Lauren78

Okay....I asked a question last week about bloating, food sensitivies, and the amount of food you eat. A large percentage answered 4-6 very small meals a day. I am having a hard time finding nutritious and healthy food that will fill me up, be small small amounts, but still give me my 1500 calories a day. So I am looking for help....opinions, advice....what do you eat?

I know fatigue is something all of us potsies deal with. But sometimes I am just SO tired, it's ridiculous. And it's not like I have even done anything! (Although I do notice it's worse when it's that time of the month...you too?) For example...I went to bed at 9:00 last night, woke up at 7:30 this morning. And still laid down to take a nap at 10:00!! I truly feel like my cats...just sleeping the day away. Does anyone else have days of extreme fatigue? Is there a reason why we feel this way?

Great topic Jen! I find it depends on the day...some days are good, some are bad. I can generally work out pretty well though. I go to the gym 5 days a week...but workout at my own pace. For cardio I just walk at a 3.5mph on the treadmill, that gets me up between 145-170 (so sometimes I drop down to 3.2 to get HR back down). I can handle about 30 minutes then I am done. Weights...I do all normal weights...pretty heavy, actually for a girl. But instead of the 30 second break between I rest about 1.5-2 minutes between sets. It takes longer to work out then a "normal" person...but at least I can still work out! Although I don't always get the energy boost afterwards, with the POTS I find it often makes my tired. But I still feel better overall. I love to exercise as much as I can within my limitations! My advice would be to start slow, see what you can do, rest between exercises when you need to, and above all just listen to your body. Even a little bit of exercise is better than none at all. Good luck!

This is a good question BellaLuna, and I enjoy reading everyone's results. I wondered about the BP thing too...my most obvious seemed to be my heart rate. My results were: At rest: 72 bpm and 110/81 BP 1 min in: 145 bpm and 104/78 BP 3 min in: 257 bpm and 105/80 BP 5 min in: 175 bpm and 102/67 BP For the next 5 minutes my heart rate went between 120 and 198, with one tachy strip. BP was between 84/51 to 118/64. For some reason they felt the need to give my nitro...since I didn't faint. Is this normal?? Because, reading my above info I think that would have told them the outcome right there!! Anyway, after the nitro my strip was: 164 BPM and 107/55 BP 3 mins later it was 188 with 82/53 BP and I passed out Upon waking my bpm was 86 and BP was 102/58 These seem pretty full on POTS to me. But I was discharged with a "partial dyautonomia" diagnosis. What do you all think??

Thanks guys...I will try the suggestions. I don't remember having malt-o-meal before, but will look for it in the store. Mmmm....homemade pudding! I like the shake idea too. Thanks again...it will be nice to get some soft food that I can eat so I don't waste away! LOL.

Hi all! I just got braces yesterday and my teeth are SO sore!! I can't eat anything really....even oatmeal was too hard for me. Yogurt is okay, but not with any fruit chunks in it. I bought some protein RTD shakes, and my husband got me some chunkless soups today (tomato, cream of broccoli, etc). I was wondering if any of you have any ideas for some fairly healthy, yet quite mushy and soft food. I can't live on RTD's, but I am too sore to chew anything at all. Any suggestions would be wonderful! =) BTW...I don't know if POTs make having the braces worse or not, but goodness it's not fun!

Hi Flop...I know this is a day late...but HAPPY BIRTHDAY! I hope you had a fantastic day!!!

Hi! For me it's any place that is overstimulating, or too hot. Wal-Mart is impossible. Libraries. Too long in a mall. A lot of the places already mentioned. =) It seems that the hot and/or "business" of a place really gets me.

Thank you everyone for your replies. It does seem as though it's mainly a woman thing, but that there may be some POTs connection. I will give the compression hose a try, as well as more hydration. For the cellulite...I read about a product called Oligo DX that is supposed to be fantastic...I think I will give it a try. Any one else try this product before? Thanks for the congrats everyone.

Yes, vacuuming bothers me too. As does any vigorous cleaning...like the kitchen. Laundry gets me too, the bending, sorting, putting into the W/D. Lucky for me my wonderful husband now does the chores. We used to split them 50/50, but now it's more like 90/10. I do what I can, he gladly does the rest.

Hi everyone! Sorry...I have been incommunicado for about a month or more. I had wedding plans along with normal crazy life. Then family and friends in town. We got married...then went on our honeymoon. We are back now and life is settling back down to normal. So, I have a question about cellulite and spider veins. It seems that since I have had POTS I have noticed a lot of spider veins on my upper and lower legs. Is this because of the vasoconstriction/dilation thing? Is this normal for POTsies? Is there anything I can do about it?! I notice the same with cellulite on the thighs and butt too...seems more prominent than before. I know these are also just women things....but I am not even 30, and not at all overweight...so I wondered why all this is happening now. I wondered if it was connected to the POTs or if I am just suffering from women problems now! LOL. Thanks for listening and giving me your opinions! I've missed you all, so it's good to be back!

Awesome...got it! Thanks Rachel!!!!

Happy Belated Birthday! I hope you had a great day and will have a great weekend!

I have tried, but it always tell me to contact a moderator. Am I doing something wrong? Thanks!

Gosh...thank you so much everyone for your response. It is SO good to know this is normal and that I am not alone in this. Although it's a shame any of us have to deal with it huh?! Except you Ernie. Sounds like I have both the dysautonomia and drug side effects working against me. Nina, I laughed out loud when you said it feels like you've been neutered! God, I know that feeling. It is a miracle any of us have a sex life!! Thanks again for the encouragement and support...nice to know I am not alone. Now if only there was some miracle pill we could all take to get that "O" so great feeling back!