AussieOI Posted March 4, 2013 Report Share Posted March 4, 2013 I have googled and looked in this forum and there doesn't seem to be much information on how Greg Page from the Wiggles recovered from POTS.It would be good to know how he did it !Does anyone know? Quote Link to comment Share on other sites More sharing options...
bebe127 Posted March 4, 2013 Report Share Posted March 4, 2013 Honestly, I've only read about how he had to quit the Wiggles due to POTS, I had no idea that he had recovered. Would love to know how too Quote Link to comment Share on other sites More sharing options...
Angela Posted March 4, 2013 Report Share Posted March 4, 2013 Niomi posted this on another thread about this awhile backhttp://www.dynainc.o...iggler-crusader Quote Link to comment Share on other sites More sharing options...
Joann Posted March 4, 2013 Report Share Posted March 4, 2013 thanks for the link. For a while he really didn't want to talk about it much, so its great to see this. Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted March 4, 2013 Report Share Posted March 4, 2013 Wow! I had no idea! Quote Link to comment Share on other sites More sharing options...
Angela Posted March 4, 2013 Report Share Posted March 4, 2013 he seems very postive as far as attitude and hope he hangs in there and doesn't relapse. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 4, 2013 Report Share Posted March 4, 2013 He has nmh and not pots. Quote Link to comment Share on other sites More sharing options...
AussieOI Posted March 5, 2013 Author Report Share Posted March 5, 2013 Thanks for posting that article - it was very interesting. I am not really clear on how he improved so dramatically however it's good that he did ! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 5, 2013 Report Share Posted March 5, 2013 He tells people florinef helped. Quote Link to comment Share on other sites More sharing options...
SaraC628 Posted March 5, 2013 Report Share Posted March 5, 2013 According to what I have read, he was diagnosed with Orthostatic Intolerance. This is my diagnosis as well. With mine the only autonomic testing that was off was the actual tilt table. According to my autonomic specialist, OI will simply go away or ease up over time for most people as long as there is not an underlying condition. Maybe his symptoms simply eased up on their own? He wrote an autobiography called Now and Then. Maybe he talks about his recovery in that. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 5, 2013 Report Share Posted March 5, 2013 My understanding is that his diagnosis was OI caused by Neurally Mediated Hypotension. The research body in Australia that he was involved with and donated money towards recently made discoveries about the nature of NMH and are trialling new medications for the condition (droxidopa/L-DOPS and SNRIs in some cases).He told a patient I know that he believes his body was sweating out too much salt and he got a treatment to reduce his hyperhydrosis which he believes along with florinef helped him the most. he is still quite ill though according to the interview about breaking up the Wiggles for good.But you are quite right, many docs who see patients with many OI type disorders claim there is a 'five year rule' for many. Quote Link to comment Share on other sites More sharing options...
AussieOI Posted March 5, 2013 Author Report Share Posted March 5, 2013 Yes I have NMH primarily and have read that most patients are significantly better within 2-5 years. Who knows if it's true! Quote Link to comment Share on other sites More sharing options...
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