ken870

i would love to come to the meeting but we dont travel much in atlanta if i could get someone like firewatcher that lives close to me to come by and take me i would appericate it because i have been wanting to have a meeting for pots people in georgia for a long time now.

i have been getting social security now for three years for fibromyalgia and pots and saturday i got a letter stating that i was being reviewed to see if i was still disabled so i was wondering has anybody else ever had their case reviewed and how long did it take for them to review it.

he seems to know a lot about pots because he was the one who diagnose me with pots and he told me he has treated other people with it.

Sue i was in the wheelchair manily because of pots you see everytime i stood up i would have severe dizziness from pots that kept me from getting out of my chair but mayo showed me ways to use my bodyso i wouldnt have he dizziness as bad and that is why i am walking now.

I live in Senoia Georgia and I go to two wonderful doctors in Newnan Georgia that have helped me alot and when they don't now anything else to help me they send me to great doctors in minnesotas mayo clinic that have got me out of a wheelchair and back on my feet by showing me how to use my body to counteract the dizziness and fainting feeling. The doctors names are Guo and Sangha.

i just got back from the mayo clinics three week pain and no i cant do anything after exercise because my feet and legs swell after exercise with pain but let me tell you going to mayos pain program was a godsend because i am now and forever out of my wheelchair and walking everywhere and it has gave me back my life.

Cordelia did you get into the pain rehab program if you did i hope it is in july so i can meet you and talk about our illness and we can give each other ideas on how to cope.

i just got back from rochester and they are going put me in the rehab program for pain also and like you i have heard great things about the rehab program i will start the three week program in july and i am looking forward to going because i am in a wheelchair now and they tell me that when i finish the program i will not need my wheelchair i will be walking instead.

the deal with the medication is what they told me they look at the meds you are taking then they determine if they would help you or hurt you and if they think it is not good for you they will give you another drug to try but if a person comes there with a box or sack full of meds they will cut there meds out and when they complete the program they are usually down to two or three meds or less.

i have come home from mayo for now but they want me to come back in july to start a three week program for pots and fibromyalgia so i was wondering if anybody else had been through the comprehensive pain rehab center atthe rochester mayo clinic.

i thought i would let everyone know that doctor Singer was out for the week sick and my new doctor is doctor Paolol Sandroni who is one great doctor.

Sophiekins thank you for the information it was very helpful i will see doctor Singer tomorrow and he will set up my schedule for the week how long did you stay in the pots study.

i have my schedule for mayo next week and my main doctor will be doctor Wolfgang Singer so i was wondering if anybody has seen him before and if he is a good doctor.

i thought about going to mayo in florida but my doctor told me that if i need help with pots that minnesota was better because they had one of the best autonomic centers and the best autonomic doctors like doctor Low who was the doctor that first gave pots its name when nobody else knew what it was.

Sue i did go to vanderbilt and they told me they could only diagnose me so my doctor then said it would be best for me to go to minnesotas mayo clinic because she knew that they would treat me and they had the best autonomic department in the world.

i also live in Georgia and like firewatcher have only found doctors that know about pots but dont know how to treat it that is why my doctors are sending me to minnesotas mayo clinic and i will be going there on feburary the 21st so everybody pray that they will help me.

i was wondering how many of you have flown on a plane going to mayo or any other pots center and used a wheelchair how do they get you through the metal detectors and did you feel the same or worse when you got off the plane.

this is a message to let everyone know that i finally got my appointment to the mayo clinic in minnesota i will be going the week of feburary the 21st to see doctor lowe.

he gave me both atenolol and midodrine yesterday.

my doctor started me on atenolol today so i was wondering if anybody else has took this medicine and if you have did it help you.

they tell me they want me to see a specialist in pots and so far all of the specialist have been booked up and this is why i have been having to wait also they tell me they have had other people wait this long it is not just me.

Detrick plan on waiting a long time for an appointment because i have been waiting ever since feburary and i called them thursday and they told me i would probably have to wait until feburary of next year to get an appointment.

Jana i am going to the mayo clinic in rochester minnesota when they call me also does anybody know if the flooding in minnesota has affected the mayo clinic.

i found out what the problem is my doctors recepionist told me that mayo sent them a letter stating they did not want to see me so i called mayo and they told me she was lying that i was still on the waiting list and if my doctor would call them i could be seen sooner so i believe my doctors recepionist is mad at me for some reason and told my doctor lies about me and when i told mayo this they were mad and wanted my doctors phone number to call tostraighten everything out so when they call and hopefully speak to my doctor i will be headed to mayo.

i have medicare and i am still waiting to see a autonomic specialist there and it has been seven months do you think they will accept my medicare because i need to see a doctor soon they told me to have my doctors called them and my cardiologist did two weeks ago but still no call with an appointment so i am trying now to get my neurologist to call and see what they can do if they are getting people first with severe problems i would hate to see them because my records told them i had severe autonomic neuropathy and pots which has me bedridden and in a wheelchair when i do go anywhere.