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dkd

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About dkd

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  1. I don't really have any answer, but I had the same thing happen to me. I also have shortness of breath and chest pressure. Had a PFT at my primary care's office and it "suggested neuromuscular disease due to air trapping". And the follow up PFT at a pulmonologist's office was normal!! I have had cardio workups (stress tests) and they tell me my heart is fine. So, I just live with it and have pretty much given up on doctors
  2. I take a heart selective beta (betaxolol). Maybe you could switch to one of those and not get the shortness of breath issues? When I started on bb's my doc said he had a list he'd go down until we found one that worked for me. I tried two other ones before I settled on betaxolol. I also take a small dose (5mg). So maybe ask him to try a diff't bb (cardiac selective) or try a smaller dose?
  3. I don't know what that means, other than you should have a workup by a cardiologist/electrophysiologist.
  4. I was thinking about higher salt food also--pickles, cheese, and pretzels. Does she like those?
  5. Remember those school projects where you make a volcano with baking soda and vinegar? I wonder if it would cause your stomach to "erupt" when the bicarb hits your stomach acid?? Hopefully not
  6. You should definitely get your heart checked out to be sure that it is ok. When I get these feelings, I try to control my breathing and I just repeat in my head "you are ok, you are not going to die, stay calm" and I just breathe through it. It took me a few times to realize that I'm not going to die though and I did panic. It's hard to not panic when you feel like that. It takes some practice. Best wishes!!
  7. The above link is one section of the book. This link has the whole book http://www.ndrf.org/NDRFHandbook.htm
  8. I think you should call your doctor or the ER where you had it done
  9. This thread peaked my curiosity about ivabradine, so I checked my insurance costs: it would cost me $369 per month for 5mg 2xday!! I'll have to stick with my bb
  10. I tried three different bb's before I settled on betaxolol. Atenolol and acebutolol (sp?) made me more tired and dropped my bp too low. My doc said he had a list and we'd try them all till I found one that I was happy with. I still am tired but it's tolerable. I've been taking it for three years now. Everybody's different in how they respond, so really the only way to know is to try them out. Good luck
  11. I've had weird face/head sensations off an on for the last 4 years. I noticed it was really bad again the last two days. I kind of blamed it on the weather. A front came through here yesterday and today it's better. It was like the muscles under my scalp were tightening up and scalp was tingling. Sometimes I get a weird stabbing pain also. Like I'm being poked with a pin in the head.
  12. I associate eyelid droopiness with myasthenia gravis. Have you been tested for that? I don't have that, but I have the head pressure I was checked for MG, and it was negative.
  13. I have been taking a mg supplement that is just mg oxide 250mg, and I asked my cardiologist if it was ok. He thought that dosage was alright, but too much can lower your blood pressure. A quick google found this from webmd: Signs of a magnesium overdose can include nausea, diarrhea, low blood pressure, muscle weakness, and fatigue. At very high doses, magnesium can be fatal.
  14. I have had this in the past, but not so often now (a year or so later). I was in the shower once and it tightened up so bad I could not stand up straight. I mentioned it to a pulmonologist but got no explanation (like most of my symptoms). When I happens I just try to stretch my arms overhead and breathe slowly and try to relax.....or lie down and stretch my arms overhead.
  15. I feel like mine is muscular. I had an abnormal pulmonary test once that said "suggestive of neuromuscular disease" and then I went to a consultant neurologist and he didn't think that I have anything neuromuscular. I still wonder about it though.
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