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Knellie

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About Knellie

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  1. Does anyone know a good pediatric Dysautonomia specialist or at least someone who will work with people under 18 in Utah? I have been searching for one for a while, and I have already tried Primary Children's Neurology and it was not helpful. Thank you for any suggestions!!
  2. Hi guys- So earlier I had a post about heartburn and indigestion after every meal. I went to my doctor to get this checked out. I was put on Omeprazole for two weeks, and he said that because of my age I shouldn't have symptoms anymore. I tried it, and while the burning sensation went away while I was on the pill, it made me really nauseous after every meal instead. When I got off the pill, not only did the burning sensation come back, but it was accompanied by the nausea. Occasionally I would get so nauseous after one meal, that I wouldn't eat for 24 hours. I got an H. pylori test,
  3. @Ksheo- I am sorry you aren't feeling well! I am not sure if readings can be too close, but I do know that things can be missed on ECGs and blood work. Your symptoms are a little concerning, so you might want to find a doctor who will order an echocardiogram. That way you can know for sure that everything is okay. You are the patient, and patients know their bodies better than any doctor, so if you think that it is not cause by stress or the SVT, then you should definitely find someone who will help you. Good luck, and feel better soon!
  4. I know that this is a dysautonomia forum, but I didn't know who else to ask. My doctor has recommended an occipital nerve block for my chronic migraines and then if this doesn't work then Botox. I am not sure if I should do either. If I do it, I am not sure if doing the nerve block or the botox is the better track. I would rather not do both because it is expensive. Has anyone tried Botox or an occipital nerve block for headaches? I am not even sure if my headaches are chronic migraines because of the symptoms that are associated with it. I do have POTS, but I am not sure if it is just that an
  5. I get body aches every night. Although it varies per person, you may have a magnesium deficiency. That is what it is for me. Once I take magnesium, it tends to feel better. I usually take 400-800 milligrams per night. I am not sure if this will help you or not. I hope you feel better soon!
  6. @Goldfinch-- I have that same thing. My doctor diagnosed me with "POTS without the T". I have no idea if that should be orthostatic intolerance or not, but if people ask, I just tell them that I have dysautonomia.
  7. I am taking topamax, but that is a new development and I had the heartburn before I started taking that. When the heartburn started I wasn't taking any meds.
  8. Okay I will get this checked out. Thanks for your help!
  9. A couple of years ago, I started getting infrequent "Heartburn". But it wasn't really heartburn, because it happened in my stomach. It is odd because it started even before I got POTS. It usually happened when I at some kind of acidic food like oranges, tomatoes, lemons, etc. Now for the past several weeks, it is there ALL THE TIME. If I don't eat I get it, if I drink a lot of water (like I am supposed to) then I get heartburn, and if I eat, it relieves it for a little bit, and then it comes back. It responds to normal antacids, which makes me think that I am having some kind of liver or pancr
  10. @sfthriller - Thank you so much for the video! I think I will bring this up with my doctor. Thanks everyone for your replies!
  11. @sfthriller - Thanks for your response. Your headaches sound a lot like mine. I am wondering if you have had a spinal tap before. I am wondering if my headaches are caused by high/low intracranial pressure. Do you think I should ask my doctor about it?
  12. My sister got Coronavirus and although the rest of us tested negative, we did have a couple of symptoms. I have POTS and It did not effect me very much except for a very slight fever and extra fatigue.
  13. In August 2018, I started getting headaches pretty often. I was a little concerned but didn't think much of it. These headaches soon progressed into every afternoon, and then everyday all day. These headaches started shortly after I had gotten glasses, so we got my eyes checked several times, and every time the doctor would just say, "Kids get migraines!". I was frustrated, so I took a different approach, which was going to an ENT doctor. I had developed symptoms of chronic dizziness and I was always tired, my feet were always purple and cold, and I was always sweating for no reason. and so th
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