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  1. Has anyone been diagnosed with lupus anticoagulant as a cause of their POTS
  2. Thank you very much for your replies and concern. My daughter does not seem to be struggling with the pollen. She actually hasnt tried Motrin, so we will give it a try. She doesnt really tolerate meds very well which is making it very hard to get any relief. She also has a swollen lymph node in her armpit. She will be getting an ultrasound for this, but we are thinking it could be part of the POTS.
  3. Hi everyone, Hope you are feeling okay. I was wondering is anyone having a really hard time with their symptoms right now? I was wondering if it could be the change in seasons. My daughter is really suffering especially with body pain and very frequent adrenaline rushes. Does anyone have severe muscle pain and if so what do you take to help with the pain. Tylenol is not cutting it.
  4. Thank you all for your replies. Is there anything medicine way that helps and does it accompany adrenaline rushes.
  5. Is there anyone that experiences nightly adrenaline rushes and swelling and redness of their extremities? Computer work and thinking seem to make it worse. Help!!! Any suggestions would be appreciated.
  6. My daughter gets the same way. She is very irritable and angry. She can feel the anger starting but can't stop the feeling. It makes her really upset and sad because she used to be a very sweet person.
  7. We r seeing my daughter's neurologist on Wednesday and wondering what type of doctor is needed to diagnose EDS? For anyone who has it, is there a lot of pain associated with the hypermobility type? Do you have skin elasticity and scarring. My daughter does have the hypermobility issues but not sure about the elasticity. How were you all diagnosed?
  8. Thank you for your replys. The reason I mentioned this was because I just found out there were many homes in our development that have water/mold problems and mine is one of them. I thiught i had read something about a correlation with POTS and mold. I will mention this to my daughters doctor bc as of yet we have not found the cause of my daughters POTS.
  9. Hi all, i hope the holiday sesson finds everyone happy and able to bear their pain to celebrate with family and friends. I was wondering if there is anyone or anything documented that has found mold to be a cause or exacerbation of symptoms of POTS?
  10. Sorry to hear ur struggling. Hang in there. My daughter is having the same problems. We never know from day to day how good or bad she is going to feel. It is a very disheartening illness and one I would not wish on my worst enemy. Try to find solace in the things that make you happy in life. Try to push yourself to stay connected to family and friends. Now is when you need them the most. Sending prayers that tomorrow is a better day.
  11. Thank you for the info. I hope your daughters are feeling ok. Thank goodness they have a mom who takes care of them and is an advocate for their health care. God bless you all
  12. Can you tell me how your EDS was diagnosed and by what kind of doctor? Please explain your symptoms.
  13. I live near Philadelphia and could not find an autonomic specialist for my daughter. We drive to Maryland. There is a Dr. Rudnick in Flemington, NJ. I heard he is very good and we are waiting to see him in December for a second opinion. Good luck. I hope this info helps.
  14. Thank you all for responding. We feel they are adrenaline rushes just minus the sweating. I asked her neurologist to check her catecholamines but he said he couldnt bc no one does it correctly.
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