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About cordellia

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    Advanced Member

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  • Location
    central europe
  • Interests
    mad for: my husband, puppies, gardens, 18th century architecture, painting, reading and paris

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  1. am certain the pithy article does not tell half of the story... incredible...cannot imagine what YOU have been going through these past months... healthful wishes to bruce! thrilled to hear that mack is doing well... heartening to know school officials are so supportive. blessings in your path julie... ~cordelia PS: eyeing our stationary bike with suspicion now...
  2. he raises interesting questions. i am going to revisit my MRIs-- the idea of alternative positioning makes real sense thank you for posting this... best -c
  3. hello hello all... are there others out there experiencing lower systolic and normal diastolic pressures ie: 90 /75-80. my heart rate is "normal" 70's-80's : during these "episodes" but i feel off--drugged--daffy. really struggling to focus. lately my systolic pressure seems to be lower and my diastolic is climbing. of course when i saw the new internist today pressures were normal... any input is greatly appreciated. healthful wishes to all, ~c
  4. labile: my bp ordinarily runs low-- with a narrowed pulse pressure it is labile and can vary dramatically in the span of just a few minutes 90-85 /60-55 being the average; 70's/ 40's (when i am very unwell); 130's/ 80's with normal activity, spikes with stress or for no reason whatsoever: 170/90 (this is rare--thankfully). thank you for the survey-- interesting...
  5. hoping that you find good answers in birmingham. keep us posted on your progress. safe travels... with healthful wishes, cordelia
  6. hello all: timely topic ... just started the licorice root yesterday.: 450 mg in capsule form. too soon to tell... initially, we mistakenly purchased DGL licorice (this is used to treat GERD symptoms-not hypotension) we then learned that LICORICE ROOT is used to raise pressure... we found it at whole foods. it is widely available online. our local naturopath also suggested a liquid form of the root-- feels that it is absorbed more readily & rapidly. will try both... with healthful wishes, cordelia
  7. sophia--here is another vote for polar. the best HR monitor that i have used. mine is a cheaper model: F6. works very well--consistently accurate. best, -- c
  8. and so it goes... NORMAL: finally spoke with the neuro (my primary at the mayo) she explained that for the most part my current test results were normal.there were a few minor outliers but essentially: normal. the mayo visit was fraught a number of health crises. wound up in their ER: pleurisy; serious trouble with my veins; an unexpected reaction to isuprel post my tilt...the last thing that we expected to hear was that the results were "normal". stress generally exacerbates my symptoms ina large scale fashion... after learning that the results were normal--we expected the doctor to be d
  9. very pleased with polar's quality and accuracy. have been using a wrist/chest strap model for several years. do not find the chest strap bothersome at all... very good value--less than 55. USD.
  10. dear brave tearose, your eloquence, your advocacy and the poignancy of your words inspire and strengthen me. thank you for finding the courage to share. with respect and admiration ~cordelia
  11. hello ken-- thank you for inquiring. no, i am not going to participate in the CFS/pain program. my husband and i do not thinkthat it is the best fit for me. will begin an at home program/prescription that primarily focuses on strength training, reconditioning... still waiting to talk with neuro--next week... then i will begin a the program in earnest. sorry that we will not have an opportunity to meet you, wishing you great success! with my best, ~c
  12. dear child at heart... will start sending off requests on monday for films... great suggestion. have had a fair number of echoes through the years... these should offer a good strong basis for comparison. off to search 'aorta". thank you... best ~c
  13. merci merci to all...your words of encouragement spurred us on and lit a path when we were overwhelmed... back on the east coast--after a 10 day visit to the mayo. trying to gather my strength--scheduled to return to EU in a few weeks. happy to be on the ground for the time being... mild aortic dilatation: during consult--EP was very reassuring--i was palpably relieved to reconfirm regression of LVH and DD. HOWEVER while reviewing mayo echo summary, at home, we see: OTHER ECHO FINDINGS: mild ascending aortic dilatation 42 mm at midlevel. no mention of dilatation on any of my previous echo
  14. fantastic! so glad that this is happening for you... wishing you the best!... anxious to hear how it all goes... good luck... ~c
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