baby_boy

Im not saying i condone lying, but at the end of the day you need to be pay'd as you cant work. They expect you to live of hard saved or earnt money, which is wrong. If you cant work ,you cant work, they shouldnt need to know your bank details, as long as you are who you are and you have a genuine illness they shouldnt need to know anything else. I hope it all works out, these SS people are tough and ask ALOT of questions, some people get asked personal questions, if you got for an examination they can get deep and some people have to fight for there right to sick pay. I hope it all goes well and please let us know how it goes

Hi, You shouldnt mention your money really, not to the SS. Put your money into another bank account and dont mention. Im from the UK and im on DSS, i know people who have mentioned there money and morgage value and dont get a penny. I suppose cus its a disability your unable to work it may not be effected, but just a thought, and some feedback on your post.

Yes steph, i understand Im also off to the doctors today, im also going to ask for an ECG. I will update you on it more when ive got the appointment.

MightyMouse i am seeking help but these doctors seem to be taking there time ( as always ) Steveo, My symptoms started of very light, i was getting them Twice a week, then it mooved to everyday. Ive had another new symptom what im feling latley. Yesterday i was in the car and i felt really tiered, we wre driving through contry lanes were there were ALOT of up and down hills and roads. After a while i put my head back and relaxed, next minuite my heart skipped, it felt like a bang, i automaticlly cough and reach for something to touch, very annoying!! As for the yawning, yeah it can be very annoying at times. How long have you had this condition? Im not trying to scare you but if u havnt had it long and you have the same as me it may get worse within time. Like mighty mouse said anxiety doesnt come with autonimic syndromes, but personally for me the fact i got through these feelings every day scares the **** out of me, my anxiety is always on high, which i do belive contributes to the worsening of my symptoms. Maybe once i get a DX ( diagnosis ) ill feel better, but 3 years of this pain with no meds or DX is fustrating. Get your doctor to take you pulse sitting and standing, if he ingnores you tell him you pay for treatment and you WANT help.

On bad days i feel more comfortable, its lke the earth is quite. On hot days i feel terrible

Steve its very fustrating i know. By the way im from the UK. Do you have problems sleeping, i often awake at the middle of the night with a slow HR then it returns to normal. I usually switch on the TV to stop myself getting paranoid. I think anxiety has alot to to do with our problems ( well mine anyway ). I constantly, and i mean 24/7 think about dieing, werever i am or whatever im doing i always think i will die, most the times i think im gonna die of a Heart Attack or something. I think the problem is in out brain patterns, whenever we have anxiety (which is all the time for me) our brain patters get mixed up. And the fact i think our bodys cant ajust to changes quickly. What other symptoms do you get steve? and do you feel it everyday all day? What do you eat? Do you excersice? and Do you do ordianry things when you can? Alot of question, lol, but im just trying to compare you to me if you know what i mean. Tell your Doctor btw, if he brushes it off, tell him its a problem. Doctors always tell me its in my head then lecture me on Anxiety.

Im so glad someone actually brought this up. I have this and have had it for over 3 Years now. Im so glad i have someone to relate to. On days i can feel terrible and standing does become a problem, my family think its in my head so i have to hold a brave face and get on with life. On occasions ive been very near to passing out. Im 20yrs old and male and at the moment im going to the gym 5x a week to do my body building routine. I wont deney that it is a struggle and very hard for me, but im determained to win over my body. Im not on any meds as i refuse to take artifical medication to alter the body. I drink PRO MASS which is something for skinny people to build on mass in order to get a body builders shape, it contains 45G Protien per drink which i think helps make me feel better, i take it 2x a day + food, over 3000 Calories on some days, ive actually had over 4000 on days, im nearly 12" Stone with a good figure. The way i look at it is my heart is good, i can walk far ( although anxiety plays its roll in keeping me down ), i can do 45 Mins + at the gym every day, not to mention the hardcore cardio workouts. I know some people are in harder positions then me, but theres been days when standing is a BIG NO!, some days i sit at the PC all day just so i dont have to stand. I cant walk anyware on my own, any time i feel im in danger my body will start to go over and i find it hard to do things, my mouth goes dry, my HR become irregular and i start feeling like i cant cope. Ive learnt on most occasions to take deep breaths and carry on. Im not saying my life isnt hard, it is very!!!! hard and sometimes i honestly feel like killing myself, ive even tryed it a few times, One time being Bulimia. When i stand my HR goes slow, sometimes i stand there and it goes normal, sometimes it lasts longer. I first noticed it in the morning i went to the toilet (as boys do) and i always felt funny, i started taking my pulse and i then noticed why. I cant climb stairs or the same happens, if i yawn or take deep breaths the same happens, if i stretch it also happens. I just wish my DOC would tell me whats going on as its very fustrating. Id rather know whats going on so i can adjust, at the moment im living to my own knowledge, which could be wrong, although its worked for 3 years so far . Im 99% posative i have an orthostatic intolerence, i have alot of symptoms i would like to discuss with you as im sure we feel the same every day. Im not sure how bad you feel but im here for support Im young so my mind drives me to do well and keep up with other young people, even if it hurts. Id love to talk with you, my email addy is: mixmedown@hotmail.co.uk Add me on MSN or email me, id love to chat. Regards.

