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About CarrieJessica

  • Birthday 12/26/1975

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  1. Do you happen to have Dr. Thompson's number? The one I found online has been disconnected. I was a patient of Dr. Cecil Coghlan's and I went symptom free for yrs until a few months ago. My POTS is back with a vengeance and P'cola is only an hour away. It will be Dec before I can get into University of AL @B'ham again. Thank you

  2. My insurance approved a power wheelchair. Mine does recline some. I love it! I'm so much more included with my family. I can go down every lane at the grocery store, I can take the dog for a walk even though I live on a hill, and things like baseball games or going to the zoo are doable instead of planned without me. I absolutely love my wheelchair and I never thought I'd feel that way.
  3. I just came home from my Mayo trip. I saw Neurology, Autonomic Clinic. This appointment was less than an hour. I will say if you have the mindset of going for an opinion I'd say go for it. I went with expectations and was very disappointed. It was strange and confirmed that I am more than happy with Dr Randy Thompson in Pensacola.
  4. I have a port and receive 6 to 8 liters of saline a week and 2 of them are infused with vitamins. I went in thinking IV therapy would be the fix it button, it hasn't been. I will say I pass out less frequently and that in itself keeps me doing IV therapy but I am still fatigued, have an irregular heart rate, tachy and bradycardia, gastroparesis etc.. I think if you have had IV therapy and it works for you a port is the way to go for the long term. I wish I had been more realistic with my expectations. Here is a blog post from my first week with my port. http://justmildlymedicated.com/injectable-power-port-for-iv-therapy-to-treat-dysautonomia/ and a follow up a month in http://justmildlymedicated.com/injectable-power-port-to-treat-dysautonomia-the-first-month/
  5. I watched a swallow test online after my doc saying we might do one. I still am a bit blurry on what it diagnosis and what the treatment options would be :/
  6. I am going in march and will see Dr Benorroch
  7. So glad you are surrounded by medical professionals who understand POTs. Keep posting
  8. Hey guys and girls! I wanted to let you know a few Dysautonomia bloggers have been nominated for WEGO Health Activist awards! If you'd like to know who's been nominated you can look here: Just Mildly Medicated Living with Bob If you know any others let me know! Thanks, Carrie (The Just Mildly Medicated gal)
  9. I just shared it on my blogs FB page also, hope to get more peeps there.
  10. I knew I recognized the name Hanice! As far as new we confirmed gastroparesis with the gastric empty study. Not thrilled about that one (at all).
  11. I did recently find Lets Feel Better too. A good gastroparesis blog I found is G.N.E. and GP
  12. Thanks Alex!! I did write about getting diagnosed on JustMildlyMedicated.com and found a few blogs that are worth following like G.N.E. with GP Off to check out the links you shared! Carrie
  13. Just got the diagnosis of gastroparesis, it wasn't a big shock as I was told it was likely. I've looked up some diet options but am always open to tips from others. How do you manage gastroparesis? Links and blogs welcome! Carrie
  14. YES YES YES It starts like the chills, sometimes I think "Maybe its just the chills this time" but it lasts longer and get stronger. Sometimes its just an arm or leg others its full body. I am so tired afterwards too. I have talked about it with my doc and he thinks it maybe something my body does in "panic mode" when I might otherwise pass out. or pass out again after already having passed out. I've gotten a few recorded to show my doc, they are here http://www.youtube.com/channel/UC-IxocQFB3xwKAAfTNmNr7Q
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