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About Scout

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  1. My attacks are just like yours. I feel this odd sensation that it is starting (usually I noticed my breathing changing) and then my heart is already racing by then. I feel dizzy, nauseated, very shaky, with sharp chest pains. Sometimes my hearing goes funny, or my ears ring. Mine seem to last anywhere from a few minutes, up to 20 minutes or so (occasionally longer). And then there is the aftermath of having the shivers. My body seems to convulse uncontrollably (but I am fully conscious and aware of it). My teeth often chatter. Truly is a bizarre, terrifying experience, but I get slightly more used to it each time. Still find them incredibly hard, however, and am still seeking medication that actually works. Metoprolol seemed to make things worse after a while - and I suspect it is because my BP was dropping low, so my automatic nervous system malfunctioned and falsely tries to "raise" my BP - thus triggering an attack.
  2. Hi folks, This is very interesting as I am very similar. I can have both hypo and hyper-tension. I seem to have the hypertension more when I am sitting still, or sometimes it will wake me in the early morning, and it is high. I have to change how I am lying in bed and it "sorts out" - I seem to need to raise my head for some unknown reason, but that helps. Still perpetually baffled by it all - and seeking answers. But I hope we all find some respite very soon. Please keep us updated.
  3. Hi everyone, Thank you so much for taking the time to reply. They have all been very helpful. I will check out those particular threads, and links. Thanks again! It's also very interesting you folks bring up the RAAS. I have been thinking about whether that is an issue for me. If that is the case, is it possible that sometimes, my BP is low / normal? The past 2 days, I had normal BP. And now, suddenly, my diastolic is high again. I feel no different - not anxious or anything of the like. But I just feel the sudden "surge" is the best way I can explain it. And uncomfortable knowing, and then I check and, yep - diastolic is back up. Yesterday morning my reading was 112/73, which is obviously fine. But in the evening, it was 116/96. It is very odd, indeed. I saw my doctor, again - explaining how this happens. But no one is believing me. They are saying I am simply anxious and to move on. I have been trying to sort this out for months and months, and am getting tired of it. Should I push for a renin/aldosterone test? I have had my catecholamines checked - did a 24hr urine test, and that was within normal ranges. Thanks again for everyone who replied. I hope that, soon, I can get this sorted.
  4. Hi there, I will try and keep things succinct: I have had a POTS diagnosis for several years, and my symptoms were fairly well controlled with a beta blocker: metoprolol 25mg. I was taking this drug as needed / during bad flares, initially, but then started taking it everyday and did so for about a year. But one day, all of a sudden - it seemed like the meds weren't working, or were causing problems. I was having severe tachycardia at night when I went to bed, so my cardiologist told me to increase my dose. When I did that, I reacted very badly. I started shaking violently, my heart would race, and I could feel my BP surge. Normally, my BP was low, but since then, my diastolic has been quite high. Slowly, I came off the Metoprolol all together because it certainly seemed to be causing some havoc. Each time I took it, my BP would rise. This was several months ago, and I have seen a number of doctors - trying to get answers, but I am constantly told it's all in my head. Now, my diastolic BP is almost always in the 90s. My systolic seems to be fine, however. Just today, my BP was 108/91, and yesterday was 116/96. I've been informed that I have a narrow pulse pressure, which is abnormal. Sometimes my diastolic gets even higher out of the blue, and I can tell - because I get a specific kind of headache and overall uncomfortable feeling. I also have some other odd, new symptoms, such as: This "electric" / surge feeling which wakes me up, often in the early morning (always around 3 or 4am). It doesn't go away until I sit upright in my bed Shaking violently Chills Heat intolerance Frequent need to urinate (far more than usual) Low blood sugar symptoms (not a diabetic) Very short of breath Migraines Excessive sweating I did a urine test for adrenal masses, and that came back clear, so I have since been left with these symptoms, unsure of what to do / of what is happening. Doctors are brushing me off, telling me I am young and just not to worry about it. I wanted to know if anyone else has experienced these things, or similar things, and if so, what helped you? In two weeks, I am booked in to see my cardiologist again, so I will certainly speak with him and insist on further testing / new medication, or whatnot. Just feeling rather concerned and wanting some answers to try and stabilise my BP again, and minimise this troubling symptoms. Thank you so much for your time, and have a brilliant day. Scout.