Jump to content
Search In
  • More options...
Find results that contain...
Find results in...


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About jklass44

  • Rank
    Advanced Member

Profile Information

  • Gender
  • Location

Recent Profile Visitors

262 profile views
  1. Thanks @Pistol!! A stress test was one of the first things they did with me (and then another 5 times...) but I’ve never had the nuclear version of it. So are you saying that it’s basically just a noninvasive version of an angiogram? Because from what you’re describing they both diagnose/rule out very similar things, just with that added element of “exercise” on the stress test. Like if a physician found an abnormality on a regular stress test I’m wondering if next step would be a nuclear stress test or an angiogram... I guess it can depend on the patient as well. I’m always too curious on the “whys”!! If I’m not mistaken, you were diagnosed with Printz Metal angina from your heart cath? Were you symptomatic at that time or did they induce an attack?
  2. I’m just curious - why would a physician order a nuclear stress test versus something like an angiogram? They both visualize the heart and/or it’s vessels but what’s the difference diagnostically? Does it just have to do with blood flow vs visualizing the arteries?
  3. Yup. You can have blood pooling/fluid retention with kidney or heart issues too, not just POTS.
  4. I take Clonidine - for my BP - but it also knocks me out within 45 minutes of taking it (I have to be really careful with where I am/what I’m doing for my morning dose). Unfortunately it doesn’t keep me asleep. I try and go to bed and wake up at the same time everyday, but my sleep is very choppy - I wake up multiple times throughout the night either from sweating, because I have to pee or some other random thing. I don’t feel well rested come morning time, and much like MeganMN it is extremely hard to peel myself out of bed and I have to drag my body around for most of the day. Fatigue has been a huge symptom for me over the years and this is most likely part of it.
  5. @gossamer4448 From my understanding if you have an exaggerated increase in your HR upon standing PLUS other symptoms such as dizziness, fatigue, palpitations, etc. but then your HR comes back down within a few minutes, this may indicate something like IST. POTS and IST are both not very well understood, have very similar symptoms and therefore makes it easy to misdiagnose one as the other. That being said, I’ve also read that you can have both conditions at the same time.
  6. @potsiebarbie I know the feeling you describe very well. I still get it all the time, particularly if I’m reaching up to get something in the pantry or whatever. Oddly enough, I had about a dozen 24 holters and they rarely picked up anything, but my 4 week event monitor I had symptoms almost every day!! Definitely push the button if you feel something funky. Heck, even push it a few times when you don’t feel something because not every pvc/pac is felt!
  7. Dear @MeganMN - I am very sorry to hear about your added symptom of anxiety! It sounds like you're dealing with quite a lot all at once... I do agree with JimL that you may need to start taking things more on a day by day basis in order to lessen your symptoms from flaring up. I had to completely change the way I organized my life when my POTS was at it's worst. I've had to learn to be much more "spontaneous" with things now as I can't plan any sort of activities in advance anymore because I don't know how I'll wake up feeling that particular day. It may sound silly, but making that change had a huge impact on my life because I felt like I was changing a part of who I was. Making lifestyle changes, worsening symptoms and having to stop working for a while made me quite depressed so I have been seeing a therapist a few times per month. Everyone is different, but it has helped me tremendously in ways I never even thought of. My advice is to just take it easy, keep yourself surrounded by good friends and family, and have an activity (perhaps something you can do around the house as to not aggravate your symptoms) or hobby to keep you busy - something you enjoy that will make you feel satisfied or accomplished! When I was bedbound I always felt so useless and scrap-booking actually really helped alleviate some of those negative feelings. Good luck with your tests on Thursday - Communicate these feelings to your doctors too. It sounds like you have some good ones taking care of you.
  8. @fox in a box Hello! Yes I have had tinnitus in both my ears for many years - it is constant. Just recently within the last couple years I’ve developed bilateral pulsatile tinnitus as well but this one comes and goes. My primary doc tried a couple different meds that did absolutely nothing... I haven’t kept up with trying to find a cause/treatment just because I’ve had other symptoms take priority. As for tips, in the beginning I was able to drown the ringing out with some music or having a small fan by my nightstand. It doesn’t work anymore but I would suggest starting there!
  9. Have you ever been tested for IST, Lyme or Lupus? Some of the symptoms you describe can overlap with these conditions.
  10. I have this symptom all the time too and I usually attribute it to some sort of brain fog. It feels like my brain is just floating around in my head and it messes with my eyes as well - fuzzy spots, vibrating vision when I blink - it’s super annoying!!! Could be something with the inner ear, because I’ve had tinnitus/pulsatile tinnitus for years too. I haven’t found anything that relieves it, just have to let the episode pass. Anything help you?
  11. @ANCYThis is GREAT!! I love goats - they're so much fun to be around and they can be so silly!! Thank you for sharing
  12. This gave me a good chuckle - but it's SO TRUE!!! Such good advice to keep in our back pockets - take it easy and don't rush... So much easier said than done of course but one day at a time!!
  13. Well it sounds like they took it seriously enough to order the tests. Also, they wouldn’t have discharged you unless they felt it was safe to do so - this is good news! Do you take any meds for the RBBB? Hopefully your palpitations ease up now... Good luck with the follow up and be well.
  14. @potsiebarbie I’m sorry to hear you’re in the ER! Did you ask the doctor what exactly he thought was irregular about it? It’s good that they’re ordering some tests to be on the safe side... I’ve had similar experiences, both where the doctor said my rhythm sounded abnormal but the ECG didn’t pick up, and also where the ECG was abnormal but the doctor couldn’t hear anything. Usually palpitations are pretty benign, but they can definitely be scary if they happen often. I’ve found being on Ivabradine has helped lessen the frequency of my palpitations. Keep us updated!! Best wishes and feel better soon.
  15. Hmm that’s hard to say. Could definitely be a question for your doctor or pharmacist though. Have you tried different doses? Maybe you need something on top to help decrease your BP? Or perhaps these medications just aren’t for you? I think it all depends on each persons individual genetic makeup, or if there’s underlying conditions (for example MCAS). Dysautonomia patients are so incredibly unique and what works for one person most likely won’t work for another. I had to try numerous different beta blockers at crazy doses to finally realize that they were not the drug for me.
  • Create New...