imre

I think that a lot of peoples adult lives regardless of health issues are a series of failures and false starts. That is just how people learn and gain experience. You were brave to take the risk and unfortunately things did not work out for you the way you would have liked. It seems like you are picking yourself up from this let down and trying something else. Who knows? Maybe you will find something better and more suitable in your future.

Not sure if this is true but computers and devices have different types of light than car head lights. Maybe having a red hue on your screen will help. I believe blue light disrupts sleep patterns. Try using f.lux it's a program that makes your screen more red.

This is really a tough survey to make comparisons with. I think exercise takes us a while to get adapted to exercise. So maybe those seeing benefits have been exercising for longer see more benefits as well. If anybody has the time maybe add questions "how long have you been exercising?" and "How many times a week do you exercise?"

Exercise is good for you, it helps you cope with physical stresses of real life, which are exacerbated for us with POTS. As long as your doctor allows it, there is nothing wrong with exercising. For POTS especially I have found that cardio (running, biking etc) are good as well as strength training of legs and core. I think this is also the recommended exercises for people with POTS. It can be hard to exercise and some have post-exertional fatigue, although it gets better once you start to get in shape.

What is the mmHg tightness of these? They look good and more comfy than hose.

Dreaming means rem sleep which causes increased heart rate, for us this may trigger other symptoms hence the waking up this happens to me almost every night especially when I am stressed. It ***** but just another thing we have to deal with.

Wonder if this has any long term effects we should know about?

Thanks good advice everybody. I haven't been doing much exercise but I'm definitely feeling better. Unfortunately my school semester is tailing off so there is not much of a break there. I'm making sure I get plenty of sleep though. Thanks again for sharing your experiences.

I had mono recently, the symptoms started a little over a month ago and lasted for about three weeks. Needless to say this was awful and keeping up with normal life was really difficult. I have been feeling better for about two weeks but still feel a bit of the post mono malaise along with the usual tiredness and symptoms from POTS. One concern I have is that my weekly exercise routine was helping my POTS symptoms. Now with mono my doctor told me not to exercise for at least three weeks, after feeling better. (This was about a week and a half ago). I am fully prepared to follow this advice, but also, I am wondering if there is any special way to ease back into exercise so I don't over do it? I have heard stories of people developing CFS after mono because they have overtrained. Any advice on mono experiences would be much appreciated. Thanks.

Thanks everyone!

I believe rem sleep causes tachycardia, and sometimes I wake up from dreams with tachycardia which is uncomfortable. Anybody else experience anything like this? Also, taking a low dose of propranolol at night seems to help.

I use 30 -40 mmHg thigh highs, they are a bit more comfortable than the full hose in my opinion. I think compression helps stop pooling so any type of firm compression should help I believe.

I use Nuun tablets, they are sugar free. Probably better for your teeth. Full of electrolytes.

I'm pre-med with POTS too. My advice would be to make sure you stay on top of course work. It might seem obvious, but it is better to do a little work on days you are sick than to cram, which may cause stress and worsen symptoms. Also, I think there is definitely an adjustment period in which you must get used to the new environment and stress of school. I think eventually you get fairly adjusted and become more comfortable sitting through classes, dealing with the stress of exams and balancing a social life. Good luck.

I love to hear news like this and am very happy that you are doing better.

I've woken up at night feeling symptomatic, although possibly not the exact symptoms you described. I think beta blockers have this effect sometimes. I can't explain why. I know that for pots a low dose beta blocker is recommended, as it has been shown that high doses can cause symptom exacerbation. Either way, ask your doc see what they say.

Sometimes, when I work on new muscle groups or do new exercises I have a bad day or two afterwards. I think overall exercise does help, even if you have some setbacks, at least that's my feeling.

Thanks for the advice Rosey. I am on a beta blocker and it is long acting. My doctor has told me I could stop taking it if I wanted to. I might give weaning off a shot. Do you know what exactly it is that makes the beta blocker do this, did your doctor give you any reason?

Rosey, I am on a beta blocker, nadalol. Did your problem go away after you dropped the beta blocker?

So, is there anything you can do if your catacholmines are high? Also, I read just the abstract of the alpha delta sleep syndrome for CFS, and it is possible that my problem is anxiety/stress related. I've been under a lot of stress the past couple months when this all began. Thanks for the help so far guys.

I have been jolted awake by pots symptoms at 5:30-6 am every day for no apparent reason. Sometimes this is fine as I try to get to bed by ten. But, If I get to bed any later and wake up it leaves me feeling extremely tired the next day. Anybody experience this type of symptom?

I have 30-40 mmHg stockings; they work well for me.

Thanks for the responses.

I've been having a POTS flare up for two days now and was wondering what, if anything is the best way to treat the flareup? Also, how long does a flare usually last?

Snow and rain bring about a change in barometric pressure your veins may not have the same pressure on them as they are used to. Summer heat might cause vasodilation. Cold weather can constrict veins but causes discomfort and possibly raises blood pressure. Basically, POTS is best in warm but not too hot, not raining conditions.