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dkd

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Everything posted by dkd

  1. Hi all, I started a new bb (metoprolol 25 mg extended release) in early July after being off of them for a year and I am having muscle and joint pain especially in my legs ( knees, hips, quads). When i get up from a chair I feel like I'm 80 yrs old (I'm 58 btw). I'm not sure if it's from the bb or from some ticks bites I got at the end of June. I have an appointment to see my primary care in a couple of weeks but I just thought I'd ask if anyone else noticed muscle soreness/joint stiffness from bb's? Thanks 😊
  2. I don't know how an EKG would show the status of your sodium and potassium. Maybe they were speculating?? Blood test is the only way to know.
  3. Haha. Thanks I needed that πŸ˜„
  4. Thanks everyone. I actually own 3 and I'm trying to figure out which one would be the most beneficial. One goes from top of hip bones to ribs (6.25 inches). It's a little uncomfortable because it sticks into my ribs. One is shorter and goes from hip bones to just over my belly button, not all the way to the ribs. And the most recent the Dr recommended is actually a lower back brace but covers the mid to lower abdomen also (it's the 3 belt adjustable kind). I guess I just need to figure out which one I will actually wear! I was mainly wondering if it needed to be higher or was wearing it lower okay. Thanks again!
  5. Hi all, I hope this isn't a stupid question but where do you place your abdominal binder? Do you wear it below, at or above your belly button? I don't know if it should be higher or lower on the abdomen?? Close to the hip bones or more toward your ribs? Thanks
  6. Thanks! I'll ask about itπŸ™‚
  7. Thank you for sharing your opinion. πŸ™‚
  8. Hi all, My EP retired last year and I had to see a "regular" cardiologist in the group. My EP diagnosed me by tilt table with NCS in 2013. I have been on a beta blocker for about 10 yrs and midodrine just once in the morning. I had been feeling okay, just tired a lot and having some pre-syncope episodes while driving (mostly while driving on the interstate). I am able to work. I just feel like crap a lot of the time when I'm there. A lot of my work is standing and it's a stressful job at times also (heart rate over 100 most of the time I'm working). But, I am able to work and am thankful for that because I know a lot of people here can't. So, my new cardiologist took me off the beta blocker and midodrine so I've been meds free for almost a year now. She thought the beta blocker was causing low blood pressure and causing my problems. I asked her about the pre-syncope while driving and she didn't have an answer so she referred me to Vanderbilt. I've been waiting almost a year for this appointment and I'm struggling with insurance to see if they are going to pay for the testing and Dr visit. So, my question is: has anyone been to Vanderbilt recently and has it really helped? I'm thinking they're just going to go through all of the stuff I already know: increase salt, increase fluids, wear compression, exercise. I just have a gut feeling that this is going to be a big waste of money and I'm still not going to be able to drive on the interstate
  9. I don't really have any answer, but I had the same thing happen to me. I also have shortness of breath and chest pressure. Had a PFT at my primary care's office and it "suggested neuromuscular disease due to air trapping". And the follow up PFT at a pulmonologist's office was normal!! I have had cardio workups (stress tests) and they tell me my heart is fine. So, I just live with it and have pretty much given up on doctors
  10. I take a heart selective beta (betaxolol). Maybe you could switch to one of those and not get the shortness of breath issues? When I started on bb's my doc said he had a list he'd go down until we found one that worked for me. I tried two other ones before I settled on betaxolol. I also take a small dose (5mg). So maybe ask him to try a diff't bb (cardiac selective) or try a smaller dose?
  11. I don't know what that means, other than you should have a workup by a cardiologist/electrophysiologist.
  12. I was thinking about higher salt food also--pickles, cheese, and pretzels. Does she like those?
  13. Remember those school projects where you make a volcano with baking soda and vinegar? I wonder if it would cause your stomach to "erupt" when the bicarb hits your stomach acid?? Hopefully not
  14. You should definitely get your heart checked out to be sure that it is ok. When I get these feelings, I try to control my breathing and I just repeat in my head "you are ok, you are not going to die, stay calm" and I just breathe through it. It took me a few times to realize that I'm not going to die though and I did panic. It's hard to not panic when you feel like that. It takes some practice. Best wishes!!
  15. The above link is one section of the book. This link has the whole book http://www.ndrf.org/NDRFHandbook.htm
  16. I think you should call your doctor or the ER where you had it done
  17. This thread peaked my curiosity about ivabradine, so I checked my insurance costs: it would cost me $369 per month for 5mg 2xday!! I'll have to stick with my bb
  18. I tried three different bb's before I settled on betaxolol. Atenolol and acebutolol (sp?) made me more tired and dropped my bp too low. My doc said he had a list and we'd try them all till I found one that I was happy with. I still am tired but it's tolerable. I've been taking it for three years now. Everybody's different in how they respond, so really the only way to know is to try them out. Good luck
  19. I've had weird face/head sensations off an on for the last 4 years. I noticed it was really bad again the last two days. I kind of blamed it on the weather. A front came through here yesterday and today it's better. It was like the muscles under my scalp were tightening up and scalp was tingling. Sometimes I get a weird stabbing pain also. Like I'm being poked with a pin in the head.
  20. I associate eyelid droopiness with myasthenia gravis. Have you been tested for that? I don't have that, but I have the head pressure I was checked for MG, and it was negative.
  21. I have been taking a mg supplement that is just mg oxide 250mg, and I asked my cardiologist if it was ok. He thought that dosage was alright, but too much can lower your blood pressure. A quick google found this from webmd: Signs of a magnesium overdose can include nausea, diarrhea, low blood pressure, muscle weakness, and fatigue. At very high doses, magnesium can be fatal.
  22. I have had this in the past, but not so often now (a year or so later). I was in the shower once and it tightened up so bad I could not stand up straight. I mentioned it to a pulmonologist but got no explanation (like most of my symptoms). When I happens I just try to stretch my arms overhead and breathe slowly and try to relax.....or lie down and stretch my arms overhead.
  23. I feel like mine is muscular. I had an abnormal pulmonary test once that said "suggestive of neuromuscular disease" and then I went to a consultant neurologist and he didn't think that I have anything neuromuscular. I still wonder about it though.
  24. I have something similar--if I get choked, like when you drink something and it goes down the wrong way, and I start coughing, my throat will close and I can't get a breath. It's very scary!! I can rise both arms over my head and try to relax and usually by the third attempt to breathe, I can get a breath. I have no idea why this happens and I'm not sure if I've ever mentioned it to a doctor. I have a feeling in my throat, like a pressure/tightness, that's there most of the time that I'm standing and sometimes when I'm sitting. I have brought that up to doctors but have not gotten any explanation for it.
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