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Everything posted by Derek1987

  1. Now it's stopped. Lasted about a week and haven't seen any blood since. Shrugs.
  2. Sorry TMI but I've noticed this past week, my toilet paper has blood on it. I go everyday. Sorry again.
  3. So I've only been on it about a month to be fair. It is slowing my heart rate down somewhat. 10 to 15 beats. I'm 31 and feeling like I'm 81 still. I've already made jokes about myself. I just killed a bug with 2 swats with a fly swatter. I felt out of breath and started getting flushed with forehead sweating with my heart beating really hard. I definitely didn't appreciate my health while I was in a normal condition. You guys who have been dealing with this are some strong people.
  4. The disability company is trying to get me to go back to work in some capacity even though my specialist documented no work. And she also told me not to drive. My specialist isn't backing up her own statements and wants my primary care doctor to make the call. Okay that's fine so I told my specialist to send over all of my doctor records to my primary care doctor. They should have already been doing that. Anyways the disability lady asked me if I'd be interested in a part time sit down job if my employer allowed it. I was like I don't know the first time I fainted I was sitting down and I laughed. I told her all of my symptoms. She's gonna get in contact with my primary care doctor today and see what limitations I have. I messaged my primary care doctor and explained everything that's going on. I hope she sees the messages. I'm stressed out. My hands are tingling and I'm seeing stars. But that's normal for me these days. I don't wanna go back to work and have any accidents or be back in the hospital and start this whole process over again. I don't even care if I lose my job over this. I still want my disability money if im rightfully entitled to it. I just want the best outcome for my health and finances. Ahhhhhh!!! Sorry.
  5. So I've been out of work since September. I had 2 fainting spells in one week. One was at work. Being off work started with my primary care doctor. She referred me to a cardiologist. He kept me off work. It's in the doctor records . He referred me to an autonomic dysfunction specialist. I saw her for the first and only time on November 8th. I'm on short term disability right now through my job. The autonomic dysfunction specialist told me not to drive. I told her I was concerned with getting back to work asap. She said don't worry about it FMLA lasts a long time. I sent her a message through the website portal asking when my return to work time frame might be because my boss was curious. She said I can return to work after I see her again in 6 weeks or so and also depending on how I respond to treatment. So my short term disability is under review for an extension. My autonomic dysfunction specialist is saying she never put me off work. And that is what they are telling my short term disability company. I even sent the disability company the screenshot of her words of my return to work to work time frame. I did that awhile back actually. The lady on the phone said she's gotta ask my specialist for permission to send that statement. Well I've already done that lol. The lady was telling me the specialist doesn't usually put people off of work she let's the primary care doctor do that. I explained to her well my primary care doctor is probably leaning on my specialist because she's the one that specializes in my sickness. So the disability company probably thinks I'm trying to pull a fast one and be off work. Although they shouldn't since I sent that screenshot. My primary care doctor will keep me off work if she's needed. She said she would do whatever she needed to do for me so I should be okay if my specialist wants to go back on her word. My checks are already short. I don't need a gap of missing money because of this ignorance. I'm already struggling and to top it off, I'm still feeling like crap and my body isn't operating normally. Thanks for letting me vent. I'm supposed to get a call back later from the specialists office and see if she's gonna go back on her word or not and if I need to get with my primary care doctor again.
  6. Hmmm interesting. The very first time I fainted I drank alcohol. It wasn't much but I rarely drank anyways. I haven't drank any since because the situation was traumatic to me. Then I've had 2 near fainting episodes after consuming spicy food. I can't handle much caffeine anymore because it makes me feel sick. There's gotta be a connection between all of these things. I just want an official diagnosis because I want to know if I can work or not. I'm just worried about my future. OP, don't be pressured into anything. If they are true friends, they will understand.
