boymommy3 Posted January 24, 2013 Report Share Posted January 24, 2013 My mom brought up to me recently that it seems that I have my most major issues in winter. And when I thought about, she is actually right. A couple of years ago when it was severe was in winter. Does anyone else notice a certain time of year that is worse for them than another? Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 24, 2013 Report Share Posted January 24, 2013 I happen to be worse in summer with the heat, humidity, and almost daily thunderstorms in the evening. But, I know that there have been people on here that say winter is worse for them. Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted January 24, 2013 Report Share Posted January 24, 2013 Definatly summer...I cant take heat at all. Feels like I cant breathe and my insides turn to glue...blah Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 24, 2013 Report Share Posted January 24, 2013 I was thinking ...have you looked into Raynaud's Syndrome. You might Google it to see if it sounds like something to investigate. Quote Link to comment Share on other sites More sharing options...
Monstrosity Posted January 24, 2013 Report Share Posted January 24, 2013 Either extreme puts a hard hurtin on me... Quote Link to comment Share on other sites More sharing options...
Tuesday Posted January 24, 2013 Report Share Posted January 24, 2013 When my BP was low, it seemed that I was always worse in the summer time. The past few years, it seems I have been worse in the winter, and my BP is actually too high. I don't know if those things are related. Quote Link to comment Share on other sites More sharing options...
derekliz Posted January 24, 2013 Report Share Posted January 24, 2013 My BP has been running high the last two weeks! I do not and have not had low BP issues. I am freezing all of the time and I was diagnosed with Raynaud's last year but not on beta blockers...can not tolerate themliz Quote Link to comment Share on other sites More sharing options...
E246 Posted January 24, 2013 Report Share Posted January 24, 2013 Yes this is the third winter when i have felt lots worse. Not just a bit but completely back into severe chest pain and random surges. It's snowing here so - low pressure and chest pain. Quote Link to comment Share on other sites More sharing options...
cmreber Posted January 24, 2013 Report Share Posted January 24, 2013 It's interesting that you brought this up because I was just discussing this with my husband the other day. 2 years ago, when I first got sick, it was the end of December. I have steadily gotten better since then, though sometimes I wonder if I will ever be 100%, but I have been wondering if there is some sort of cycle to it, because it seems that I do start to feel worse come winter time. You would think it would be worse in the summer because it's hot and hard to eat a lot, but it seems that, starting around September, I have more issues. There are some other reasons emotionally why that time of year is difficult for me, so I would also have to wonder if that doesn't play into it too. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted January 24, 2013 Report Share Posted January 24, 2013 Winters used to be much worse for my son, but now he is housebound 12 months a year. He at least used to get a break during the warmer months. Quote Link to comment Share on other sites More sharing options...
Birdlady Posted January 25, 2013 Report Share Posted January 25, 2013 Summer is very bad for me. My house is not air conditioned, which compounds the issue. In the winter, I freeze and have goosebumps, but it's better than being in a constant state of heat exhaustion.Although I have found that even in the winter things can be tough. Most places turn their heat up and it's like 75 degrees in some of these buildings. I have to wear tank tops and short sleeved shirts most days when I go out because if I get overheated, I deteriorate rapidly. Last weekend I went to a small Christian gathering at a hotel and it got really hot in there, my HR was 145 and I felt like I was dying. The people there were amazing though, they turned the AC way up and put their coats on so I could get cooled down. Only after getting to the point of having goosebumps and shaking, did I finally feel back to "normal". Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted January 25, 2013 Report Share Posted January 25, 2013 I'm worse In the summer because heat promotes vasodilation which makes it easier for my extremities to pool and I turn really red. But I'm also worse in the wintwr as well. I used to live in Arizona and now alaska, so I'm finally moving to Washington to get in-between. Hopefully. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted January 25, 2013 Report Share Posted January 25, 2013 I'm not good with temperature extremes either way - too hot or too cold makes symptoms worse. Quote Link to comment Share on other sites More sharing options...
