sallyann Posted August 14, 2005 Report Share Posted August 14, 2005 hi everyone.i have been reading all your post for a long time .my daughter and myself both suffer from pots and ncs. i feel like i know all of you, and would like to send thanks for all the guidance and knowledge i have recieved. i cant wait to join in and become a part of such agreat group of people .talk to all of you soon. sallyann Quote Link to comment Share on other sites More sharing options...
Madwife Posted August 14, 2005 Report Share Posted August 14, 2005 Hi SallyAnn...just a quick one as just finishing work but just wanted to welcome both you and your daughter and say hi and nice to meet you. Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted August 14, 2005 Report Share Posted August 14, 2005 Hi Sallyann,Glad you are adding your voice to the group! It's good to meet you. I look forward to reading your posts. Kristen Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted August 14, 2005 Report Share Posted August 14, 2005 Welcome Nina Quote Link to comment Share on other sites More sharing options...
Gena Posted August 14, 2005 Report Share Posted August 14, 2005 Welcome Sally Ann. I'm glad you found us. We look forward to getting to know you! Gena Quote Link to comment Share on other sites More sharing options...
Eillyre Posted August 14, 2005 Report Share Posted August 14, 2005 Welcome to the family, Sally Ann!I'm so glad you've both found our discussions helpful! Thanks for introducing yourself!Angela Quote Link to comment Share on other sites More sharing options...
sallyann Posted August 14, 2005 Author Report Share Posted August 14, 2005 thank you all so much for welcomes. sallyann Quote Link to comment Share on other sites More sharing options...
Sunfish Posted August 14, 2005 Report Share Posted August 14, 2005 sallyann - welcome! sorry that you have reason to be here but glad you found us. many of us did a lot of reading up on the forum before joining (me included) but glad you decided to introduce yourself. i also have OI/POTS & NCS, as well as Autonomic Neuropathy & other things that may or may not be related. and until two weeks ago i was a fellow marylander (i just moved).again, welcome!:-)melissa Quote Link to comment Share on other sites More sharing options...
sallyann Posted August 14, 2005 Author Report Share Posted August 14, 2005 thanks melissawho was your doc in md? i have a cardio who is really kind and supportive , but not as knowledgable as he could be. doesnt seem to understand just HOW awful we all can feel. Quote Link to comment Share on other sites More sharing options...
Sunfish Posted August 14, 2005 Report Share Posted August 14, 2005 sallyann-i saw several docs in md over the years but also continued follow-up with dr. grubb in ohio since he was my original doc (and my parents are 10 minutes from him) but he was quite ill himself this past year when i was at my worst so i needed to find help elsewhere. i also went to vanderbilt this past spring as things got pretty crazy with me this past year & my docs were all wanting additional insight:-) but...most recently in maryland i had the most success with dr. ramesh khurana who is a neurologist. he has several offices - one @ union memorial hospital in baltimore, one in pasadena, & one in columbia - and while there are pros & cons to everyone he was helpful. i also found a few specialists who dealt with other associated problems i had that were related to my autonomic neuropathy - endocrinologist, urologist, GI, PT, etc. and i had a great primary care doc. i saw a cardio/EP at hopkins but this year he pretty much told me he didn't have anything else to offer & that i needed to go the neurology route b/c of my more progressive symptom presentation. he was very helpful when i was "just" passing out during college but not so much when other things started happening. so....that's the short version. feel free to PM or email me & i can give you more info about any & all of the above.:-)melissa Quote Link to comment Share on other sites More sharing options...
Rita Posted August 15, 2005 Report Share Posted August 15, 2005 SALLY ANN It is always great to meet new people. I look forward to reading some of your thoughts and ideas and getting to know you and your daughter. Welcome, Rita s Quote Link to comment Share on other sites More sharing options...
DSM3KIDZ Posted August 15, 2005 Report Share Posted August 15, 2005 Hi. I would just like to welcome you and your daughter. I hope you find all the information and support you need.Dayna Quote Link to comment Share on other sites More sharing options...
sallyann Posted August 15, 2005 Author Report Share Posted August 15, 2005 thanks again melissa , i will be checking in to those doctors soon ,especially for my daughter who at times has frieghtened us so bad with dangerously low blood pressure. last hosp visit she was given 5 bags of iv and blood pressure still was toto low to be released from hosp. i hope i never have to experience that again. Quote Link to comment Share on other sites More sharing options...
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