  7. Definitely go get a sleep apnea test done. I've been so tired for years. My wife would get mad at me a lot for always being exhausted. Not wanting to do much after work or do anything on the weekends. I didn't test positive for sleep apnea but we discovered my heart beats extremely fast upon standing which is causing my exhaustion. I stood and walked all day long. I've talked to a couple people with sleep apnea and after getting the machine to sleep at night, they feel a whole lot better. At least get the test done to rule it out.
  8. "I get Drop Attacks--fainting and remaining conscious for the reset. Arrrgh. " What do you mean remaining conscious for the reset? The first and worst time i fainted I was fully aware of where I was.vision loss, hearing loss, and paralyzed .I couldn't even put myself on the stretcher when the paramedics got there but I was coming out of it. When I was put back in the ambulance, the paramedic said my blood pressure is coming back up. On a side note, my wife told me the paramedics were all smiles and not worried and I was thinking I was dying. Worst experience in life.
  9. I'm not sure if I'll be on SSDI with my current conditions or not. But my wife was approved for SSDI this November. She has ankalosking spondylitis, fibromyalgia, arthritis, had to have hip replacements and other problems. My question is, can benefits increase or decrease by the state or city you live in? Or will it be the same no matter where you live? I wasn't sure if I should have posted this in here or not but it kind of relates because I might be next.
  10. I thought I was onto something. Rookie mistake but hey maybe my post will help someone.
  11. Don't feel bad I have multiple issues and my short checks are having bill collectors call me all day now lol. Waiting on another short term disability extension approval. The Lord will see me through. Been a tough road!
  12. I'm so new to this I don't know what mast cell is. but when I was taken to the hospital from work from near fainting, I was so distressed because I was fighting the fainting. I begged for anxiety meds. They gave me Ativan 1mg through the IV. It stopped the fainting and I actually fell asleep for a few minutes. My heart rate was 156. My blood pressure was like 160s over 110s I think. I've been taking benadryl for like 5 years to go to sleep . I was exhausted and still needed it to sleep. Now I'm finding out about this adrenaline over production stuff so I guess that's why I needed the benadryl. But since my last trip to the hospital, taking benadryl makes me super sick. Can't explain it. But I have Xanax now thank God. Sorry I don't have an answer for you but just trying to figure things out together. This is new territory for me.
  13. So I went to my psychiatrist yesterday. I told him what was going on with me. One of the things my autonomic dysfunction specialist told me was my adrenaline was going non stop. I told my psychiatrist about this. He said one of his ex patients had this problem and suggested he get an ultrasound on his adrenal glands to see if there are any tumors on the glands causing the body to pump out too much adrenaline. The psychiatrist was right. His patient had surgery to remove the tumor and he was back to normal. He told me to go check this out asap. So I made a drs appointment already. He explained to me I could still have damage from the Rocky mountain virus but the adrenaline is something completely different. The damage would take away a function from my body, not help produce more adrenaline. I figured I would share this information so you could look into it and at least rule something else out .
  14. Ouch. Thanks for the reply. I'll add this to the list of things to tell my doctor.
  15. The 2nd time I was going into fainting but never fully went out, I had taken a cayenne pepper pill for the first time to reduce blood pressure. Now that I've been checking my blood pressure a lot, my pressure is never consistent. I'm not sure how long that's been going on. So tonight, I ate like 15 pepperoncini peppers. They aren't too hot. I love spicy food. About 20 minutes later, I felt it coming on as if I was about to faint. This is while I'm laying in bed. I got hot fast so I turned on my box fan and pointed it towards me and layed down. My face was flushed and hot to the touch. My heart was beating really hard. Although that could of been because I was freaking out. Fainting scares me because I feel like I'm fighting for my life. I layed flat for a few mins and tried to relax. Of course my wife was worried and trying to calm me down and seeing if I needed to go to the hospital. I said no let me just try and relax. I seem okay now. I was wondering if spicy food can trigger this?
