Ianankatie Posted March 28, 2007 Report Share Posted March 28, 2007 Hi allI've not posted on here for some time as I have been a bit busy with my new baby but today I'm posting on behalf of Flop. I hope you guys can help!I've just been to visit her after surgery yesterday and things aren't going quite as well as hoped. The actual op went fine, on the ENT side of things she is doing well. She is even doing well from a POTS point of view too and is up and about on the ward. Problem is somewhere along the line there has been a reaction causing stroke like symptoms. She has had several fits and initially the doctors suspected a stroke though a reacent scan has proved inconclusive. She is now waiting for an MRI hopefully tomorrow to shed some more light on whats happening and is left with little feeling and movement in her left hand (and just to make matters worse she's left handed!!) At present the doctors haven't a clue whats gone on as she has not suffered anything like this before so I'm on here hoping that one of you may have some idea as to whats going on. Has anyone else been through similar?If anyone has any ideas or would like to send any messages to Flop please let me know. I will be visiting her tomorrow afternoon (UK time) and will be online in the morning.Thanks all, I'm sure she'll be online herself just as soon as she can.Katie Quote Link to comment Share on other sites More sharing options...
deucykub Posted March 28, 2007 Report Share Posted March 28, 2007 Hi, Katie:I'm sorry - I don't know what could be causing Flop's post-operative symptoms.Please tell her that she is in my thoughts and prayers that the doctor's will soon figure this out and help her feel better soon!Thank you for posting with Flop's status. I've been wondering how she is doing. How frustrating this must be for her.BIG HUGS!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 28, 2007 Report Share Posted March 28, 2007 Oh Katie,Thank you for letting us know about Flop. I wish I had medical advice for her...I don't. I will just pray that this condition is a temporary inconvenience. Please let her know I am thinking about her, praying for her and sending good wishes across the pond. Julie Quote Link to comment Share on other sites More sharing options...
mkoven Posted March 28, 2007 Report Share Posted March 28, 2007 A number of people here (myself included) report having hemiplegic migraines that can look like a stroke, but recover fully. Maybe try a search on that?Michele Quote Link to comment Share on other sites More sharing options...
Ianankatie Posted March 28, 2007 Author Report Share Posted March 28, 2007 Thank you so much for the swift replys. I'm going to look up the hemiplegic migraines now. I will pass all of your thoughts onto her tomorrow, I know that she has been feeling quite down today and I am sure that all of your messages will really help!Lets see how many well wishes we can get in the next few hours to really cheer her up tomorrow!! Quote Link to comment Share on other sites More sharing options...
P SUDIK Posted March 28, 2007 Report Share Posted March 28, 2007 Please tell Flop, I am thinking about her ,and will say an extra prayer for her tonight.Also will you give her a big hug for me,keep us posted Love, Pat Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted March 28, 2007 Report Share Posted March 28, 2007 Please let Flop know that I am thinking of her! Quote Link to comment Share on other sites More sharing options...
persephone Posted March 29, 2007 Report Share Posted March 29, 2007 Hullo Katie! How nice of you to go and visit Flop. Thought I would chime in here as I get hemiplegic migraines which can affect my movement. The classic sign of a hemiplegic migraine is impaired movement or feeling in an eyes/hand/foot/arm/leg in any combination but usually on one side- hence the reason it's often confused with stroke. It can also impact on speech. I slur my words like a proper drunk when I get a bad one.They are virtually always reversible, though the weakness can linger for a good 6 weeks for me at times. Tell her to try and not worry- if her scans don't show stroke, that's a very good sign. Quote Link to comment Share on other sites More sharing options...
Poohbear Posted March 29, 2007 Report Share Posted March 29, 2007 Thinking of you and sending lots of good wishes your way. I hope they get to the bottom of this and get you some answers and effective treatment quickly!! Quote Link to comment Share on other sites More sharing options...
Sophia3 Posted March 29, 2007 Report Share Posted March 29, 2007 Hope you get some relief soon and information. Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted March 29, 2007 Report Share Posted March 29, 2007 Poor Flop. Sending hugs your way. Get better soon!Maybe print this thread out for flop to read, if she's up to it. Quote Link to comment Share on other sites More sharing options...
nadine Posted March 29, 2007 Report Share Posted March 29, 2007 Oh dear, not the news I was hoping to readFlop---- I will keeep you in my prayers and I hope they soon discover what is going on!! Many well wishes to you--- Please keep us posted if you can Katie. Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 29, 2007 Report Share Posted March 29, 2007 Thanks for giving us an update, Katie.Flop, I'm sorry to hear about whats going on. I hope that the doctors can figure out what is going on and how best to treat you. Thinking of you,Rachel Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 29, 2007 Report Share Posted March 29, 2007 Hoping stronger days are happening starting today for flop!get well soon!tearose Quote Link to comment Share on other sites More sharing options...
