ramakentesh Posted March 24, 2005 Report Share Posted March 24, 2005 Do you feel, after a long day of orthostatic/standing activity, tired, shaky, trembly and very irritable? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 24, 2005 Report Share Posted March 24, 2005 This is a hallmark of POTS. I can get that way, sometimes, after just standing for 30 minutes or more. I have to sit down or lie down to recover for a few minutes. If I am walking, moving around, it doesn't happen. Fortunately I have a job that mostly involves sitting.In general, I tend to feel best in the evening and worst in the mornings.Katherine Quote Link to comment Share on other sites More sharing options...
Ernie Posted March 24, 2005 Report Share Posted March 24, 2005 I don't get to the end of a long standing day. My standing time is less than 10 minutes even on meds. So I am a couch potato.Ernie Quote Link to comment Share on other sites More sharing options...
geneva Posted March 24, 2005 Report Share Posted March 24, 2005 I don't have long standing days either but my best time of day starts at 5 pm. I really look forward to the early evening. Quote Link to comment Share on other sites More sharing options...
EarthMother Posted March 24, 2005 Report Share Posted March 24, 2005 I'm like geneva, for some reason my autonomic system tends to do better in the early evening. But since I'm not a night owl, I really have only a few short hours to "feel like myself" on a good day.I also get the "shakes" if I have over done it. As hard as it is for me, I now try to allow my body to have all the shaking it wants -- ever watch a dog or cat run into a wall? They step back and shake it off. Hmmm.....EM Quote Link to comment Share on other sites More sharing options...
yogini Posted March 24, 2005 Report Share Posted March 24, 2005 When I first got POTS, I used to have a terrible time in the morning. I would feel dizzy, nauseous, etc. But these days I actually prefer mornings to the evenings. I think it has to do with my beta blocker wearing off towards the evenings. That being said, I definitely get wiped out after being on my feet for a moderate amount of time. I am lucky that I have a desk job. In terms of running errands and doing other activities, I have to space them out and limit how much I do during each day in order to be able to tolerate them. Quote Link to comment Share on other sites More sharing options...
Miriam Poorman-Knox Posted March 24, 2005 Report Share Posted March 24, 2005 I too am not able to stand for very long 15-20 min max is all I can do. I really have changed from a mid morning person to evening late night person. That is part of the sleep disorders tht occur from this. Sadly my "SHOP TILL YOU DROP" days are short. My husbans is even sad that my "sport" has changed. I also think this changes over time for us. LATER MIRIAM Quote Link to comment Share on other sites More sharing options...
Radha Posted March 25, 2005 Report Share Posted March 25, 2005 yes i get shaky and irritable, and very weak and lightheaded, and the late night is best time for me, mornings i dread!radha Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 25, 2005 Author Report Share Posted March 25, 2005 I too spend most of my day sitting rather than standing, but at times if i feel ok i can go for a long walk in the evening - and i ony get a littel liht headed towards the end.The mornings are always the worst.I feel ok, then i have a salty breakfast and i feel good for about two hours, then i dip for about two hours and then i gradually improve.But if im exhausted from standing beyond my limit = or even sitting all day, i gat so shaky and irritable. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted March 25, 2005 Report Share Posted March 25, 2005 I am just wiped out all the time now, but standing is sooo hard. By bedtime I am physically ill from fatigue. I have to be able to lie down a fair amount. morgan Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted March 25, 2005 Report Share Posted March 25, 2005 I actually work in retail management so I spend a majority of my day on my feet. As long as I move around alot and sit when I feel lightheaded I do ok. I have days that I am so lightheaded that I can hardly drive home, but others I am fine. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted March 25, 2005 Report Share Posted March 25, 2005 I tend to have a feeling of a burst of energy around dinner time and then afterwards I tend to crash. It is often when I am sitting on the sofa after dinner that my body feels so tired of trying to balance both my blood pressure and heart rate all day that I get my worst symptoms then. I will feel a drop in blood pressure and a drop in heart rate. I dislike this feeling more than any of my other symptoms!tearose Quote Link to comment Share on other sites More sharing options...
DancingLight Posted March 25, 2005 Report Share Posted March 25, 2005 i'm with morgan....but also, i am a shaker in the eves. it is really horrible.i also feel woozy and just plain like the blood is leaving my head and chest.anyone have tips for stopping the shaking, adrenaline in the eves??? lying down doesn't help me stop it really...sometimes i'm up all night.i take a beta-blocker in the morning and a dose in the eve too to keep it more even in my system...emily Quote Link to comment Share on other sites More sharing options...
morgan617 Posted March 26, 2005 Report Share Posted March 26, 2005 The only thing that helps my tremors and that gross feeling is a tiny extra dose of my valium. I mean like a quarter to a half pill. My best friend had to go to the hospital last Sunday. There's something wrong with her liver or something. Talk about non supprtive families! The only time they love her is when they need something, so we ended up taking her. She didn't get admitted till 3 am! I was SOOOOOOOO dead. Then the only time I could get back was before my hubby went to work at 7 am. You just have to have an advocate anymore or they'll just let you die I swear. Anyway, I have been there everday from 6:30 am till 9:00 pm. I found when I got home I was so exhausted I thought I was going to croak, but I couldn't get settled down to go to sleep. It was awful. Then while she's been in there, I've started having my "spells" again. (flushing, arrythmias, nausea, and my bp skyrocketing) It takes it about an hour and a half to go away. But I just feel terrible the whole time. So she's wanting me to do stuff for her and all I want to do is lie down till it goes away. A nurse there took my bp and it was 180/100. It's been runiing a lot lower. When I got home it was 110/60. Gees But I just have to wait for my body to settle down, and then I go to bed and dream all night so wake up feeling like I never slept and then try and get through another day, till eve when I feel awful again. It's like this viscious cycle every day. We took her home tonight and I just had to tell her that if she needed someone to stay, she would just have to call her daughter, I am so fried. But here I sit unable to go to sleep....ARGH morgan Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 27, 2005 Author Report Share Posted March 27, 2005 sounds terrible Morgan!The shakes go away for me if i take a betablocker (which also healps the thumping heart beat in my ears) or some valerian Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted March 28, 2005 Report Share Posted March 28, 2005 Hi I find that I get more energy around 6-7 in the evening, that is when I am able to get a few things done. Iam usuaully bad off during the day, especially when I first wake up. Quote Link to comment Share on other sites More sharing options...
joyce68 Posted March 29, 2005 Report Share Posted March 29, 2005 I am a nurse so I run all day long, 12 hour shifts . when I get home I feel like I have been run over by a train. I spend my days off just trying to recuperate so I can work my next shift. I sit down as often as I can to talk to my patients, so they think I am just great because I take the time to listen. All any of us can do is try our hardest and not give up on ourselves or each other. I just do a little at a time at home and pick my priorities. I did get a state disability car placard so that I can park closer at work and at stores. I still park farther away at work but in the visitor garage which is 1/2 mile closer than employee parking. some days I do great, others it is a miracle to make it to the bathroom without having to sit down. good luck joyce Quote Link to comment Share on other sites More sharing options...
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