No Problem Just thought that sometimes i feel bad and need support, it would be nice to talk 121. No Probs

Yes i feel awful at night, im scared to sleep, i often wake up with tachycardia and HIGH Anxiety, which kicks in irritable sleep and nervous nights, ive had this for 3 years. What i do is hug my Girlfriend, take deep breaths and closemy eyes, most times i fall asleep and awake in the morning.

Hi all, I was just wondering is it possible for the board admins to put in a chat room?

tylortotmom, I was told after an EKG that i have thickning heart muscle, the doctor said its nothing to be worried about as many people live with it harmlessley. What sort of symptoms do you get with this. I havnt yet been DXed with POTS im still awaiting the tests but i am 99% posative i have it. I find it hard to do things sometimes, the same as most POTS people would, but im forcing myself to go the gym and not letting my mind win me over, so far so good, except im aching inm y arms from lifting weights. Regards.

My resting is between 50-80. My morning HR is around 140+.

Glad you said that becuase yes, i often feel down, it drains so much energy i cant be bothered to do anything, aches and pains can hardley be felt as i could care about them when i feel down.

Im glad this has been brought up becuase my mind often stops me doing alot of things. On a good day when my mind feels clear i can go the gym and do 45 Mins of cardio, i feel tiered after but i can manage it, i suffer BAD! anxiety so i have to battle that off whilst im training. When i approach stairs i automaticlly start thinking back to the last time i did it and what i felt, and i dont do it. Then as time progresses i start HATING stairs. This goes on with alot of things in life and effects me daily, even hourly. Everything i do is based around limits and if my mind says no it means no. On a good day when i feel clean in the lord and feel good in myself i can get though anything.

sittings ok, but if i sit in the same position 4 long periods of time theni start feeling weired. Because im young i tend to just put up with the pain and feelings. 98% of the time moving from a sitting position to a standing is a big problem. If im lying down and i sit up that often becomes a problem. Im feeling better atm but im still in a 'HOLE' as you call them. Im off to the doctors some time this week, try and get some tablets.

Thats what i was thinking, but thanx for the reply

I noticed to day that when lying down on my stomach my Heartbeat skips and does its tachy stuff. Ive been lying down a lot just to see if it does it again and it does. When i put my finger on my pulse i couldnt feel nothing for about 2 seconds, then it went into its tachy and returned to normal. I felt no pain or anything, i think my BP prolly just dropped very low, but does anyone else get this? I spoke to someone on MSN from bristol, but she hasnt been online since, she gets alot of the symptoms i get, but she hasnt been there for support. Anyone get this? Ive had bad wind latley and ive been eating more to put on weight for my new body bulding venture ( which will be a struggle in itself ) Hope i can find support. Regards.

Ive had issues with a slow HR, usually when i stand up. I often feel dizzy and weak, i drink alot of fluids, eat some food with added salt and it usually fixes it. Ive been suffering with eating issues latley which makes the whole situation ALOT worse. Im slowley starting to eat more and im off to the gym monday to start a body building workout, i will really have to fight in order to make this work, im doing it to gain confidence as its the only thing that works ( apart from the bible ). Im also young and have been brushed of thousands of times. Feel free to PM me if you would to chat over MSN.

i had this about 6 months ago. I had nimbness on my skin right at the top of my right leg. It was actually near my 'BITS' but at the very top of my leg, it was only a little patch but it disapeared after about 4 weeks.

Hi all, Im awaiting an EKG, i was just wondering if anyone has had any failed results. Also is there anything i need to do befor attending. I herd anxiety and panic can cause mis recordings. As much info as possible on this please, id like to hear some testomonies on EKG exams.

Me to, lets pray to god that there all safe.

Perspone: Yes i have a click/pop sound/feel. Its on the bottom of my last left rib towards the center of my chest. It feels like my ribs split in half and i can moove it, ( it most prolly isnt, but feel like it ) . Theres no pain on the part that clicks/pops . I slid down a tree trunk when i was younger, which has me to belive it may have something to do with that as i never went to hospital. I woke up this morning and my brest bone feels very sore to touch, thats most likley because i was pressing and poking it all day yesterday. Perspone, PM me your MSN

Also i forgot to mention, i have terrible wind problems latley. I get really bad stomach pains and soon after i will release the wind and this usually happens late nights and happens most nights.

Hi all, For the past 2 days ive had a pain on the front of my brest bone. When i press it lightly it hurts like its sour. Im constantly pressing my bone all day and it worries me. My HR it always fine, every time i check ( At least Once every 10 Mins ). Ive had this pain in the past befor. I sleep on a hard floor, on blankets, as im living at my parent at the moment, when i moove into positions, for example, if i lie down and lift myself upwards so my backs arched it really hurts. Ive got excess cartalidge on my chest thats been there since i was 6. Anyone ever get this? Theres no doctors open yet as it is a sunday.

Hi there, Is it possible for a doctor to send you EKG results through email? Would he do that or not. I had a EKG 2 years ago but got no results, i was just wondering if i could fone the surgery and see if they could email then through. Im from the UK and dont understand the laws, lol. Regards.