tachyfor50years

http://www.autonomicneuroscience.com/article/S1566-0702(12)00230-5/abstract

Robert, Thank you very much for this great expression: ( my entire body experiences time passing slower than my mind is).

Good job Lemonsin2lemonade and Naomispellman. I will add the following but not sure if they are POTS related: 1. Extreme reaction to Flu shots 2. No deep sleep (stage 4) 3. Feeling detached from surroundings 4. Narrowing of upright pulse pressure 5. Feeling full quickly and poor appetite 6. Popping in neck or dislocating or pulling a muscle with the slightest movement. 7. Very fast pulsations sensations (Vibrating) in my whole body. (Not my pulse) 8. Excessive thirst or not feeling thirsty at all. 9. Regarding local or general anesthetics, very slow acting and extremely slow recovering. 10.Temperature, wind, humidity and Barometric pressure, all play a role in how I feel.

SpinnyC, Here are some links, you may find an answer to your question: http://www.dailymail.co.uk/health/article-2140993/Why-poor-blood-flow-giving-funny-turns.html?ito=feeds-newsxml http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1860656/ http://jap.physiology.org/content/85/3/1113.full.pdf

I resently told my Dr. about those feelings, he right a way used it against me, he said : (see, I told you, you have anxiety and panic attack). I wish if he and other doctors knew that ( anxiety in patients with POTS is caused by biological rather than psychological factors).

I am a post-menopausal woman with extreme presyncope symptoms, Atrial Fibrillation, severe SVTs, MVP, Hypoglycemia, unstable BP, severe Migraine Headaches, Arthritis in my back, knee and upper shoulder and bone spur in my feet and disk. Living in 5,183 ft above sea level. Exersice? No thank you!

Firewatcher, What a great thought and thread! I loved your bright idea about sending your (standard) four page medical history to your Doctors.

Can I just say all of the above? plus I get short term of (complete confusion) whenever I travel by air.

Chaos, Thank you for the links, appreciate it.

You know you have POTS when a policeman stops you, you pray not to be asked to "walk the line" because you know you will fail due to your poor balance (eventhough you are sober)!

The first time I had a concussion was at age 5, as I have had mentioned before, it took more than 4 decades to get a diagnose, long, bitter, hard and painful road!

Thank you every one. You guys are amazing. Batik, I really would like to know what is the difference between ME and CFC because I was diagnosed with CFS in the past. ramakentesh, Are you a doctor or a researcher? you sound greater than all my doctors! Have a great weekend everybody.

http://www.mayoclinic.org/news2013-rst/7379.html

I don't have a small heart but I have pots & I don't have autonomic failure but I have autonomic dysfunction. http://heartdisease.about.com/b/2012/03/08/the-pots-controversy-continued-dr-levine-responds.htm

You are welcome Hope. HyperPOTS8, you think that I have not done that yet? for some reason he doesn't get it!, I switched to 6 other PC Dr.s but they were worse than him, so I went back to him just like a lost child returning to his dad! ! ! derekliz, I have (hyperadrenergic POTS as well.

http://jap.physiology.org/content/102/3/896.full#ref-list-1

Dear Corina, Hope and all of you guys! Thanks for this safe haven on Earth! this forum is my life saver!

Hi all, Here is an article for those with CFS: http://blogs.bmj.com/bmj/2013/04/24/rhys-davies-chronic-frustrating-syndrome/?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+bmj%2Fblogs+%28Latest+BMJ+blogs%29&g=widget_default

Don't know what (POTS) is? Visit http://www.dinet.org/

After 2 trips to the ER, many blood tests and a visit to my PCP, doctors confirmed that all my symptoms were side effects from the Cortisone shot that I was given. One of the doctors told me that I am one in a million regarding that severe reaction. Thanks for all your replies.

http://www.vtcfids.org/whywelose.html

Kim, That is why I wrote (7 years a go), because that was the last time when I had had my flu shot and - just like you -will never have it a gain.

How a bout: (if you don't see it, does not mean I am healthy)

1) A Flu shot, 7 years a go. 2) A Cortisone shot, few days a go. In both cases, I suffered from blurry vision, high fever (105), sleeping for more than 11 hours, loss of appetite, vomitting and other symptoms. I really don't know if those were reactions to the shots or simply the shots weakend my immune system. Anybody else? and I just wonder if it has to do with POTS.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2810453/pdf/GRP2009-701019.pdf