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lieze

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Everything posted by lieze

  1. I'm on the "only foods my body will tolerate" diet but odd yes I seem to be improving a bit on this. Not sure why for me what is happening with other foods? But please don't blast me for any of these foods because it is all I'm able to eat : ( Banana- I eat about two per day. Canned pears- I eat a slice or two per day. Plain vanilla yogurt-a couple spoons full per day. Boiled egg- 1 to 2 per day Pork chop- up to 1/2 per day Lamb chops -up to 2 per day Potato chips-I cannot eat any other fruit or veggie, plain potatoes give me a anaphylactic response-chips I can tolerate due to maybe the protein being broken down when it is prepared? Milk-about five glasses per day These are the only foods I can currently tolerate. I really need to try more but the results are terrifying if I get one that doesn't agree.
  2. I had really strange head sensations in the beginning. I was scared to ask about any kind of brain scan...afraid of what was going on in there based on how it felt. I finally had a CT scan of the head a couple months ago and I was so relieved that it was normal,
  3. Katy I'm a slow learner but I just realized about a week ago that I was reacting to the temperature of my food. I have to wait until it cools down to room temp and then eat or I really suffer. I'm not sure if this is an issue for you or not or would help but I thought I would mention it.
  4. Well our SPO2's are not always normal. And blood gasses definitely aren't after exertion. It could be a hypersensitivity like everything else. We may be getting blood flow but our bodies do not recognize it and therefore send out messages and start initiating maneuvers that are not necessary only perceived by a faulty system. Also I think that I've read that during anxiety attacks there is a displacement of O2 to CO2 due to some of the chemicals released into the bloodstream which causes some of the symptoms of lightheadedness and disorientation. Our bodies just seem to struggle to maintain balance and seem to have a tendency to go into crisis mode when there maybe isn't a reason to be in that mode in the first place.
  5. I have a friend with severe anxiety symptoms. They have had bouts of anxiety on and off for years and have found themselves in a severe state at this time that has them debilitated. They have had a full stomach work up but the doctors found nothing. I wanted to ask if anyone has a suggestion preferably natural as my friend prefers to not take meds for dealing with severe nausea and stomach pain. I guess I shouldn't speak for this friend and limit suggestions-it's just if you can think of anything natural it might be preferable.
  6. I'm not sure it's that simple and also I don't think that every time we get triggered we would die if we weren't. I think our bodies get thrown into episodes and many of them are overreactions to what is actually going on-if that makes sense. So I don't think that all of my episodes are saving me from death or that it is that extreme.
  7. You can just apply online and get the process going. And then you may get calls asking for additional information but honestly it hasn't been that difficult. I think I just stressed on it more than anything.
  8. I need to get some myself. The noise the kids make gets to me at times. They are usually just playing-just being kids but with my oversensitivity it gets me worked up really irritated and I can get into a migraine state from it and just really really on edge. I often then feel so irritable when my husband comes in I really let him have it. I know it doesn't sound fair at all. I haven't been able to help it and he takes off so much ( he needs too ) but I feel then I am left with the noise and trying to deal with it. I should get ear plugs and see if it helps a little. I tried talking to him and he just gets defensive and yells at me. I realize some of this is my frustration from not being able to manage the four children on my own ( not necessarily his fault ) I guess what I'm thinking is some of this is out of our control. We cannot entirely control these situations. So we need to look for whatever means we can to help us cope. I think I'll try plugs.
  9. I think weakness is one of my biggest barriers.
  10. I want to thank YOU Alicia because I totally get where you are at. My husband does many things to help that most likely get overlooked and under appreciated by me simply because I feel so sick and need so much help. Just being where we are is frustrating enough to bring out the anger. I'm sure my family does care it just never seems like enough for ME. My biggest issue is I just want to be whole again and not need any of this help. Thank you for helping me to see that about myself. My heart goes out to you Alicia. Know we are here and we care always and get it in a way that people who have not suffered with these issues will never understand.
  11. I was going to see if I could get into Dr. Grubb for the following reasons. I don't think he'll require extensive testing. I can just go over my symptoms and get a diagnosis I'm thinking. And I think he will write for me that I am not able to work with this condition whereas my other doctors are really clueless. I am going to hit my doctor up with the request for disability tags. It has the potential of being a big confrontation regarding where my activity level of ability really is. She does not seem to acknowledge that I have a limitation.
  12. I applied mid July and just got my first denial. Their response was even though I can't sit or stand for prolonged periods without experiencing tachycardia shortness of breath and chest pain they felt I could work in some capacity. I did not hqve good support from medical providers so yes that is something I would like to pursue.
  13. Digital baby grand wow I need to google that. Well I don't have any big plans like that I was just hoping it might help pay for medical bills or something.
  14. Yes I actually contacted an attorney before I filed to see if I had a case. They"ve called to check twice and said they'd be getting back to me the first of the year. It is good to know there is help out there.
  15. Since I can do nothing about this most likely until after the holidays this is a bit frustrating. Obviously I will appeal. The idea of having all of that work ahead of me is overwhelming. I hope I can mentally put all of that on the back burner and really enjoy the holiday with my family. Of all days to get that....
  16. I prefer not to spend any time entertaining worries like this. I do not believe there is anything we can do to prevent it And I think spending time worrying about all of the what if's most likely takes enjoyment out of life.
  17. I didn't read it that way at all. I think he is still looking for issues there. Your reflex responses are not indicative of a psychological issue-I don't think.
  18. A good response might be, Thanks Wow I'll take that as a compliment and just keep on going. I think I had to learn the hard way that you can't worry about what people think.
  19. I had the same feelings Naomi and did the walk by wishing thing for a long time. How I felt was so wonderful to have mobility that it overrode any feelings of shame. Very much well worth it.
  20. Okay What I did to compensate the last year was go to drug stores. They are so expensive. A couple dollars more per item sometimes, Well it got me by I don't mean to complain but it's not logical. If I can go to walmart if I am healthy enough to sit and ride the scooter why pay more money just so that I can be on my feet. It is illogical for me. The parking thing I need to do next. I might see if my hubby will take me while he's off for Christmas break both to the BMV and my doc to get it signed. She has no clue how disabled I am this is gonna be another indication to her that I am not as okay as I may appear at any given moment.
  21. I think our trannies are worn out!!!! You know how when you're trying to learn to drive a stick and you're jerking and stalling all the way up the street? Well it's kind of what our bodies are doing just trying to go through normal body processes. It's nuts!
  22. Guess what me too to everything you posted in your intro. I never had a tilt. I don't know that it would do any good besides provide a record. I don't think you have to do anything you don't want to. And I am so sorry that you lost your mother.
  23. I finally worked up my nerve to ask for a scooter. I went late at night about 9 when I usually see about 3 lined up and also aisles aren't heavily crowded. It's so fast!!! It made me feel more normal because that was the speed I was used to doing things at. It made me functional I totally loved it and feel in my case m hang ups were actually holding me back. Well I have to be honest though this summer I was to weak for even that so? But I loved it. I maybe issuing a statement about it on Facebook so friends and family won't be shocked if they see me and I am on a scooter.
  24. I had mine tested for that reason and it was normal but that does not mean that my body isn't oversensitive to it. I do so much better in the evening when cortisol levels are supposed to be lower.
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