lalalisa Posted March 29, 2007 Report Share Posted March 29, 2007 Flop,I will be praying for you!Lisa Quote Link to comment Share on other sites More sharing options...
bttrflyamby1981 Posted March 29, 2007 Report Share Posted March 29, 2007 Thanks for posting for Flop and being a true friend! (((HUGS))) Flop! I hope you get better soon! Quote Link to comment Share on other sites More sharing options...
juliegee Posted March 29, 2007 Report Share Posted March 29, 2007 Flop,I'm still sending prayers your way. just wanted to mention that I've had headaches where my left arm is numb, tingly and a bit slow. It always passed in a few days. Hope your problem is as benign. Get better.Hugs-Julie Quote Link to comment Share on other sites More sharing options...
Tessa Posted March 29, 2007 Report Share Posted March 29, 2007 Hi, FlopI am so sorry it did not turn out as expected, but I am sure that the doctors will soon know what to do and will have a treatment to help you feel better as soon as possible. Sending you good vibs and hugs.Take care, LoveTessa Quote Link to comment Share on other sites More sharing options...
Ianankatie Posted March 29, 2007 Author Report Share Posted March 29, 2007 Thanks everyone for the kind messages. I visited Flop again today and she is doing much better. Shes had the bandages off her nose and all is well there. She is starting to get movement back in her hand now but is still not sure whats wrong. Hopefully tomorrow she will see the neurologist and get the MRI scan she is waiting for and get some answers.I know that all of your messages are really helping so a big thank you from both of us. I will be visiting again tomorrow afternoon so keep thoses messages coming!Healthy wishes to you allKatie x Quote Link to comment Share on other sites More sharing options...
deucykub Posted March 29, 2007 Report Share Posted March 29, 2007 Thank you so much for updating us, Katie. It's good to hear that the surgery itself went well!I am still thinking of and praying for you, Flop! Keep your spirits up. They'll figure this all out soon, and you'll be right as rain... well rain in a POT at least BIG HUGS!!!!!!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 29, 2007 Report Share Posted March 29, 2007 Oh, Flop...I will keep you in your thoughts as you recover from your surgery!Lois Quote Link to comment Share on other sites More sharing options...
corina Posted March 30, 2007 Report Share Posted March 30, 2007 hi flop,sorry you're in trouble! sending you my best wishes and hope that you will recover quickly!corina you're a great friend katie, how are you and the baby doing??? Quote Link to comment Share on other sites More sharing options...
Elegiamore Posted March 30, 2007 Report Share Posted March 30, 2007 Flop...Just read the message and was heartsick for you!We are all pulling for your quick recovery - hope they get to the bottom of your problems quickly.So sorry this happened... I was so confident you would do well that I didn't look back on the web - so best wishes belatedly.Thinking of you with concern and sending positive thoughts,Elegiamore Quote Link to comment Share on other sites More sharing options...
Ianankatie Posted March 30, 2007 Author Report Share Posted March 30, 2007 Hi allOnce again a massive thank you for all of your messages.I called in to see her today and unfortunately she seems a little worse. The movement in her hand as become dificult again and her POTs has returned just to make matters worse! She has had the MRI scan and was waiting for the results and to see the neurologist this afternoon. The good news was though that the stroke doctor doubts very much that it was a stroke and the problems with her hand are more likely to have been caused by the fits following surgery. I haven't heard from her this evening which probably means she will be in all over the weekend so if anyone has any more messages please add them on as I will probably visit her again tomorrow.To look on the bright side though, it seams an ambulance driver has taken a shine to her, he visited the first day with a massive bunch of flowers, was there yesterday when I visited and just as I was leaving today he was on his way in again! It looks like a hospital romance may be happening!!Corina, thanks for asking about me and the baby. We're both doing well thanks. I had three pots free months but unfortunately it has gradually returned over the last two, though in no way as bad as before I was pregnant. I had a wonderful pregnancy and although I am sick, being a mother is the most wonderful thing! I know there are some of you out there that would like kids but are concerned about doing it with pots and I would say go for it! Okay, I may not be able to keep up with the other mothers but we have fun in our own way! Visiting Flop is a pleasure, she did the same for me after my c-section... thats what friends are for! Anyway, William enjoys the bright lights in the hospital!Thanks again everyone and keep those messages coming!Katie Quote Link to comment Share on other sites More sharing options...
lizb Posted March 30, 2007 Report Share Posted March 30, 2007 Please send my best wishes to Flop, I am sorry she is not doing so well, hope she feels better soon.I am quite new to the Forum, so she may not know me, but I just wanted to send my thoughts and prayers.Take care FlopLiz B xx Quote Link to comment Share on other sites More sharing options...
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