Nikki

I have an Omron too. It always seems to pick up my heart rate but my blood pressure fluctuates a lot..So when I'm standing, a lot of time it gives me an error.

It happens to me if I'm on too long. Sitting up especially. Right now I'm on my laptop though, and my head has been feeling funny for the past half hour. I do have vestibular migraines though, so I don't know if that is the reason and then it sets off other symptoms or what.

Laying down it can be anywhere from 65-99. Sitting up is basically the same as laying for me, usually. Standing is usually around 112. Mine fluctuates a lot though, as does my blood pressure. A few days ago I was sitting and felt my heart racing and it was around 135. The highest was on the tilt table and that was 180 beats per minute.

Yup, it happens to me too. When this first started happening to me I would always be walking a ton or something and feel really dizzy when I stopped. Of course people would always tell me to sit or at least stay still - moving couldn't possibly help! But, it did..and it does. So you're not the only one!

Lol! Very true.

I have them too. I think it's just cause (for me, anyways) a lot of the time simple things take so much out of me..and it just shows. I never got them this often or this bad before POTS.

I feel the same way. People who are close to be know about it, and I'm fine with some people finding out if I know them well but for example - when I'm in a store with my dad or something and he's talking to someone he knows, he'll (out of concern, I know) ask if I'm doing alright if we're standing and talking awhile I just feel like ugh why did you have to ask me that while people are standing right with us. I know there's nothing to be ashamed of, really..but I still don't go around talking about it unless something happens where I need to explain myself I guess lol.

I also have migraines. That's another problem I have, I don't know what is making me dizzy. If it's the migraines or POTS. I only get vestibular ones as well..Very rarely get a headache. Years ago I had dizziness (I hit my head and that's when the dizziness started)..but I was still able to go out and do things. I felt lightheaded and got tired easily..but I would go for long hikes with my dad, go to auctions and stuff where I'd be walking a ton and even though I felt a little..off, it wasn't enough to stop me from doing things. This past year the dizziness has been terrible. It just feels like I'm on a boat or something, constantly..So any walking, or just being the in car for any length of time is very difficult on me. So I'm thinking maybe before it was just migraines or something from hitting my head that was making me dizzy. Now I think I'm worse because I'm dealing with POTS on top of how I used to be. Has anyone ever been dizzy for a very long amount of time and then it eventually cleared up? Like for me, it's been about a year where I've been pretty much sticking close to home because of how I feel. I miss getting out and doing things..It just feels like I'm never going to be able to do the things (even simple things) I used to love doing..I don't know if that's a negative way of looking at it or just a realistic one. Anyone else ever feel this way? Did it get better?

This is very encouraging. Thanks for sharing!

Wow, well I hate to hear that everyone else experiences this too, but it makes me feel like it could just all be POTS related and that something else isn't wrong as well. I've really had so many tests done that all came back fine except the tilt table. So hopefully if they get some of my symptoms under control, this constant dizziness will eventually go away some!

My blood pressure is also low while laying now. Usually in the 90/65 range. It very rarely goes over 100 unless I'm having a good day. I'm dizzy while I'm laying down too, so I think that might be why. My doctor said my blood pressure should be normal and my symptoms should go away when I lay down because there is no gravity? That doesn't seem to be the case with me though..so I honestly have no idea what to think. :-/ It does happen though.

I'm newly diagnosed with POTS and I've been a vegetarian for almost 2 years now..After my family telling me I should be eating meat (over and over again) I asked my family doctor if this could be making my symptoms worse and she said as long as I'm not a vegan, I'm still getting calcium and other nutrients that I need. I've had blood work done and no one ever mentioned me having any sort of deficiency so I'm guessing I'm okay? I'm not exactly sure what foods help symptoms or make them worse..but I was just wondering if there are any another vegetarians/vegans here, or what peoples opinions are on being one while dealing with POTS.

