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Everything posted by Bigskyfam
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V8
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. Jane CB LisabTexas Dee Wyzredwlf Austin12384 Ebrahimi Sean82 Kpflma Sophiab123 Dalton Caresserose Norwood2422 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Positive first appointment with POTS consultant
Bigskyfam replied to dancer65's topic in Dysautonomia Discussion
Hope! All the best I have to give!!! -
Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone Flamingo Girl Maw2map Kari918 Goodr189 Vickylou81 mechammoss kiscica Tredart Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Adrenaline Rushes and Extremity Discoloration
Bigskyfam replied to db2504's topic in Dysautonomia Discussion
I get swelling, redness and warmth in my feet and or hands at random times sometimes just one side. I'm not on meds. If it's my feet I elevate them. Usually it lasts 20-3O min. No explanation has been given :/ sorry. I hope others can chime in! -
Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. hungarian.male potsaleena Starburst Imagine 2009 angelltheangel David1979 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Same here. Bloating. Most chalk it up to salt and fluids, gi doc said slow gi system...worse around cycles... Better when I'm at a lower altitude
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. belovedcari kazubelg Giftbearer sbilbro Kai Worstcase 84 duveduve bea_rou dm1016417 jendaisybee Draven Thesuzie Mrose89 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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We all have em! Share em and help this girl out. Hit a rough patch after the holidays like so many and while I'm waiting to thaw out from winter I've been trying new things! Crockpot meals have been a healthy, time saver and easy on the budget since I'm no longer working. Turbo twisty... Yes the as seen in tv towel for your hair. It's lightweight and perfect for the days I shower but just can't dry my hair And the funny one... My kids did the grocery shopping and got string cheese with trivia to keep my mind sharp. Haha. Anyway, here's to spring!!!
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Sorry guys for the delay. Rough patch... If anyone understands it's you guys! Thanks for being there!!!
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone. jeanlit abizzle229 BethanyP VaibhavBaj45 DawnPatrol DizzyChick Jlbarr5 MyDysautonomia mtnlovingmom ashyea MommaHelen Cowboy Rose11 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Pregnancy With Unstable Blood Pressure
Bigskyfam replied to andreak's topic in Dysautonomia Discussion
Nothing personal to offer. Glad she has family support and agreed... Phone consult might be a good plan. I've thought about that for my daughter as she's showing signs of pots All my best! -
How are the antibiotics treating you? Round of applause for doc and high five for you
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HR I do like the activity sleep and such Hr isn't terribly accurate but has caught two rounds of svt
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone Bentley Btarmstr Bieds snow4fun divinelixir sassyred Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Disability. Anyone Have To See A Psychologist?
Bigskyfam replied to Kris4444's topic in Dysautonomia Discussion
1st time. 4 months still pending -
Disability. Anyone Have To See A Psychologist?
Bigskyfam replied to Kris4444's topic in Dysautonomia Discussion
Yes. Mine is pending -
As Needed Treatments For Anxiety Feelings
Bigskyfam replied to lewis's topic in Dysautonomia Discussion
I saw improvement with diffusing lavender. However most scents especially 100%pure oils seem to be too much for my system. One drop of a mild essential oil in an entire container of water in a diffuser helped. Benefitted My dog as well as he was uncomfortable with cancer before he died. -
Interesting. I wonder how reliable it is. I know when I go thru the er they draw labs and say yup you are hydrated enough. Give me fluids anyway because of my history and standing order from my doc. I typically feel better afterwards.
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone HaveGoals EAGamma mammy59 Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone RobinB Hello Darling JustaSpark Lynet23 Rah Valy LaRu Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam
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Cardiac Arrhythmias/pots In Women
Bigskyfam replied to artsystacey's topic in Dysautonomia Discussion
This is me too a t! Pots, svt, mennorhagia, failed mirena iud. Ocp gave me headaches and I'm over 35. -
How are you feeling now? Did you go in to be seen? I have days like that where it will fluctuate and I don't feel well. I'm not on a bb
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Greetings to our newest DINET community members. My sincerest apologies if I've missed anyone Lorona lisag katyroq Although I've only been here for two years, I've learned a lot, not only about my condition but of the determination, caring and knowledgable nature of this community. Support beyond belief! This forum serves folks from around the world in different time zones. It's great knowing I'm not the only one awake when my family is sleeping and I can't. I'm sure by evening you will see quite a few comments under this post with people saying hello. In the meantime if you have any questions let us know. Visit our DINET page and Facebook page as well. Bigskyfam