Quite a few of us on the forum who have had trouble being diagnosed have ended up going to places where there are experts in the dysautonomia field, such as: Mayo Clinic (either Rochester, MN or Scottsdale, AZ), Cleveland Clinic, Vanderbilt and other doctors and places that are listed on our Home Page. I ended up going to Mayo Clinic - both the Rochester and Scottsdale locations before I was finally diagnosed. That's what I would recommend. I have a great neurologist at the Scottsdale facility - if you'd like his name, please PM me. Ah, I just saw that you are waiting for an appointment at Vanderbilt. When are you going? Did your doctor make a referral for you? You could possibly get in faster that way. You're certainly not alone, and one of the things most of us share is that it took years before we were diagnosed. Hang in there!