SunsetParadise49 Posted August 27, 2005 Report Share Posted August 27, 2005 Hi Everyone,My name is Gwendolyn, I'm turning 17 on September 9. In November of 04', I passed out in my gym class and was sent home from having low blood pressure. My family doctor did his own version of the TTT and told us that I had NCS. My FD ordered a ECHO, and then a TTT at our hospital. It came back positive...plus an increase of water and salt. For the first month or so it worked. Then in December I went down hill. I began loosing weight, (20 pounds in two weeks) I was throwing up basically everything I ate. I was failing most of my classes and the ones I wasn't failing yet, my grades were on the verge of becoming D's. I was extremly tired and by the time I would get home from school I would crash. On top of that I was in marching band which for my school is VERY active and competitive. We finally found a Pediactric Cardiologist who specializes in POTS. He diagnosed me with POTS, and put me back onto Florinef, .1mg 2x's a day. He sent me to a geneticist, a physical therapist, and a GI doctor...all who have are very experianced in POTS!!! My GI doc appt. is coming up this coming Wednesday. I feel A LOT better now from being sent to the physical therapist! I am so lucky to have found him. Hope to hear from some of you! Quote Link to comment Share on other sites More sharing options...
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