  16. I don't think so. It's still sore though. Tomorrow I'll take a closer look.
  17. I don't suffer any pain other than the normal wear and tear I've done to myself. I don't need pain meds or anything. I'm just getting the burning sensation as if I'm in the middle of exercising but I'm not doing anything. I can feel it in my thighs right now. You have pots? And pain is another symptom of it? I'm glad I have this forum to go to for knowledge. Doctors only spend so much time with you.
  18. They burn as if I'm currently working out. It's like if you were doing push-ups and it starts getting harder and your arms start burning. Or doing crunches and the more you do, the more it burns. I can still feel it now. Not as intense. I get this randomly. BUT...my right calf muscle feels sore like post workout. Like a muscle that hasn't been worked in awhile. It's always my right calf. This started maybe 3 months ago. It'll be sore for a couple days then go away. Then randomly come back. Idk what the heck is going on.
  19. Sorry I make a lot of topics. Just trying to collect all the information and knowledge I can so I can help myself and my doctor figure things out. I've been out of work since September. My job consisted of me walking and being on my feet 95 percent of the day. A normal work day for me is 8 to 10 hours. Since my last fainting episode in September, I noticed sometimes my thighs and calf muscles burn as if I've been exercising. Usually when you exercise you get the burning feeling and when you stop, the burn goes away shortly after. I just carried in some groceries and my thighs and calf muscles have been burning for about 45 mins to an hour. I can also feel my calf muscles with a pulse. What do you guys make of that?
  20. Thanks for the response. If the tick virus damaged my nervous system, I wonder why it took so long for the major symptoms to happen. The fainting, nausea, shaking more than usual stuff. I've only gotten sick like once in the past few years and I took antibiotics for it . Me and my wife we both sick at the same time. I guess I'm just hoping it doesn't get worse. My symptoms seem to get aggrivated when I get out of bed and try and do normal chores. There's a homeless cat we feed. We bought a big plastic container and put blankets in it to protect him from the cold. I took a razor knife and cut a door. When I was done it was like my nerves were shot. Hands shaking and nauseated. I had to lay down and rest from an easy task. Pathetic. You guys have been on this journey longer than me. I know it had to be most terrifying in the beginning. Where I'm at now...
  21. I already did the research and I see I'm negative for Lyme which my specialist already told me that part. But looks like I tested positive for Rocky mountain. I don't understand IGG, IGM, IF etc. I'm guessing there is different kinds of Rocky mountain? She never specified what tick illness I had but it was no longer active. I lived around woods for most of my life so I'm not exactly sure when this happened to me. I rarely went to the doctor when I was sick. I've battled extreme fatigue for a long time. I know I've had heart palpitations since my early 20s. They might have gone back further I just don't remember. Anybody understand this lab report?
  22. Another question since you let me know about blood pooling in other areas. When I was being lifted into the standing position, not only did my hands get red, my face was flushed, hot. Do you think that's related or just another symptom of my condition?
  23. Interesting. When I did my tilt table test and they rasied me to the standing position, my hands were extremely red and my hands felt different. My wife pointed it out to me. I guess I could describe the feeling like my head felt when the table tilted backwards and I felt the pressure in my head. It might be happening in my stomach too. When I participate in being a normal human being by standing and going to a couple of places, my stomach seems to get irritated. I have a weird sensation going straight down my stomach in a line. That might not be blood pooling though. Idk.
  24. Thanks for the answers everyone. With that being said, I think that rules out pots for me and isn't why I faint. I still have elevated heart rate instantly upon standing. Tingling in hands. I see stars. Nausea, fatigue. Heart palpitations, irregular heartbeat and fainting issues. In other words I guess I don't know what official diagnosis I might have.
  25. How do you know if blood is pooling in your legs? Is it just because your blood pressure lowers when standing or can you actually feel or see it? Or is there a test to see it? My specialist thinks my adrenaline just drains me to the point I faint. Which might be true. Today I was laying in bed and my hands and feet were cold but my palms were sweaty and my face was flushed.
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