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Ernie

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Everything posted by Ernie

  1. Ernie

    neck

    Ernie replied to hayley's topic in Dysautonomia Discussion

    I have neck, shoulder and head pain. I heard it goes with POTS. Ernie
  2. Ernie
    I heard someone mentioning that we have more gum disorders when we have POTS. I don'T remember where I read it. Ernie
  3. Ernie
    I don't know if my sodium is low but when it is time to take my salt tab I start shaking. Ernie
  4. Ernie
    Hi, What a wonderful doctor. I think I will also follow his advice and go back to work! Ernie
  5. Ernie
    Hi Corina, It's nice to see your post. Please don't feel guitly about not posting. I have not been posting much either. Good luck with your new specialist. Ernie
  6. Ernie
    Hi, I took Clonidine for 3 weeks and it made me faint more. I had much more fainting episodes without warning. Ernie
  7. Ernie
    I take USANA mutlvitamins. This is the only one so far that I found helpful for me. Salt tabs are also helpful. Ernie
  8. Ernie
    I have this problem but since I have been taking salt pills it is has improved. Ernie
  9. Ernie
    The only thing that helps me is lying down. Ernie
  10. Ernie
    Hi Julia, Thanks for sharing the update on Dr Grubb and on your visit with him. I read that some people have good result with this new drug. I am thinking myself of asking my PCP to prescribe it to me. Maybe you could start with 1/4 of the pill and work your way up. Ernie
  11. Ernie
    Hi Nina, I am glad that your doctor found the solution to your BP problem and that you are now to normal. I'll be careful with steriods knowing how you reacted to it. Ernie
  12. Ernie
    HI, Thanks for sharing this treatment. It's the first time I hear that. Do you know why the neurologist suggested botox? How does it work for POTS? Ernie
  13. Ernie
    Hi, I also have IBS, low blood sugar, many food allergies, and regular allergies, migraines, tinnitus, etc. Ernie
  14. Ernie
    Hi, I did not have time to read the replies but you can get sick if you are allergic to something in it. Sometimes just cleaning it does the trick. Ernie
  15. Ernie
    Hi, I would keep my appointment with Dr Grubb if my insurance covers it. If no insurance, well it depends on if you can afford it. Dr Grubb sees his patients x2 a year so you will end up seeing him after Mayo also. Ernie
  16. Ernie
    Hi Carlacat, I think that if they give you a raise and they disqualify you for meds because you have too much money they are mistreating you. In reality they are not giving you a raise, they are lowering your income. This is not fair for you. I hope you find a solution fast. Ernie
  17. Ernie
    I don't get to the end of a long standing day. My standing time is less than 10 minutes even on meds. So I am a couch potato. Ernie
  18. Ernie
    Thanks Steph for explaining the story. I personally don't have a living will but I think I should. I would never want to live as a "vegetable". When I went to NIH I signed one that was active only for my stay. This woman, Terri, it's so sad what happened to her. Ernie
  19. Ernie
    Hi, Can you tell me more about this case? I have never heard of it before. Ernie
  20. Ernie
    Hi, I would ask my husband to refuse the .25 cents increase. Ernie
  21. Ernie
    Hi, Garlic and Goldenseal are also good to lower BP. Ernie
  22. Ernie
    Hi Frank Mestinon = Pyrostigmine Ernie
  23. Ernie
    Proamatine or Midodrine, Mestinon Ernie
  24. Ernie
    Hi Emily, It's nice to see you posting again. Like the others I was checking regularly on Dinet to see how you are doing? I am glad you feel better enough to be back. Ernie
  25. Ernie
    Hi Lois, That wonderful news for your daughter. I am sure you are proud of her and excited for her new program. Hope everything goes well at work. Ernie
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