Thanks for the responses! I was diagnosed with POTs a little over a month ago but my symptoms have been the worse within the last year, almost to the point where it is hard for me to do anything. I've also been diagnosed with migraines, so I think that on top of POTS is just way too much for my system to deal with..I've always been a little dizzy (I also hit my head many years ago) but before this past year, I was still able to go out and do things. Now it seems nearly impossible. :-/ I have been to an ENT, and had my ears checked, the VNG testing done (with air), he sent me to another ENT who gave me a ABR test which was fine and also had a CT scan done of my ears which was also, fine. So I really think my ears are okay. The last ENT sent me to the heart and vascular group I've been seeing now, who diagnosed me with POTS. Maisie - I'm sorry to hear you have lots of dizziness too. It's so difficult to deal with. I guess we just gotta hang in there!

Yes, I know exactly how you feel..I'm dizzy normally and I'm dealing with extra symptoms today. Yesterday I had to be in the car for 3 hours to get to a doctor (which car rides never go well for me because of the dizziness) and it's just a lot of stress..I guess my only suggestion would be to rest when this happens. It eventually seems to get a little better anyway. I hope you're doing okay.

I was just at the doctor's yesterday and told him that even when I'm laying down, I'm still dizzy. Of course it's not as bad as when I'm up and moving around - but laying down doesn't make it go completely away. He said with POTs, I should feel okay when I'm laying down. I've read multiple places online that in some cases, you can still have symptoms even while being completely still. Does anyone else experience this or heard of it happening? I don't really know what to believe after the doctor appointment.

I've been on a low dose of Florinef (along with a beta blocker) for a little over a month now. It honestly doesn't really seem to do anything for me..The nurse said it should do something within 3-4 weeks if it's going to. I go back to the doctor in a few days so I don't know if they'll keep me on it longer, or what.

Does anyone else have this problem? I experience a lot of dizziness (especially lately, I don't know why..) and when it's this bad any quick head movements make me worse..Car rides are difficult..It just seems like I have days where any quick movements really throw me off. Does this make sense?

Right now I'm taking 5mg of Pindolol a day (half in the morning, half at night). I've been on it for about a month and I'm honestly not sure what to think. The past week has been really rough with me being dizzy..My blood pressure seems to be lower than usual but I don't know if it's from the pills or if I'm just going through another bad time..I guess anything will work differently for different people.

I hope that you have a good Thanksgiving too..I hope you feel better soon!

I can't work right now. With POTS I experience a lot of dizziness. My days are just so unpredictable, it would be hard for me to hold any kind of job.

I feel the same way! Shopping is so exhausting. I always leave feeling super dizzy and tired..It really is a workout lol. At least you got your dresses though!

I think I have both hot and cold intolerance..Especially if there's a quick change from one to the other. For example, in the summer when I'm outside, and then go into an air conditioned room - I'll get lightheaded and dizzy from that. Same thing happens when it's the other way around as well.

I don't stutter, but I definitely shake when I'm going through a rough time.

Yup, the same thing happens to me. My dizziness gets so much worse around my period.

Well, for me I think it's on the lower side lately. I've been starting to keep track of it and on my good days it's usually in the 100's/80 (at least). I'm both newly diagnosed and new to the boards. I've had problems with dizziness for a long time..I hit my head when I was 12 and since then, the dizzy spells would come and go..but I'd have good days in between for weeks or even months at a time. Within the last year it's been almost everyday, and recently the dizziness has gotten worse and is almost constant. I had the tilt table done a month ago and the doctor said he thinks that the majority of my problems is coming from the POTS and whatever dizziness is left over after treating the POTS, I'll have to go back to my neurologist for since he thinks some is also caused from hitting my head. I complained so much about the dizziness I had years ago, and I look back and think what was I complaining about because it's so much worse now. I've been taking Pindolol and FlorineF both for about a month now. I don't know how long they would take to kick in..Or if they can be making me worse..Or if it's just a really bad time for me..I'm pretty much clueless at this point.