tachyfor50years

http://bmjopen.bmj.com/content/3/6/e002999.short

Thank you dear for your update. Forgive me for not knowing, where is this Dr.? I can very much relate to your 31 years of waiting, hope he will solve the puzzle for you. Take care.

If I don't take enough salt I would faint in a heart beat! but it always makes my hands and feet swell up (no rings, no shoes) but I don't know if it is the salt or my kidneys. One unusual thing about me is: I can't tolerate plain water, it makes me sick to my stomach, I mean (bottled spring water, distilled water, tap water, and smart water); it has to be juice, herbal tea or gatorade.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3368269/

http://www.hulu.com/watch/268761

Batik, My pulse pressure is always less than 40, most of the time is 20. This is from Mayo: The numeric difference between your systolic and diastolic blood pressure is called your pulse pressure. For example, if your resting blood pressure is 120/80 millimeters of mercury (mm Hg), your pulse pressure is 40 — which is considered a normal and healthy pulse pressure. A high pulse pressure may be a strong predictor of heart problems, especially for older adults. Generally, a pulse pressure greater than 40 mm Hg is abnormal. A pulse pressure lower than 40 may mean you have poor heart function, while a higher pulse pressure may mean your heart's valves are leaky (valve regurgitation). http://www.mayoclinic.com/health/pulse-pressure/AN00968 also: http://www.pdiconnect.com/content/30/3/265.full Hope these will help.

http://www.southwestiowanews.com/shenandoah/news/local_news/nhs-senior-diagnosed-with-rare-pots-disorder/article_fd941bb0-8812-11e2-8488-0019bb2963f4.html

In the past, I was misdiagnosed with Anxiety & Depression, the meds I was taking for years, made me worse and lived like a zombie! NO MORE ANTIDEPRESSANTS FOR ME UNTIL I DIE (PROMISS). Where did they come up with that age range?????and with no exceptions???? ( 20 and 40 years ), I got this when I was only 5 years old and here I am after 5 decades, getting worse. I am an evidence, I can prove them wrong!

Thank you every one for your input. The other day I was at the Dr.'s, it was before noon (my worst time in the day) I barely made it to his office, I was having a very bad episode of presyncope with extreme weakness, my vitals were almost normal or borderline except for my tachy (106 bpm), I appeared OK for them, but, I really wanted to scream at the entire medical group: [WHY you can't see what is going on in my barely a live body? Why are you using the same medical standards with me? I am not a typical patient having an illness, I have Dysautonomia. I am really sad (Not from Anxiety or Depression as you think) but from playing this game for 50 years].

I experienced Chest pain with shortness of breath for the first time when I was only 5 years old, my dad took me to ER then to our family Dr., they told him that I am a perfectly healthy child and nothing is wrong with me (I wish)! My poor dad never gave up, for many years he took me to many Dr.s,as he himself was suffering from 3 types of Dysautonomia; he left this world, never got an answer neither for himself nor for me. For many many years, I thought that every human being is like me and my dad! Because I grew up and witnessed pain, fatigue, tachycardia, shortness of breath and other symptoms. For half a century, I have been suffering from chest pain especially in the mornings, lasting for 1-3 hours; one time I was given Nitro which made my heart rate worse and gave me a very bad headache. It is so sad that I am going nowhere with my condition and treatment, I am just getting worse. Please don't be discouraged reading my sad story, because: 1) I am an old woman. 2) I have many other health issues beside Dysautonomia. Warm hugs to all of you.

I am really sorry bebe127 to hear that, my son has a lot of my symptoms, but he has not been diagnosed with it yet.

Unlike many patients, my father and brother both had had POTS but not a single female except me!

If you could ask scientists to study any research related to POTS, what would you ask them to study? I would ask them to focus on the causes of feeling faint (presyncope) despite normal vitals (heart rhythm, BP, temperature etc). perhaps (hypovolemia) ?

Achilles2323, Thank you for giving me the green light to yield to your poll! I am just like you, considering going to one of them, but none of them is close to where I live.

I can't vote because I haven't been to any of them, but I really want to know 2 things about those clinics or centers: 1) How long do they usually keep the POTS patient as an outpatient? 2) Do they redo the tests that you already have done? like TTT? I am sorry, I don't mean to hijack your poll, but I see my 2 concerns related to those places. Thanks in advance.

http://www.translational-medicine.com/content/11/1/93/abstract

Shakey, Corina, Kim, Joann and Relax, Thank you so much for your kind replies, you really made me feel better. I did not go to the ER, but went to my PCP who told me that I was in Afib, having a pinched nerve, severe Vitamin D deficiency, sinus conjestion and Myofascial pain syndrome.

I woke up this morning with a severe muscle pull in my upper shoulder,intense migraine, nausea, difficulty breathing, extreme weakness on my left side, occasional irregular heartbeats and severe mental fog (confusion& disorientation). BP is normal, no new medication, the muscle pull is from opening a stubborn window at home! I am sad but not even able to cry to release some tension. It is Sunday, I really don't know what to do, my brain is betraying me, I can't make a decision, I cant' think right because of the excruciating pain, the agonizing loneliness and I feel helpless because nobody understands what I am going through; My husband told me to stay in bed and relax!, I called my neighbor, she is out of town. I really don't want to call an ambulance to be thought as nuts! I feel sick by all means yet I don't dare to call my Dr. because it is not the 1st time feeling like that. Any input would be appreciated

No injury, but since I am getting worse, I have been using a (walker with a seat) whenever I go shopping, so I can sit right a way whenever I feel not OK; For me, it is better than a wheelchair.

Naomi, I can't thank you enough for this great project. It is excellent and perfect. Thank you one more time!

Yes, same here.

Wonderful. Thanks.

http://www.ncbi.nlm.nih.gov/pubmed/23580201