but not 100 percent. Monday I had a CT scan on my adrenal glands to see if I have any tumors on them. I don't think I'll have any. Anxiety has been a problem for me since childhood. It went into overdrive after I blacked out for the first time in Oct 2017. PTSD for sure. My wife would tell me nothing is wrong and sometimes people just faint. Everyday I would be like am I gonna faint am I gonna faint? I would see stars and feel pins and needles in my hands. Fast FWD to September 2018 and I had 2 near fainting spells within the same week including one at work which both resulted in ambulance rides. After the one at work, it was like I was broken. I haven't regained my strength. I was always exhausted everyday but now I experience so many other symptoms. And I've had a few more near fainting spells since including that one this week.

Yes. I've only seen her once though. Waiting to see her again. She has me on mestinon to slow my heart rate down. She claimed it would heal my nervous system. So far, I'm still the same. I did a few tests that day I saw her. So far, Rocky mountain was detected in my blood work. She claimed it damaged my nervous system. I did a tilt table test. Laying down 81 standing up 126 BPM. My blood pressure was high in all positions but my heart rate changed. I did a 24 urine test but I don't know the results. The brain MRI came back pretty much normal. She showed me a graph of a person upright and how blood fails to reach the brain over time. Then she also said she doesn't think I need compression stockings. She just thinks my adrenaline is in overdrive. So that confused me. I've fainted and had several near fainting episodes. I know my adrenaline is in overdrive though.

Hey Pistol. FYI you have been my MVP on this site with your help and knowledge. What is NCS or OH? I too am wondering what my condition could be as I don't think I've been diagnosed. My tilt table showed my heart rate jump up from 81 to 126. I had a near faint episode at my wife's doctor appointment yesterday(scary). Today I actually went grocery shopping with my wife. She was mad at me because I was rushing her. I'm explaining to her I don't know how long I'll last and I don't want to end up at the hospital. The last few sentences were random sorry. But yes what are those other conditions you mentioned?

Do your arms turn red as well as your hands? Do your veins pop out?

Okay I'll do a retest.

Notice the change in color. Trying to gather evidence for my next doctor visit.

Today I went to the doctors office. It was an appointment for my wife. My anxiety was up. My palms were sweating the whole time. My hands were red and veins were popping out of my hands more than usual. I've noticed my whole arms from the elbows to the hands turn red with my veins popping out when I do a couple basic chores around the house. I was also nauseated and had a weird feeling in my gut. Not anything new. Anyways we sat there for about 2 hours in the lobby then finally get called back. I was talking to my wife and in mid sentence it felt like I was going out. I got hot, my breathing was heavy and my heart rate jumped up pounding out of my chest. I layed back in the chair for about 10 minutes trying to calm myself down. The doctor finally came in and we left. For the record I have blacked out completely once. And multiple times where I felt like I was about to pass out. I've had near fainting spells where my body is actively trying to faint without a break but I stay awake. Then I have these episodes where it feels like I'm about to go out and I somehow fight it off with trying to relax and lay back or lay down. My wife says I need to start going to the emergency room when this happens to leave a paper trail. But they never help me and I'm already stressed and don't want to hassle with it. I think next time I'll have to go ahead and go. What do you guys make of what I experience?

Well the update is my doctor wrote me a note that my employer accepted. I am no longer under the threat of being terminated at this time. They can if they want because my FMLA is up. I was talking to my PCP's nurse. She handles the notes. She wrote up my restrictions on a different note for the disability part. I was explaining to her I can't stand up for long periods of time. She said my doctor records from my specialist don't give me a case for that claim. Even though I had a follow up with my doctor and explained to her what the specialist told me. My specialist told me not to drive. She said it's safer to take baths. She told me the longer you stand, the less amount of blood gets to your brain. I have faint/pre faint episodes. The Tilt table test showed my heart rate sky rockets when I stand. So I'm not sure if I convinced the nurse or not to write me restrictions that take me off of work. I work in a pharmaceutical warehouse. My job.... I am on my feet pushing a mobile computer around. I'm on my feet the whole day. I have to be because I move product around. That's how I came on short term disability in the first place. It was my 3rd fainting episode and I had two within a week. The 3rd was at work. I felt a weird feeling in my gut then I collapsed. I could feel my body trying to faint while I was laying on the ground waiting for the ambulance. It went away in the ambulance then came back while I was at the hospital. When they gave me Ativan my fainting feeling went away. So the note for my employer says my specialist recommends me to be off at least until I see her next time. So if my restrictions for disability say I can work, it'll make no sense. I don't understand why my PCP won't just back me 100 percent. My specialist sent me a message through the portal saying my return to work timeframe depends on my next visit with her which I haven't had yet. My PCP has seen this message herself. So we will see. It's been a mess. If they say I can work now, I'll probably just have to quit. Or just go up to work and get sick again. But I do have faith in God so whatever happens, I'll be okay. I'm just anxious to get to where I'm going.

I don't know enough to fully answer your questions. But I do know the more fluid you intake, the higher your blood pressure will be. My urine is always darker in the morning. Maybe someone else can shed some light.

Sorry if this is the wrong section. My wife received a fully favorable decision in the mail today for her health problems. It doesn't say how much she will get. It went to the hearing level. I'm assuming our next step is to visit the social security office and give them our banking information? If that's the case, how long until a payment is issued? It's my understanding she will probably receive backpay later. I'm just anxious to know because now that I'm sick and my short term disability is still pending an extension, we are in bad shape financially. Thanks for any knowledge given!

I've only seen my autonomic dysfunction specialist once. She said I don't need compression stockings because my blood pressure was high (along with heart rate upon standing). At the same time she showed me a chart as if I was receiving a lesson in school of a person standing up and how over time, less and less blood gets to the brain. Wouldn't that be a drop in blood pressure? Or no? I'm confused. When I fainted the first time the paramedic said my pressure was coming back up in the ambulance. I honestly don't trust any doctor. I always do my own research. And most doctors have egos. Not all of them. Don't get me started on hospital doctors.

Thank you for your replies and support. I got a response from my employer on what they are looking for the note to say. I took it to my primary care doctor today. Again. I know they are getting sick of me. I have to turn it in by Thursday or I lose my job. Just from that trip I'm trembling, nauseated, and have that same weird feeling in my gut. Lord have mercy. I gotta lay down. Hopefully this note will satisfy my job and short term disability. This is my last shot to keep my job. I'm fighting for it even though I don't think I can do it. We will see what happens.