AllAboutPeace Posted January 25, 2013 Report Share Posted January 25, 2013 I'm definitely worse in winter.I can't handle the cold at all. This morning it was -35C/-31F with the windchill. This is a particularly cold snap, but I have the same issues if it's 0 C/32F. If I have to go out, I have tons of layers on and I have to get into a warm vehicle. My blood feels more like sludge going through my body and I have chest pains. I was out briefly for my sisters b'day and have been back in the house for 2 hours...I still have my winter coat on, including my scarf, plus three layers of clothing underneath that!!! One of my layers is a 'heat' sweater which is meant for temperatures of -15C ! My house is warm, we have a propane fireplace and everyone else is walking around comfortably with one layer of clothing. I never get warm and I could actually very comfortably wear my winter coat around the house all the time - except that it is a little bulky I have that cold to the bone feeling even when I don't go out, so it doesn't directly have to do with exposure to cold. The summer is my friend for sure. I love the sunshine and the heat (although where I live it usually isn't much warmer than 30C/86F). Alot of days I layer up in the summer too. I have alot of blood pooling too, but I don't really notice if that is worse in the heat. I don't feel hot, though, so even if I'm in heat my body doesn't seem to absorb it. It's crazy that we are all so different with this, yet have temperature dysregulation in common (like everything else autonomic - I guess...). it would be kinda nice to just pick and choose our perfect climate...wonder where we'd all end up?? Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted January 25, 2013 Author Report Share Posted January 25, 2013 Wow! Well, I am glad I'm not the only one. Although I hate that others have to go through this awful stuff! I kept reading about all these people who can't tolerate the heat at all and I was starting to think I was the only one. I really don't seem to have the aversion to the heat like so many others. I also don't know that I have ever really had visible signs of blood pooling like so many others talk about. Maybe in my hands some. Are there some people who don't experience that symptom as well?I will say that I don't think I handle the heat as well as I use to, but it's nothing like many others. I do sweat more than I use to and I can feel my hr rise a lot of the time when I am outside but it doesn't bring on the severe symptoms that winter seems to. I can't let the heat in my house get below 70 (preferably 72 but hubby melts when I have it that high), or I absolutely freeze. And often times once I get cold I can't get warm unless I go take a hot bath, which I often do. I will also sleep in jogging pants, socks, and a hooded sweatshirt sometimes! But the crazy thing is that sometimes I go through cycles and totally feel like I am melting and I wake in the night soaking wet with sweat. It really is the most confusing illness when your symptoms can do a complete 180 and it be completely normal! Quote Link to comment Share on other sites More sharing options...
k&ajsmom Posted January 25, 2013 Report Share Posted January 25, 2013 I can relate to the layering. Although heat is rough for me, i am always cold...right now i have two sweatshirts and long sleeve t on, sweatpants , socks, boots and two blankets on. My house is 74 degrees so this is a bit much i think but im stil cold. Lol if i had a firepace i would never leave its side lol Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted January 25, 2013 Author Report Share Posted January 25, 2013 Katybug...I looked into the Raynaud's Syndrome and I don't think that is my problem. However, I think it's entirely possible my husband has that! He has this thing with his finger/fingers sometimes that they will turn completely white, get numb, and just ice cold to the touch. Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted January 25, 2013 Report Share Posted January 25, 2013 Going with the temperature theme,does anyone get worse in a shower since its hot?I do, but mostly my swelling in my toes gets bad and I turn really red. The doctors originally thought I had erythromelalgia. Quote Link to comment Share on other sites More sharing options...
boymommy3 Posted January 25, 2013 Author Report Share Posted January 25, 2013 I also wonder how many people don't get the visible signs of blood pooling at all? I don't recall every really having visible signs of blood pooling. Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted January 25, 2013 Report Share Posted January 25, 2013 There are people that do and people that don't, just like every other symptom lol Quote Link to comment Share on other sites More sharing options...
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