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Derek1987

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Everything posted by Derek1987

  1. How often do you get IV fluids? I was on my feet earlier doing the dishes for about 20 mins. I was okay until the final couple minutes. Shaky and flushed. I want to sleep to stop the suffering. It's been a few hours since. I did drink a Gatorade though.
  2. Reading these forums I see people mention getting IV fluids etc. Is there a drink out there that will also help? I bought some Gatorade but it doesn't seem to have many ingredients in it. Mostly sugar water.
  3. I've had like 4 or 5 in the past year. My only ones ever since I started fainting. So sounds like I need to stop.
  4. Apparently I looked like a ghost white corpse when I fainted at Olive garden. Ah the memories.
  5. If I take a bath to relax, I barely fill the tub. Like 1/10th. If i do more I don't feel well. Even heat from the vents kills me. Last night I went outside in the car to talk to my friend on the phone. I kept having to adjust the heat settings. My body is like your cold so I turn the temp up but it makes me feel bad. My friend put me on hold and then I felt the faint territory coming on. I hung up and got in the bed. I have a window unit in my bedroom I run while the house heat runs through the vents. Kills my utilities but I have no choice. Thankfully my wife doesn't have much of a problem with it. She likes to sleep cold. I'm dreading the summer coming up.
  6. What kind of test did they do? I did a 24 hour urine test/blood work and a CT scan on my adrenal glands. I don't know any of the results yet though. My hands tremble. Especially when I'm exposed to heat. Sometimes just for no reason. They actually have shaken my whole life it's just gotten worse. Or maybe that's marriage? Jk
  7. I'm telling you... Your dishes will always come out clean when you use this. I learned this from my mom. My dishes had spots and food particles in it without this stuff. If this doesn't work for you, well .... I don't know I'd be shocked.
  8. Yes I use that function as well. I was just saying a chatroom for conversation in real time if people wanted to. between groups. It was just an idea. If nobody sees the need for it, then that is fine as well.
  9. Yes just a slower form. I'm not saying get rid of the forum. Some people just might like to chat sometimes. 🤷‍♂️
  10. I think it would be cool to add a chatroom feature for informational purposes/support/friendly chat. Just an idea.
  11. My doctor wrote up restrictions for me. Initially the disability company claimed they had no restrictions form for my doctor to fill out. Now that my job has approved my absence, the disability company sent my doctor a restrictions form. The doctor wrote sitting or standing for extended periods of time will cause fainting. Also no bending or lifting because the potential to cause me to faint. The disability company STILL isn't accepting that. I received a letter in my email stating they received my restrictions and it's not enough to support my claim. They need restrictions and all doctor records from December first to present. Which isn't much because I'm pretty much waiting to see the autonomic dysfunction specialist. So I have another paycheck I won't be getting. That's 3 in a row and rent is coming up. I called them and asked why they need restrictions. They said they need the most up to date restrictions. I was like this is from Friday and covers me until I see my specialist on February 25th. Then he was like okay the restrictions should be good just to get them the doctor records. Which is basically a visit to my psychiatrist for my Xanax prescription refill. And I did take a CT scan on my adrenal glands. That's it. They are really trying to screw me. I have enough medical evidence already. I have creditors calling me. My policy for rent is if I don't have it by the 6th, they start the eviction process. And I don't need that on my record because I'm trying to buy a house this year. Wondering if I need to threaten them with legal action.
  12. Monday I had a near fainting spell at my wife's doctor appointment. 2 hours of sitting. Just a few minutes ago I put some clothes in the dryer. I was probably on my feet an hour or 2 today. So I put the last load in the dryer and start walking to the kitchen. Bam I feel the fainting coming on. I rushed to my bed. This terrifies me. Other than the dangers of hitting my head or something, how dangerous is fainting? It is so scary.
  13. Honestly I only drink coffee to get a boost. No matter the flavor or whatever. I'm a coffee rookie, BUT since September after my 3rd faint spell, I can't tolerate much caffeine anymore. It makes me feel sick and shake. Even too large of a Coke will have me messed up. I found this out by drinking a large Coke from McDonald's. I was so sick I missed one of my doctor's appointments. Then I tested the waters again, same result. Boo.
