bamagirl Posted March 1, 2006 Report Share Posted March 1, 2006 Just wondering if anyone has small fiber neuropathy? I do and apparantly mine has spread to my autonomic nerves. I am so much worse now than ever. I guess this will keep progressing until the end. Anyone else have this and know if it spreads? It's alsmost like I have severe diabetes but I don't. I am more scared now than ever. Quote Link to comment Share on other sites More sharing options...
Wufflebear Posted March 1, 2006 Report Share Posted March 1, 2006 I don't but no one has replied yet....and I wanted to let you know I am thinking of you. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 1, 2006 Report Share Posted March 1, 2006 How was this diagnosed? How do you know it is progressive? Is this what a doctor told you?Take it one breath and day at a time. I hope someone else has insight for you--and we are always here for you.Katherine Quote Link to comment Share on other sites More sharing options...
gdomaracki Posted March 1, 2006 Report Share Posted March 1, 2006 It is not the end, only the beginning. Your in my thoughts and prayers dearest!Nicole Quote Link to comment Share on other sites More sharing options...
yogini Posted March 1, 2006 Report Share Posted March 1, 2006 I'm sorry you're dealing with neuropathy. I think most of us think of this as a problem that's part of our POTS and focus more on the POTS and not neuropathy. I think there is a Neuropathy Association, so you may want to contact them or check to see if they have a forum. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 1, 2006 Report Share Posted March 1, 2006 Yes bamagirl, many of us have some kind of neuropathy.I think when our POTS was a newer dx we were more talkative about it. It has become a daily annoyance for many now....we know it won't kill us and we know it is annoying and we try to just deal with whatever is numb and tingling at that time. I think you will start to notice a pattern if you observe. For example, after I've been driving a car for 30 minutes my facial neuralgia/ neuropathy acts up and my face is numb!Also, certain things like extreme cold will numb my left arm and fingers....they will tingle and turn blue if I don't change my position or temperature.I hope this helps to reassure you. If you are in pain or anything feels unusual, please give your friendly pcp a call and run it past them!healthy wishes, tearose Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted March 2, 2006 Report Share Posted March 2, 2006 Well I have neuropathy but it's Autonomic Neuropathy. It affects the functions of my autonomic nervous system. Basically the same as dysautonomia. I don't have tingling or anything just Gastroparesis and Pots from it.I hope you get answers to your questions and your in my thoughts.Dayna Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted March 3, 2006 Report Share Posted March 3, 2006 I have peripheral neuropathy in my feet and right hand. Mine hasn't really progressed though. My right index finger goes numb alot, but half the time it feels fine. What have you been diagnosed with? Is it a desease that causes the spread of neuropathy? Quote Link to comment Share on other sites More sharing options...
dawn Posted March 3, 2006 Report Share Posted March 3, 2006 I have autonomic neuopathy too. It's just part of POTS I think.I don't even think about it, just try to manage my symptoms as best I can.Hugs,Dawn Quote Link to comment Share on other sites More sharing options...
faithinspires Posted March 3, 2006 Report Share Posted March 3, 2006 Just wanted to let you know that you are not alone. I too have been diagnosed with neuropathy, as part of this condition! Quote Link to comment Share on other sites More sharing options...
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