sandy

Boy can I relate. I have suffered with anxiety and adrenaline rushes all my life. Even the phone ringing can set off a major adrenaline rush. It's scary and very uncomfortable. My doctor told me that my ANS is overactive. So it is in constant flight or fight mode. I do get brakes every once in awhile, where I don't get as many rushes. But I always know that they can pop up at any time.

I too was diagnosed with sinus tachycardia, and bigeminy premature atrial contractions. I deal with tachy while standing, sitting, laying down, sleeping. It doe snot matter what posture I am in. It's been better lately, although I never know when I will be hit with it.

I have dealt with the exact symptom you described for years. I must say it has been better, but for awhile I really thought I was going to suffocate. I was so breathless that I could not even talk. The minute I would get out of bed I would feel like my chest would not expand. I would struggle to take a breath, and the only relief I would get is if i would yawn. But that relief would only lasted for a few minutes. Then it was back to fighting for a breath. Eventually that symptom subsided and another one appeared. I have heard that BB's do cause shortness of breath. I was on them when the breathlessness first started, and I am still on them to date ( about 16 years to date). Hopefully you will feel some relief soon. Hang in there...

Hi Jennifer, Sometimes it helps to just come to the forum and vent. It helps to have support and understanding from others. I can sympathize with you. I have been plagued by anxiety all my life. Then it got worse once I started getting palpatations when I turned 19. I was suffering with panic attacks on a daily basis. Could not stop them no matter what I did. Now at 35 I have a handle on them, but also with the help of meds. It has not been easy, but I try to always think positive. Hope you get relief soon...........

Hi, Sorry to hear you are having problems breathing. I too had and still have times when I am so breathless I can not even carry a conversation. I was so bad at one point that I could not even get out of bed because the minute I would stand I was completely breathless. I saw Dr Grubb and he explained to me that it is all apart of my nervous system not working properly. Remember our ANS controls every autonomic function in our bodies. Our diaphram which controls how deeply we breath may not be relaxing, which in turn will make it hard for you to take a deep satisfying breath. Or your lungs may not be expanding to capacity. It's something that can not be diagnosed properly, which makes it very frustrating for all of us suffering with any form of dysautonomia. My breathing ability has gotten better, and hopefully it will for you as well.

I too must answer yes to all the symptoms you experience. However I was diagnosed with mitral valve prolapse syndrome by 2 doctors, and Pots by another. Whatever my diagnosis it is a form of dysautonomia one way or another. People with MVPS tend to have high amounts of adrenaline flowing through their veins. I was always a worrier and dealt with anxiety all my life on top of my other MVPS symptoms. Palpatations being my most annoying. There are a few books around that really explain the different aspects of dysautonomia.

I too get very cold after eating a meal. It could be 90 degrees and soon after I finish eating I get cold and yes goosebumpy. I can not tolerate even the slightest bit of colder weather. And living in NY we know it gets very cold a good part of the year. Just the other day the humidity dropped down and I was cold while everyone else was loving the beautiful temps. But as far as eating goes I too always get very cold afterwards. Don't really know what that's about, or why that happens it just does..

Hi cathy. I know and understand how frustrating it can be to be so sick and just keep hearing from the doctors that there is nothing they can do. Been dealing with this all my life in one form or another. Went to all different doctors where I live, and even traveled out of state quite a few time to specialists to get some answer. Even saw Dr Grubb. He is wonderful and explains alot about the condition but I still was left without a solution. I am on 2 different meds to control symptoms, but I really don't think there will ever be a cure. When you are dealing with an autonomic dysfunction there is just so much that can be done. Having people that can relate, and knowing that I am not alone has really helped me.

I am from good old New York. really don't like the cold weather. I have a very hard time staying warm in the winter. My hands and feet become white and numb from lack of circulation. I like the warmer weather much better. My husband and I are planning to move to Florida in around 6 or 7 years.. Really looking forward to getting away from the cold and snow..

Hi Susie, I am going through the exact same thing you are. I have been at my job for 6 months and when I first started there my boss was never there. Now she is there everyday and the stress level is out of hand. I love my job and my coworkers, but my employer is very domineering and at times just outright mean to her employees. I am not one for challenging her or giving it back to her so i suffer in silence. I come home to my husband and unload on him. He has stated to me time and time again that if I don't say anything to my boss then she will just get worse and I will end up blowing up on her all at once. I can feel myself burning up more and more everytime she gets on one of us. I love what I do (which is working with animals) and I love my coworkers but I often question myself if it's worth me coming home so stressed everyday. I can only give you my husbands advice to me which is sit your boss down and talk to him or her and explain what you are feeling.Hopefully I will do the same before things get really out of control.. Good Luck

That's the story of my life.. Up, Down, Up, Down, I feel like a yo yo.. Sometimes I have energy and I am ready to conquer the world and then there are times I just want to crawl into bed and sleep the whole day. I must say after a days work I am shot and can barely even make a meal. My husband does not understand why I come home so fatigued, and it kills me cause I want to be awake and alert but instead I just plop on the couch and relax. Oh well story of my life

Thank You so much for all the advice.. I have been searching on the internet for holistic therapies. I went to a high end holistic store and spoke to one of the reps and was given three different remedies to take.. So I am now taking D-Mannose which is known to cure 90% of all UTI's. I am also taking a high dose of Cranberry extract and Emergen C (which is Vitamin C). It's odd how I don't feel any symptoms at this point. I just felt it yesterday morning and then saw blood. I told my doctor I am very sensitive to meds but he said don't worry you'll be fine.. Cipro stimulates the Central Nervous System which where my main problem is so I am really hoping that this holistic approach works.. Again thank you for all the info...

