P SUDIK

I have POTS, and as long as I have had POTS (4 yrs.) I have had bladder pain,bladder discomfort,bladder infections.I also have feelings like the nerves in the pelvic area are exposed. I am having a cystoscopy Feb 22 ,my doc thinks I have IC.These bladder problems have been unbearable at times,I have had excessive bleeding,and in Dec. I also had kidney stone. I am having the cysto under general anesthesia(not crazy about that). Others on the site have told me I am better off being under,cause it is not pleasant. I sure hope the dr. will be able to help.Now when I have a flair up I take pain meds. and pyridium, it does help calm down the bladder. If any of you know of any things or meds. that help, please let me know. As far whether POTS and IC are related,I cannot help think they are all my other seamingly unrelated medical problems,started when I got POTS ???? Pat

Hi everyone,Happy Valentine's Day,just wanted to say hi and tell you , here in Mentor, OH.[suburb of Cleve.] we are buried in snow and of course freezing. So warm thoughts to all Pat

Hi Sheridan, I too, have alot of trouble with meds. I really understand your hesitance to domperidone or any new meds. I have gastroparisis and did take domperidone,I really did not have any problems or side effects that I was aware of. One of my cardio docs. took me of it saying it was not good for POTS. Still not sure about that? My different docs. were constantly putting me on and taking me off meds to see if it helped with POTS. Taking me off of domperidone did not help my POTS and I feel it did help the gastroparisis. I hope this helped a little and did not confuse, good luck let us know what you decide. Pat

I 'm not sure if your voice has to do with POTs,but I always get hoarse after doing to much,usually wake hoarse, after a hard day. For me I always think "just another weakness in my system" Pat

I have been dx with a moderate case of gastoparisis,seems alot more than moderate some days. I do have swallowing problems especially pills.Not had swallowing tests yet either.Does anyone have more trouble with pills than food and drink? Pat

Hi again,just wondering where you girls got your bracelets? I think it is time ,I need one Thanks, Pat

Thanks everyone for your replies. I think I get it. Ok, so I have POTS, I think that means I have OI, right?, I guess it really does not mattter, Just trying to understand. I thought maybe if I had another name such as OI, it might help, since so many docs. are not familiar with POTS. Thanks, Pat

Yes Lauren, that does make sense,thanks. I did not know that some POTS patients do not have trouble with standing, that is one my main complaints. Thanks again, Pat

Can anyone tell me the difference between OI and POTS? I can't quite make the distinction!

Amby, sure sounds like POTS, my b/p does not always go down when I stand my h/r always goes up. Have you ever had ttt? Good luck with your dx! Pat

Hi everyone, I have been reading alot of different posts and relating so closely to so many. Anyway I really got a chuckle out of "12 docs of Xmas. Their remarks are unbelievable! Just wanted to share just a couple. One of the cardio's I saw told me to find a boyfriend and I would be fine. One of the endo's told me I gained a pound so I was Okay!Meanwhile 3 yrs. later, I am no better and still searching for doctors and answers. Take care, Pat

Hello everyone, I am having a cystoscomy ,they are doing it in the O.R. just like a regular surg.Last surg I had in Mar. of 2006[partial corpectomy],I went into CHF. Should I be worried, any precautions I could or should take? Thanks Pat

Rachel, I sure hope you get the help you need soon.I wish I did have some words of wisdom for you,but going thru the same thing,I need to see a new doc also,and cannot be seen until I have ttt again and several others. I am dragging my feet. Like you , after all that testing I am pretty much useless and ill for days. Rachel, this is Pat again,I sent your message, before I was done ,sorry I do have one suggestion that may help?? I had the stress test ,that get an injection rather than go on the treadmill,is that an option for you? It is still not fun but maybe easier for you. lLots of luck and love Pat

Hi I thought POTS could come from many many things , How do we it can't come from heart virus? Pat

I am so sorry for what Melissa is going through, my heart goes out to her,but more importantly my prayers. Hugs to Melissa Pat

In some of your posts I see alot of talk of exercise, what kind of exercise can you do? I can barely do what I need to do? Any suggestions?

Hi all,very interesting discussion! I hate to say but I'm5'6 and very overweight, been dieting since I was 12 yrs. old.When I first got POTS,I did lose 25lbs., a year later 1 of my doctors told me to eat potatoe chips ect. all the salt I could get.Another dr. told do not diet, now I gained all the weight back and am dieting again,but I never feel well especially,because of the low blood volume.Any suggestions ?I am also extremely pale Pat

I also had a horrendous recovery, how are you doing now, back wise and ncs?What to you attribute your ncs to? Pat

Hi all, I am interested in knowing, if there are any of you out there, that may have spinal surgery or spinal stenois?If so, did it bring on your POTS? I have had 2 Cervical surgeries and one lumbar, after the lower back surg. is when I got POTS and several other problems. Your input would be greatly appreciated Pat

Hi my limit is 10 min.,then my head and chest are pounding and I get tachy.Sometimes when I am walking, only a couple minutes,it feels like something is pushing against,making it hard to walk.Does anyone else have a similiar feeling? Take care, Pat

I have the same problem and use a pill spliter on anything I can! Good Luck Pat

Jacquie so sorry you are having this problem,I suffer from severe nausea, the only thing that helps me is to keep hydrated ,which I know is so hard with nausea, I have had to get IV S to feel better,I know it is a drag. One of the docs told me even small sips of water help. Hope you feel better soon, pat

Hi Rachel, I know exactly what you mean about a bad day now being good. Hi Rachel, I know exactly what you mean about a bad day now being good. My normal everyday bad is now fairly good day. I think only a potsy