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Help4Me

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About Help4Me

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  1. Help4Me

    Low Magnesium (Anybody?)

    I too can only take about 200 mg of it at a time......mine is always low on blood tests as well....I don't know why.....diet or not absorbing things I guess.....
  2. Help4Me

    Fluid Leaking out of Ear

    I also have the ringing in the ears and blurred vision......I went to an ENT and he looked in my ears and said they looked fine....you would think with all my symptoms someone would have said hey you may have a LEAK...ugggggg
  3. Help4Me

    Fluid Leaking out of Ear

    Stark I have this too and also have questioned CSF leak.....they can cause POTS too.....I am pretty sure I have one.....but my leaking has stopped lately.....so I don't know....maybe it healed up....
  4. I was awarded SSI due to having POTS....I do have a bunch of other health issues too but it is the POTS that makes me totally disabled.....contact the SSI office and do an application..it takes about 6 months before you will find out if you got it.......I just got mine this month....and am glad I followed through with it......
  5. Help4Me

    yawning to breathe

    yes I have this sometimes...could it be a reaction to a medicine....I found it seemed hormonal...but could also be allergies to mold, dust, pollen etc..
  6. wow you did good......after I my TTT I was in a wheel chair and could not walk for a few days at all..I was shaking so badly and my whole body was vibrating for 3 days......do you know what your BP dropped to ??? what did your heart rate go up to ???? Glad you survived it.....it is a BRUTAL and unnecessary test in my opinion.....
  7. Help4Me

    Another near faint or panic attacks?

    Derek I can totally relate to you.....I am struggling with the same issues......it is VERY scary....and at times I wish I had a drug to just knock me out so I don't have to FEEL anything.... I keep hoping there is a cure or that some morning I will WAKE UP totally HEALED.....but it has been 7 months now and I am losing hope.....i Had the 24 hour urine for catecholamines and it was normal.....so I don't know what is wrong but I suspect ADRENALS are involved somehow some way.....
  8. Help4Me

    Florinef Flox

    Oh wow I did not know that about Florinef..I just knew it made me sick.....wow....now I know why...I cannot have floroquinolone antibiotics.....I did not know Fludrocortisone had fluorine in it ...I am so allergic to that....uggggggg......
  9. Help4Me

    Mitrodine compared to Florenef ?

    Hey Stayathome mom.....Dr. SAWYER is moving back to Lexington area.....or moving there..I don't know if he lived there before.....so he will be closer to you now....he referred me to a new cardio .....I am sad he is leaving louisville.....just thought you might like to know.....
  10. Help4Me

    Vision Issues Upon Awakening

    I was having that alot.....I used to say my eyes are not awake yet.....it was happening alot but has stopped now.....make sure you get a blood sugar tester..and test first thing in the morning...when my blood sugar is high my vision gets blurry too.....but the POTS blurry was different....but it has stopped for the moment...I started taking IRON supplements and my blurry cleared up about 2 days after I started them...I don't know if it had anything to do with it or just coincidence.......POTS is very frustrating and it seems symptoms come and go randomly
  11. Help4Me

    Another near faint or panic attacks?

    Did your doctor say how to fix the adrenaline in overdrive issue......
  12. Help4Me

    Another near faint or panic attacks?

    Derek the same thing happened to me the other day ...I went to Ear Nose and throat doctors.....had to wait quite awhile...and when the doctor was talking to me I felt like OMG I am going to pass out right now....I didn't say anything to anyone...I just prayed inside myself that I would not pass out...but I knew at least I was with doctors if I did it comes on just as you said....my face gets hot...my chest gets hot.....I just start to feel like I am leaving my body...it is very scary.....I also won't go back to the ER...I have been over 40 times in the past 6 months....and they always say the same thing...your heart is fine, you blood tests are normal...go home and see family doctor.....so what is the point of going to the ER
  13. Help4Me

    Help for shaking

    I have severe internal tremors also....it is horrible....I will try both of your ideas......I have been meaning to get a heating pad anyway.....
  14. Echo that is super interesting...i had never heard that before about the sinus' being under the ANS control....I had an MRI during them trying to DX me with POTS and it showed extreme inflammation in my maxillary sinus' I had previosly had cysts in both maxillary sinuses too...so I don't know...but worry about infection spreading to my brain
  15. Help4Me

    GOOD DAYS / BAD DAYS ????

    yes I have SIBO.......I am eating a lot of yogurt now and it seems to be helping with some things...but POTS stuff is still the same....
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