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MissMermaid

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About MissMermaid

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  1. Thank you so much @ScottS, I appreciate all the info you have provided. i have been eating a boring diet and have not had bloating today, although the sternum pain comes and goes still. Will be happy when it goes for good. I hope it does anyway!
  2. Thank you all so much for your input and suggestions. I am so sorry that you all have to go through this. I’ve been at the end of my patience with it and yesterday I broke. It hurts so freaking bad. My sternum hurts. It burns on and off too so will up my nexium. Hard to relax and not think I’m having a heart attack the pain and bloating is so intense. @Pistol the cucumber water sounds delicious. I’m definitely going to try it 😊 thank you
  3. Does anyone here have gastroparesis? I have read that it is not uncommon among those with dysautonomia. I have complained on here about my stomach before and I hate to do it again but I am MISERABLE. This is taking a toll on my mental health. I am in severe pain every day. I’m bloated, I’m nauseous constantly, I dry heave throughout the day - I would love to vomit but never do. I have chest pain, back pain, I feel like I’ve swallowed a rock. Ive seen a gastroenterologist and she recommended I follow a low fodmap diet for a month and see how I go and then see her again in three months. The diet isn’t helping and I sure as h*** don’t want to live like this another three months. I haven’t been diagnosed with gastroparesis and would never self diagnose but I don’t know whats wrong and am desperate for support and answers. Can anyone here help me with personal gastroparesis stories? What helps you ect? Do my symptoms even sound like gastroparesis? I don’t know. I’m just sick and losing hope. Im so very miserable. I’ve gone to the er three times with this but just get nexium and sent home. Hope you are all well xx
  4. Welcome to the forum! I am also new here and this forum has been an amazing place of support and information. I hope you stick around. I can understand the stress and pressure on you for this test to be a positive. It definitely sounds like pots and am so happy to see you have figured out remedies to make your symptoms less severe and can do more with your life. I am hoping for a positive test for you. Try not to stress too much. Your body will do whatever it is going to do that day. I was in the same boat as you. Diagnosed with pots after fainting during a tilt table. Two years later I had a new cardiologist and since I was doing better he was adamant I did not have pots. There was no way I had it. Even I was *almost* convinced! He wanted to do a repeat tilt table to prove he was right. I was convinced this test would be negative and my diagnosis of pots would be taken away from me. A diagnosis which was also important for me to get help I needed. But I Started the test with a heart rate of 70bpm and ended the test fainting with a heart rate of 140bpm. So I hope you’re like me and your pots kicks in when it needs to. Although it feels weird to want that for you because as you know tachycardia and fainting doesn’t feel very nice at all. Haha. Can you request another test if your results are negative? Let us know how you go and feel free to message me any time. xxx
  5. Yes! I get this. Before I was diagnosed with pots I noticed this and didn’t think much of it. Sometimes when I get up of a morning by the time I get to the bathroom my heart is already beating hard enough to pulse my eyes along with it. Very odd feeling.
  6. I get these pvc like thumps in a row often too. Maybe a trip to the cardiologist soon for me too. They are not rapid though and do not make me feel breathless and dizzy. I have assumed they are just palpitations. I might get a few when I roll over in bed, stand up ect. Ugh. I dislike my potsy heart. Good luck @Scout and let us know how you get on. I hope it isn’t vtach. I agree A loop recorder would be worth asking for xx
  7. @jklass44 thank you so much for your support and encouragement. I will be seeking a new cardiologist! I have to advocate for my own health because no one else is going to do it for me.
  8. @Pistol I know what you mean. Anxiety and depression is the worst. I too get anxious about my symptoms. About fainting and being dizzy in public. Fainting at work is always a source of anxiety and embarrassment. And over thinking things. I know I don’t look sick so I don’t give myself a break in fear of just looking lazy. I don’t have a specialist. I do have a cardiologist but we do not get a long. I could request another I suppose but don’t want to be labeled a difficult patient. I think I need to be more proactive with my health. I will look into my options. Thank you for sharing, I definitely appreciate it
  9. @Pistol yes, anxiety and pvcs seem to go hand in hand for many many people. Sometimes they are a source of anxiety for me, others not so much. Depends on my current mental state. I think lately I’ve been a bit more stressed and unhappy due to never feeling good physically anymore. Feel like I’ve been in a flare up for six months. I’m sure I’m not the only one who’s chronic illness effects them mentally as well.
  10. @FileTrekker I’m sorry for your constant ectopics. They are annoying and hard to live with. Mine have been a lot more active than usual the last few days and I hate the anxiety they bring.
  11. I find they have no rhyme or reason to them. I can get a ton every day for weeks on end and then none but a few here and there for other weeks. They just come and go as they please. I try to keep up with my daily magnesium and electrolyte drinks as I need them for my pots. I don’t feel like I’ll ever be pvc free but am learning to live with them. I have no other choice but to really!
  12. @Sushi thank you so much for your reply. Will definitely look into this. Coconut water added to my diet would be a simple change so I might get onto that! 😊
  13. @bombsh3ll I do not take any medication to my knowledge that messes with my electrolytes although I have read that nexium and an anti depressant i take does deplete magnesium levels. My electrolyte blood tests have always been within normal range. I take magnesium daily. I believe it helps the frequency of them. I was in hospital not that long ago and I was given electrolytes and water intravenously and I did not have an ectopic for a whole week! Bliss. I am a stress head sadly and I know stress and anxiety does not help them. Have always been curious if this is common among dysautonomia sufferers. Take care 😊
  14. Ectopic beats are awful and would not wish them on anyone but it’s always nice to feel like you aren’t alone
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