Angela

yeah, that lady, she is a patient and hasn't come up with anything "published" and don't have much positive to say about her except "Hugs" and "watch out for the snake oil drs" (paranoid/close minded/greedy?) even according to my neuro her overall theory didn't make sense and he is pretty open to checking things out. but yet ccsvi is something to look into as so many similar symptoms we have with peeps with ms etc. he was open to looking at that well, if this get's edited than i will come up with a sweeter explanation of why not on board with her.

also worry about a genetic component.

my pregnancy didn't cause my pots, i had mild indications for at least 8 years prior. i wouldn't trade my son for anything, getting pots if that was the case. i still work, but I have really bad days where i feel like I can't pull thru. my son wants a little sister he told me today, not sure i could handle that with work and all and don't want my illness 2 get worse let alone I am on clozenapam and you CANT get pregnant taking that, like most meds we all are on.

yeah my mri in 2011 showed nothing my mri in 2012 showed devious anomolie (sp) it's kinda like ccsvi in your head with the veins and all. they call it looking like medusa head ha ha.

weli i guess. i believe in ginger tho. check out trader joes or sprouts. there both close by.

what about sleepwalking? I started that around the same time my first pots flare. have been doing it lately again too. Maybe just me tho

drinking ginger "ale" right now! just sounded good and then I read this post. So where do you get ginger beer? never heard of it but worth a try!

seriously, how many of us/u were air bombed.

so essentially they are saying that gf can cause pots. thats what a "expert" neuro explanation was with, ww2 victims are showing up with ptsd so many years later. i feel like thats ****, we are not (well not most) going thru that i think. so everyone with trauma are going to have ptsd/gf/pots. whatever

******* good for you and your finances. sorry so many people made you feel like you dont still have a life.

odd in a good way?

f yeah jalepeno poppers! i loved the zuchinii stuffed. sorry man that u feel like ****. oh well, love u bro but had those days def.

the diner newsletter ha ha!

yes. i think there is something to this. my sis has ms and her symptoms are not so severe as mine with pots. stress triggers her illness, and everyone knows that ms can kill you - in some studies linked with ccsvi. every major stresser she experiences makes her brain cog worse. sounds like pots without the vital issues, yeah? but, i know I am not up to speed now and I think the lack of oxygen is a permanent issue.

mornings ****, then sometimes i have a 1:00 (p.m.) - 2:00 (p.m.) crash adrenal stuff or tired/dizzy. not on bb's

oops, just realized i was referring to magnesium deficient, slightly different but seems to be satisfied by the same food group, for the most part.

i tested mag deficient even tho i was taking extra mag supplements. this I was told by neuro, not dr. F. Since going to F I have stopped all mag supps. and am not more fatigued, been 2 months so far. and hair and nails growing fine, don't feel the worse for it. Just saying.

so hey Rama, what's your opinion on pots and seizures. simple focal or full blown. do you think it could be related or just a happenstance.

hess yeah issie!

well, that was sweet relax86. makes me feel a tiny bit better of a ****** day.

no haven't heard but i'm curious LOL couldn't resist:)

as far as licorice goes, i read that it increases fertility. so what kind of licorice doesn't do that? I can't have another little one at this point, on clozenapam

dana, i had green and red but they weren't exactly streaks, trying to explain, more like someone took a marker and made a constellation of 2 or 3 connect the dots crooked but in a line, not a shape. the colors kept flashing from green to red. this was during the day. i was on the front porch reading one night (dark except for porch lite)and had flashes of different colors of light in my head, and felt a shaking sensation like my head was shaking so hard, i don't know if it really was. I tried to tell my bf right next to me but couldn't find the words, it only lasted maybe a minute i believe at best. he wasn't paying attention so didn't notice anything.

how funny, i was just talking about potsville to someone the other day. and I agree about differences of opinions, even the neuro's (4 so far) I have seen disagree on eeg's and seizure like symptoms/explanations etc.

hey dana, it wasn't my recent worst flare but I think I have what you describe in a sense, like a blob in your eye and it only affected one eye at a time too. I actually had to drive to work covering one eye so I could visualize things almost correctly, that's why they suspected a vein clot in my neck?. came back negative tho plus i have perfect vision.? that symptom went away when my flare subsided and second bad flare seems to be streaks of color or floaters, mostlytho. in the dark, occassional flashing lights thru both major flares