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hi


sallyann
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B) hi everyone.i have been reading all your post for a long time .my daughter and myself both suffer from pots and ncs. i feel like i know all of you, and would like to send thanks for all the guidance and knowledge i have recieved. i cant wait to join in and become a part of such agreat group of people .talk to all of you soon. sallyann

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B) Hi SallyAnn...just a quick one as just finishing work but just wanted to welcome both you and your daughter and say hi and nice to meet you. B)

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sallyann -

welcome! sorry that you have reason to be here but glad you found us. many of us did a lot of reading up on the forum before joining (me included) but glad you decided to introduce yourself. i also have OI/POTS & NCS, as well as Autonomic Neuropathy & other things that may or may not be related. and until two weeks ago i was a fellow marylander (i just moved).

again, welcome!

:-)melissa

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sallyann-

i saw several docs in md over the years but also continued follow-up with dr. grubb in ohio since he was my original doc (and my parents are 10 minutes from him) but he was quite ill himself this past year when i was at my worst so i needed to find help elsewhere. i also went to vanderbilt this past spring as things got pretty crazy with me this past year & my docs were all wanting additional insight:-) but...most recently in maryland i had the most success with dr. ramesh khurana who is a neurologist. he has several offices - one @ union memorial hospital in baltimore, one in pasadena, & one in columbia - and while there are pros & cons to everyone he was helpful. i also found a few specialists who dealt with other associated problems i had that were related to my autonomic neuropathy - endocrinologist, urologist, GI, PT, etc. and i had a great primary care doc. i saw a cardio/EP at hopkins but this year he pretty much told me he didn't have anything else to offer & that i needed to go the neurology route b/c of my more progressive symptom presentation. he was very helpful when i was "just" passing out during college but not so much when other things started happening. so....that's the short version. feel free to PM or email me & i can give you more info about any & all of the above.

:-)melissa

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thanks again melissa , i will be checking in to those doctors soon ,especially for my daughter who at times has frieghtened us so bad with dangerously low blood pressure. last hosp visit she was given 5 bags of iv and blood pressure still was to

to low to be released from hosp. i hope i never have to experience that again.

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