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RecipeForDisaster

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Topics posted by RecipeForDisaster

  1.  

    Pounding heart... what has worked?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 2,151 views
  2.  

    SFN not a good enough diagnosis to get IVIG ? 1 2 3

    By RecipeForDisaster, in Dysautonomia Discussion

    • 57 replies
    • 1,553 views
  3.  

    New meds (LDN and Adderall), tracheomalacia...

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 1,538 views
  4.  

    TTT results back, no follow up? And update

    By RecipeForDisaster, in Dysautonomia Discussion

    • 16 replies
    • 1,445 views
  5.  

    Getting access to care

    By RecipeForDisaster, in Dysautonomia Discussion

    • 8 replies
    • 1,428 views
  6.  

    Doing worse. Ideas?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 16 replies
    • 1,421 views
  7.  

    New and looking for diagnosis/treatment

    By RecipeForDisaster, in Dysautonomia Discussion

    • 5 replies
    • 1,320 views
  8.  

    Tips for first rheumatologist visit? 1 2

    By RecipeForDisaster, in Dysautonomia Discussion

    • 25 replies
    • 1,236 views
  9.  

    Lots of testing--others' experiences?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 7 replies
    • 1,074 views
  10.  

    Acebutolol?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 10 replies
    • 997 views
  11.  

    OMG. $2k surprise bill for TTT which wasn't even done right!

    By RecipeForDisaster, in Dysautonomia Discussion

    • 6 replies
    • 984 views
  12.  

    Finally a bit of a diagnosis

    By RecipeForDisaster, in Dysautonomia Discussion

    • 21 replies
    • 912 views
  13.  

    Starting metoprolol and TTT is Tuesday

    By RecipeForDisaster, in Dysautonomia Discussion

    • 1 reply
    • 883 views
  14.  

    Galantamine?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 9 replies
    • 853 views
  15.  

    Ideas for things to get now that I met my out of pocket max?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 24 replies
    • 846 views
  16.  

    Finally scared.... or is this from too much blood drawn?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 844 views
  17.  

    Starting home fluids and lupus question

    By RecipeForDisaster, in Dysautonomia Discussion

    • 14 replies
    • 822 views
  18.  

    Misleading TTT? Now positive ANA

    By RecipeForDisaster, in Dysautonomia Discussion

    • 11 replies
    • 801 views
  19.  

    Mail order IV hydration

    By RecipeForDisaster, in Dysautonomia Discussion

    • 12 replies
    • 686 views
  20.  

    HYCH, anyone?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 9 replies
    • 581 views
  21.  

    Weird one! Cervical collar causing dizziness , weird vision...?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 7 replies
    • 570 views
  22.  

    Transcutaneous vagal nerve stimulation

    By RecipeForDisaster, in Dysautonomia Discussion

    • 1 reply
    • 568 views
  23.  

    Alternative compression-SCDs, EECP?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 8 replies
    • 529 views
  24.  

    Neck collar for suspected craniocervical instability?

    By RecipeForDisaster, in Dysautonomia Discussion

    • 2 replies
    • 493 views
  25.  

    IL10 and FGFR3

    By RecipeForDisaster, in Dysautonomia Discussion

    • 2 replies
    • 416 views
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