  14. Have you tried using rinse aid along with your dish washing liquid or pods? Makes all the difference for me. When I had a dishwasher that is. https://ship.kroger.com/p/051700369300/finish-jet-dry-rinse-aid-80?&cid=shp_adw_0000.ship.Delta+Ship+-+Dishwashing&gclid=EAIaIQobChMI-ObWnrj63wIVHP7jBx1f3ApREAQYASABEgK-YfD_BwE&gclsrc=aw.ds
  15. You ever thought about getting a dishwasher or one of those portable dish washers that you put on the countertop?
  16. I don't have a dishwasher in my house. I just attempted to wash dishes. My wife and step daughter went out of town so I'm alone. Started getting hot. Not one dish was washed. Feeling pretty sick now. Can ya relate?
  17. Wouldn't it be more be beneficial to go on disability? I'm out of work and I'm not so sure my PCP really understands how bad off I am. I'm waiting on her to write restrictions for me to continue my short term disability hoping she does the right thing. There's no way I can go back to my job in this condition. My job consists of standing and walking the whole day. I've fainted from sitting and standing. It's been hard for me to accept I might not be able to work anymore. My wife doesn't seem to think I'll be working anymore. Sorry that I don't have any tips. I'm new to this. But hey you aren't alone!
  18. Have I seen an autonomic specialist? Yes. I've only seen her once though. Waiting to see her again. She has me on mestinon to slow my heart rate down. She claimed it would heal my nervous system. So far, I'm still the same. I did a few tests that day I saw her. So far, Rocky mountain was detected in my blood work. She claimed it damaged my nervous system. I did a tilt table test. Laying down 81 standing up 126 BPM. My blood pressure was high in all positions but my heart rate changed. I did a 24 urine test but I don't know the results. The brain MRI came back pretty much normal. She showed me a graph of a person upright and how blood fails to reach the brain over time. Then she also said she doesn't think I need compression stockings. She just thinks my adrenaline is in overdrive. So that confused me. I've fainted and had several near fainting episodes. I know my adrenaline is in overdrive though. 
  19. Thank you for your response.
  20. She said that's what the mestinon is for. It slows my heart to a degree but I'm still in fight or flight mode most of the time. She claimed the mestinon would heal my nervous system. She was talking about how western medicine only treats symptoms. She said the word heal and of course I'm highly skeptical. And more so now since I see other people take it on here and still have issues. I also take Xanax. Not prescribed by her. It helps but not 100 percent. Monday I had a CT scan on my adrenal glands to see if I have any tumors on them. I don't think I'll have any. Anxiety has been a problem for me since childhood. It went into overdrive after I blacked out for the first time in Oct 2017. PTSD for sure. My wife would tell me nothing is wrong and sometimes people just faint. Everyday I would be like am I gonna faint am I gonna faint? I would see stars and feel pins and needles in my hands. Fast FWD to September 2018 and I had 2 near fainting spells within the same week including one at work which both resulted in ambulance rides. After the one at work, it was like I was broken. I haven't regained my strength. I was always exhausted everyday but now I experience so many other symptoms. And I've had a few more near fainting spells since including that one this week.
  21. Yes. I've only seen her once though. Waiting to see her again. She has me on mestinon to slow my heart rate down. She claimed it would heal my nervous system. So far, I'm still the same. I did a few tests that day I saw her. So far, Rocky mountain was detected in my blood work. She claimed it damaged my nervous system. I did a tilt table test. Laying down 81 standing up 126 BPM. My blood pressure was high in all positions but my heart rate changed. I did a 24 urine test but I don't know the results. The brain MRI came back pretty much normal. She showed me a graph of a person upright and how blood fails to reach the brain over time. Then she also said she doesn't think I need compression stockings. She just thinks my adrenaline is in overdrive. So that confused me. I've fainted and had several near fainting episodes. I know my adrenaline is in overdrive though.
  22. Hey Pistol. FYI you have been my MVP on this site with your help and knowledge. What is NCS or OH? I too am wondering what my condition could be as I don't think I've been diagnosed. My tilt table showed my heart rate jump up from 81 to 126. I had a near faint episode at my wife's doctor appointment yesterday(scary). Today I actually went grocery shopping with my wife. She was mad at me because I was rushing her. I'm explaining to her I don't know how long I'll last and I don't want to end up at the hospital. The last few sentences were random sorry. But yes what are those other conditions you mentioned?
  23. Do your arms turn red as well as your hands? Do your veins pop out?
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