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Lauren78

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  1. Okay....I asked a question last week about bloating, food sensitivies, and the amount of food you eat. A large percentage answered 4-6 very small meals a day. I am having a hard time finding nutritious and healthy food that will fill me up, be small small amounts, but still give me my 1500 calories a day. So I am looking for help....opinions, advice....what do you eat?
  2. I know fatigue is something all of us potsies deal with. But sometimes I am just SO tired, it's ridiculous. And it's not like I have even done anything! (Although I do notice it's worse when it's that time of the month...you too?) For example...I went to bed at 9:00 last night, woke up at 7:30 this morning. And still laid down to take a nap at 10:00!! I truly feel like my cats...just sleeping the day away. Does anyone else have days of extreme fatigue? Is there a reason why we feel this way?
  3. Great topic Jen! I find it depends on the day...some days are good, some are bad. I can generally work out pretty well though. I go to the gym 5 days a week...but workout at my own pace. For cardio I just walk at a 3.5mph on the treadmill, that gets me up between 145-170 (so sometimes I drop down to 3.2 to get HR back down). I can handle about 30 minutes then I am done. Weights...I do all normal weights...pretty heavy, actually for a girl. But instead of the 30 second break between I rest about 1.5-2 minutes between sets. It takes longer to work out then a "normal" person...but at least I can still work out! Although I don't always get the energy boost afterwards, with the POTS I find it often makes my tired. But I still feel better overall. I love to exercise as much as I can within my limitations! My advice would be to start slow, see what you can do, rest between exercises when you need to, and above all just listen to your body. Even a little bit of exercise is better than none at all. Good luck!
  4. This is a good question BellaLuna, and I enjoy reading everyone's results. I wondered about the BP thing too...my most obvious seemed to be my heart rate. My results were: At rest: 72 bpm and 110/81 BP 1 min in: 145 bpm and 104/78 BP 3 min in: 257 bpm and 105/80 BP 5 min in: 175 bpm and 102/67 BP For the next 5 minutes my heart rate went between 120 and 198, with one tachy strip. BP was between 84/51 to 118/64. For some reason they felt the need to give my nitro...since I didn't faint. Is this normal?? Because, reading my above info I think that would have told them the outcome right there!! Anyway, after the nitro my strip was: 164 BPM and 107/55 BP 3 mins later it was 188 with 82/53 BP and I passed out Upon waking my bpm was 86 and BP was 102/58 These seem pretty full on POTS to me. But I was discharged with a "partial dyautonomia" diagnosis. What do you all think??
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