Hi Everyone.. I have a dilemma and I am not sure what i should do. I have been having weird symptoms when I urinate and yesterday I had blood in my urine.. So I went to the doctor today and he took urine and said it is probably a UTI.. I have never had one before and am very nervous cause he wants me to take the antibiotic Cipro.. I looked up the side effects and am petrified to attemp to take it.. My body is so sensitive to meds and now I have to take something that is hard on the central nervous system. I am thinking of trying a holistic approach. IK just don't want this infection to get worse and spread to my kidneys.. Any ideas or suggestions would be so appreciated. I am going to the health food store now to see what I can find...

I'm known as the jumpy queen. I jump and get scared over every little noise, and I am so sensitive in the car with other people driving. I drive people crazy while they are driving cause I always feel like other people get to close to us or like we are going to hit something.. It's annoying for me and for the people I am driving with.. I have such a sensitivity to sounds and sudden motions. I work in a spa and salon for dogs and evertime I am working on an animal and he flinches it sends me to the moon. I have all my coworkers laughing at me.. It's relly pretty funny...

Hi and Welcome... I can remember even as a child dealing with mild symptoms that progressed as I got older. I started with palpatations and dizziness at age 19 and with each passing year a new symptom showed up.. I am now 35 and must say I am able to function to the best of my ability on a daily basis. I do work full time and exercise 3 times a week.. It's rough at times but I try my best to keep strong and focused on not allowing this condition to beat me...

I can not begin to tell you how bad I experienced those episodes a few years back.. I would experience a weird disorienting feeling and then a rush of severe heat would rush from my feet to my head. My heart would begin to pound and race uncontrollably and I would feel the urge to vomit. I would have severe diarrhea and was left so fatigued. This would last for about 1 hour and then leave me feeling very ill the whole day.. Always happened at night when I would awaken from a sleep. I went to Dr Grubb and was told it was hyperaderengic POTS (MVPS). my body over produses adrenaline and over reacts to it.. Very uncomfortable feeling... Hope you feel better fast

I can hear and feel my heart beating throughout my whole body.. When I lay in bed I hear my heart beat and when I am sitting I can feel my heart beat though my legs and feet. If I position my arm a certain way I feel it in my hands. We are more aware of our autonomic functions than most people so we feel things more than another person without dysautonomia would...

Wow mom4cem said it perfect. I too suffered years with panic attacks. I felt like it was taking over my life. But I learned how to stop them before they start. If I feel anxious I just tell myself that the only thing to fear is fear itself and I sit down and take slow deep breaths and focus on something calming and soothing. I must say it has worked for me as I had not had a full panic attack in 5 yrs. I do suffer with anxiety and I worry about things I shouldn't but I think that is just the nature of this condtion. Be well.

I deal with shortness of breath where I feel like I can not catch a satisfying breath. Years ago I had it so bad that I could not even carry a conversation cause I had no air in my lungs. Dr Grubb told me that because the ANS controls all the autonomic functions that it could be a number of different reasons I was experiencing SOB. All I can say is when that hits me it is very debillitating.

Hi Everyone, So I went to Manhattan on Saturday and waited in front of Madison Square Garden till 1:30 and no one showed up.. One person said that they arrived at 1:10 but did not see anyone with a white ribbon and left.. MSG was packed because they were having a circus that day so it would have been hard to spot anyone. But I was dissapointed to see no one showed. I must admit I did not plan it well so hopefully if I ever try again it will be a better turn out.. Well it was not a wasted day cause my husband and I spent the rest of the day in the city. I must say it was very cold but it turned out to be nice..

Hello again.. Just wanted to inform everyone that if it is raining there is an overhead right in front of the Garden that we can wait for each other..If anyone has any questions please feel free to email me at Sparknik2@hotmail.com.. Hoping that everyone will be able to make it..

I WANT TO UPDATE EVERYBODY ABOUT THE MEETING SATURDAY, APRIL 7th AT 1:00 pm. IS IT OK WITH EVERYONE TO MEET IN FRONT OF MADISON SQUARE GARDEN NEXT TO PENN STATION ? IT SEEM LIKE IT WOULD BE A CONVIENIENT PLACE FOR EVERYONE, AND FROM THERE WE COULD GO TO STARBUCKS, WHICH IS NEXT DOOR. IN ORDER TO BE ABLE TO RECOGNIZE EVERYONE IN THE GROUP, PLEASE WEAR A WHITE RIBBON ON YOUR RIGHT SLEEVE. POST HERE IF YOU INTEND TO GO, AS THIS WILL GIVE ME AN ACURATE IDEA OF HOW MANY PEOPLE WILL ATTEND. LOOKING FORWARD TO SEEING YOU ALL.

Hi Everyone.. Just wanted to keep everyone updated that is definite for April 7th at 1:00pm. There are many areas that we can meet up and if it's nice out we can go to one of the parks. Are most of you coming in through Grand Central or Penn Station?? We need to all put something on us so we can find each other and hook up.. So much looknig forward to meeting. By the way I have been suffering with many palpatations lately.. Very uncomfortable.

So So happy to see these responses.. I have responses on other forums for dysautonomia also. So I will keep it for April 7th at 1:00PM in Manhattan. Someone suggested to meet in Grand Central and then go somewhere from there. Whatever is easiest for everyone. If you have any ideas please feel free to post.

I always suffered with light symptoms at a young age but then at 19 I started experiencing palpatations and anxiety attacks.. Then symptoms just progressed from that point until age 30 when i fell really sick. I felt like I was knocking on deaths door for 4 months. Mine is genetic. My grandmother suffered all her life with symptoms that doctors could not figure out. My sister has occasional palps along with my dad.. I have it the worst by far..