little_blue_jay

What an awful experience! I think I am much worse on Bisoprolol than I was before too, I am on a low dose and I get slow heart rates that scare me even though my doctor says I'm nowhere close to a high dose that would do anything bad.. I also am getting insomnia from it, I haven't slept in 2 full days.. You said your effects were getting worse, how are you doing now?

Well I just tried it a few hours ago, and not only did it not help me fall asleep like my doctor said it should, I'm dizzy, kinda groggy, my mouth and even nasal passages are so dry it's almost feeling hard to breathe from dryness. Drinking plenty of water to counter it.. and peeing like crazy. After a couple hours my whole body is feeling wired, like a vibration feeling like I'm plugged into a socket, which I was already dealing with this sensation already from my ANS being stuck in fight or but now it's worse. I don't think this is for me. Glad it's working for you.

I read a few posts here where some had nasty responses to Clonidine, but some also mentioned hearing of others doing well with it (hearsay of hearsay?) I'm about to try starting it today & would like to hear others' success stories with it 😊

This is me to a Tee!! I just had side effects from low dose Metoprolol, and just got a prescription for Clonidine. Very nervous to try it.. Did you ever try the Clonidine, and did it help or how did you react?

I'm still having a bad flare ever since this event.. Now I'm beginning to wonder/worry that being startled like this did something traumatic to my brain/ANS and I've got PTSD from it.. Anyone heard of PTSD causing POTS symptoms?

It's not that I think I'm having a heart attack while it's racing... it's more that my nervous system feels so "wired" and on edge, and that my heart rate varies so wildly from one minute to the next, and I can feel like I'm plugged into a wall socket, internal shakiness, jittery, etc that I'm afraid whatever is dysregulating my ANS is just going to cause a heart attack, just from being so dysregulated/out of sync.. I see my doctor Wednesday (assuming I can get there, last time I had to make it a phone appointment) so I'll ask him more about this..

That's reassuring, thank you! I think I've come across that article a long time ago.. I don't have a specialist. I had a cardiologist at one point after the first time I got covid as it exacerbated my POTS, but at some point I improved and he said he didn't need to see me anymore.. I don't get given saline at the ER.. and I really don't think we have those medi-spas here (Canada) , not that I've heard of anyway..

Are you still having this? Are you able to sleep in a recliner as opposed to lying flat? If it's reflux that might help.. just a thought.

Do you still get this? Did you find anything to alleviate it?

I've been in a bad flare for weeks. Went to the ER last Wednesday, 2 EKGs normal, 2 troponin tests normal, all other blood work normal, chest xray normal. Just doing so awful, I feel wired for sound. Slightest thing like the fireworks earlier making things worse even though I knew I'd be hearing them.. It's almost a feeling of being on the verge of a nervous breakdown, just due to feeling so awful, tachycardia from going to the washroom etc and of course anxiety being a symptom of this h*ll so it perpetuates a vicious circle... (And the day after I went to the ER I was better, was able to wash my hair, bathe, wash dishes, appetite was a little better. Coincidence?!) Anyway has anyone ever heard of someone having a heart attack from POTS? I thought the body always tries to reach homeostasis/balance..

Well that's good news! Glad for you! But not for me lol I'm only 47, my mother was still menstruating at 53 so I've potentially got years of this left before I get relief 😅

Is this product still working for you? If so, how often do you use it, and have you a link to the item please?

Do you still get these severe crashes every couple years? Did you ever identify any trigger(s)?

I'm glad yours is subsiding. And thank you. 😊

I'm in a bad flare right now. It seemed to start Nov 11th after being badly startled by cannonfire at a Remembrance Day event.. I caught covid Dec 10th and it exacerbated it badly as well, been downhill since. I just came home from the ER after a trip there.. by BP was 135/80 then came down to my usual 109ish.. they ran several EKG, troponin, etc and said everything was fine, follow up with my doctor, etc.